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Old 10-15-2011, 09:43 PM   #1
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Unhappy Diagnosis and other questions

*Sorry, this is long...

I began my period at the age of 9, I'm 21 now and sexually inactive so there is no chance of current pregnancy. I had my first pap smear when I was about 15 years old and haven't had once since, I'll be scheduling my second pap smear this week. I've been told multiple times, including by father who was a doctor, that I probably have endometriosis but no one wanted to test me.

I was just wondering if you think I might have endometriosis and if I should insist on getting tested? I understand a laparoscopy is the only way for an actual diagnosis but can they do a sonogram to see anything before the laparoscopy? And, if I do have endometriosis and I don't get it treated, what are the consequences aside from the ungodly pain every month?

These are my symptoms one week to one and a half weeks prior to beginning my period;
  • Mild to severe headaches
  • Sciatic pain
  • Exhaustion
  • Confusion
  • Increased libido (3-4 days before period)
  • Constipation
  • Tension in muscles
  • Severe anger and aggression
  • Constant urination
  • Nausea
  • Talking with a "mouth full of marbles" (or, stuttering/unable to complete sentences and thoughts)

These are my symptoms one the first and second day, sometimes the third day into my period;
  • Extreme cramping and pain
  • Diarrhea
  • Exhaustion
  • Cold sweats
  • "Flintstone" feet (swelling of feet)
  • Shakes
  • Dry/cotton mouth
  • Pressure in lower stomach and back
  • Constant urination
  • Nausea/Vomiting
  • Weakness in legs, especially thighs, "rubber legs"
  • Blurry vision, hard time focusing on what I'm looking at, "halos"
  • Can't concentrate on what is being said to me and I can't process what's going on - bad memory
  • Lots of clotting

Basically, I am tired of this every month for the last 12 or so years and it has always gotten worse. When I was in school I would have to miss several days each month and now that I am working I have to call in (THANK GOD my employer is understanding!). I really just want this to stop, there is no reason for me to have to keep going through it. I've been put on the birth control shot and I've been put on Kavira. I'm terrible at taking pills and I just am not a fan of the shot.

So what do you think? Again, sorry for the lengthy post and thank you for reading it!

 
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Old 10-18-2011, 01:41 PM   #2
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Re: Diagnosis and other questions

Elbinar,

I had endometriosis, and most of my symptoms were similar to yours. I can't remember if they saw anything when the Ultrasound was done, as it was so many years ago I can't remember everything. I had 2 surgeries within 1 year for endometriosis, and they were done laporscopically. About 1 year after my 2nd surgery for endometriosis, I had a total hysterectomy.

I was always so sick with my period, that for me the hysterectomy was actually better in the long run.

As far as complications go without having surgery for endometriosis, I think that it just gets worse as the endometriosis can implant sometimes get into abdominal areas.

If you are wanting to have a child, sometimes the doctors think that not having a period can help with endometriosis, and being pregnant often helps. (I recommend marriage first)

I really hope that your testing goes ok, if you do need surgery remember that the pain only last for a little while compared to all the time you have been suffering.

I am sure you will get many replies on this board in the next few days that will help give you support.

 
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