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20 yrs old, suffering with endo need help :(

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Old 11-01-2011, 09:23 AM   #1
Join Date: Nov 2011
Location: South Florida, USA
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rapmuffinz HB User
Angry 20 yrs old, suffering with endo need help :(

For the past 3 or so years i have had random sharp stabbing pain in my abdomen and sides. I recently went in my gyno for an emergency ultrasound because i had 2 straight days of not being able to get up and 6 days of bleeding a week after my period. my mother thought i had an epitpoic pregnancy or some cysts that ruptured.

turns out i did have a small cyst that was leaking, and my doctor thinks i might have endometerios. she gave me some pain pills, and told me to wait 3-6 months and then we will talk about a laprascopy.

Personally, i do not want to wait and just want it done. I am still in pain almost every day. It affects my work and home life.

Has anyone had this same situation? I need some advice on how to expedite the surgery, because i am tired of being in pain every day!!

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Old 11-01-2011, 03:40 PM   #2
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Re: 20 yrs old, suffering with endo need help :(

Hey rapmuffinz,

I'm in the same situation atm. If you are really suffering and they won't budge about the surgery you should persuade them into helping you with some kind of better pain relief, or consider trying out birth control for your pain. All you can really do is stress how much it's affecting your life and how you can't live with it anymore.

Last edited by Ayria; 11-01-2011 at 03:41 PM.

Old 11-01-2011, 06:06 PM   #3
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rapmuffinz HB User
Re: 20 yrs old, suffering with endo need help :(

I am on birth control right now, I made an appointment to go in Monday. Let's hope

Old 11-02-2011, 02:59 AM   #4
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Re: 20 yrs old, suffering with endo need help :(

Best of luck with your appointment, I really hope it goes well. Take care.

Old 11-02-2011, 02:52 PM   #5
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Jaynelovesyou HB User
Re: 20 yrs old, suffering with endo need help :(

When i was diagnosed last year i started bleeding through my birth control. Yeah they didnt budge on the surgery. I bled for three months straight. it was horrible.

If i were you id get a second opinon? I trusted my doctor and i shouldnt have. I have since left that doctor.

Please be your own advocate(s). Because you know your body, you know when its not right. Dont brush it off like i did.

And after surgery, make sure you research any drugs they want to put you on, like lupron depot or anything like that.

Good luck

Old 12-29-2011, 07:14 AM   #6
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gumpfrog HB User
Re: 20 yrs old, suffering with endo need help :(

Hi I am 25 and yes I am dealing with endo myself. I hurt all the time and am misreable but im not being treated by a dr

Old 04-30-2012, 06:40 PM   #7
Join Date: Apr 2012
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Keyer08 HB User
Re: 20 yrs old, suffering with endo need help :(

Its time for a second opinon. You are in the same boat I was when I was 14. I laid on the floor for three weeks out of the month and bled out. Horribly Pain ect ect. Here when i had my ultra sound right before my 15th birthday I had Meatball sized poylps so they rushed me for surgery. This doctor and another doctor both obgyns missed my endo. Finally at 17/18 I saw a specialist in obgyn( They take high risk paitents/ or pregnancys ) and she agreed to do the laposcope, by that time it was spread all over, adhesions, scar tissue from the first two operations preformed, endo was on my appendix, bowel, bladder, kidneys, ovaries, ect ect. Seek another opinion and soon! or go back and insist on the operation if BC pills arent working. I suffered for so long and im now 20 and still suffering even on endo meds. The sooner you find out the sooner you can teat it, sadly there isnt many doctors out there that know much about endo or even treatments once they confirm it. So research, find a doctor who specializes in Endo. and Good Luck, its one heck of a roller coaster ride to find the right meds. Im years into this and i havent found anything. Im eight operations into this and that is the only thing that helps and my endo grows so fast i need one or two operations a year to get any relief

Old 07-02-2012, 02:30 AM   #8
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AdelleInvisible HB User
Re: 20 yrs old, suffering with endo need help :(

Its good/important to be proactive about your health. You are at the right age where this kind of issue is most prevalent. But its never fun to be sick with worry. Relax, breath deep, try another doctor, and ask for an ultrasound. Theres no reason any medicle doctor should deny you this. Most of what a doctors job is to satsify the patients peace of mind (with in their budget if applicable.)

You have 3 options most likely (according to the ultra sound) and this is solely base off my personal experience.

1. It will show early stages of something (endometriosis etc), meaning a "simple" procedure to correct it. Called a laparascomy It is an out patient procedure. They cutt a little hole near your belly button and go in with cameras and laser off the bad.

2. What ever is showing is not considered big enough to "worry" yet. You could be put on BC to regulate your period in hopes that it will go away on its own (This is very likely and if this option is offered to you, I would recommend
it as it is the most non invasive solution.)

3. If its bad enough (meaning you didnt catch it in time) could turn into a serious problem and would require a C-section type of surgery and the removal of a larger peice of you.

I was option 3. I had a chocolate cycst the size of a grapefruit that was pre cancerous. I got it out in time before it spread, although not with out the removal of my left ovarie Its called a salpingo oophorectomy- removal of 1 ovary)..Sometimes.. (as ****** as this sounds).. suffering is a part of life and you will have to find the best way you personally can cope with this. I know you dont deserve this. I miss my ovary and I am only 23. Now its a battle for me to find the right BC that give me the most bareable side effects.

Good luck and let me know how it goes...*here for you keep your head up it gets better..

Old 07-02-2012, 03:41 AM   #9
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Re: 20 yrs old, suffering with endo need help :(

I had ovarian cysts and some endo that increased gradually over the years. Turned out I was Iodine deficient - a common thing - which makes your body over-sensitive to estrogen (or something like that). Supplementing with Lugols Iodine has been completey transformational - a reduction within the first few months, almost gone within a year and completely gone after 2+ years.

So try that first before doing anything surgical. I was diagnosed by a simple urine test by a nutritional health oriented regular doctor. Find yourself one of those and get the test.

Old 07-06-2012, 02:12 PM   #10
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Re: 20 yrs old, suffering with endo need help :(

Hi ladies,

To all of you suffering with endo pain, I absolutely understand and empathize with you! I've had a stubborn case of it for almost 8 years now.

Rap, I was diagnosed at age 20 myself (I'm now 27). I was in the ER 3 times thinking I had appendicitis- had extreme pain in my lower right abdomen and a fever. After the 3rd time, I went back to my gyno and it was determined that it was probably endometriosis. Unfortunately at the time the only way to truly diagnose it was to have a laparoscopy, as endo usually cannot be seen on any other test.

Anyway, I had the first surgery in 2005 and it was confirmed. But, I have one suggestion for you that you may want to ask your doctor about. After the surgery, he put me on 6 months of Lupron, which is a hormone therapy treatment. It's a shot in the upper butt once every 3 months. What it does is kick your body into a menopause-like state, so ALL your hormones stop completely. I can tell you honestly menopause is not fun, but my doc prescribed a hormone pill called Aygestin to take daily which REALLY helped counteracting the side effects like hot flashes, mood swings, and insomnia. After the 6-month treatment, he put me on the birth control Lybrel, which is the one where you never get a period. It may not sound safe to some, but I can tell you from experience that no period is better than excruciating pain during your period!

Sometimes Depo-Provera can be used (for some, it is cheaper depending on insurance) but the side effects are supposedly worse than the Lupron. I have since been back to the gyno, as every few years I find the pain comes back with no mercy and I need more treatment. I had a second surgery in 2009, then the Lupron again, and back to birth control. I have to say, though, the hormone therapy has really helped me.

I've also suffered from ovarian cysts, and I know that they are no fun at all.

Can't hurt to mention Lupron to your doctor and see if it's right for you. Please know, however, that although Lupron stops your reproductive system completely, it is NOT marketed as birth control, so use a backup method to be safe if you have sex. Depo-Provera on the other hand IS a form of birth control, so you can weigh out the benefits of both for yourself.

Either way, I wish you the best of luck and hope that you are pain-free soon!

"You can turn off the sun, but I'm still gonna shine."
-Jason Mraz

Old 09-09-2012, 10:49 PM   #11
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sadieashley21 HB User
Re: 20 yrs old, suffering with endo need help :(

I definitely feel your pain I ended up in the er a couple times a month for pelvic pain so bad I had thought it was a cyst or something serious I would have very bad periods that would last for what seemed like forever they kept telling me I had cysts an pit Mr on a birthcontrol.. finally the put me on the drop an my pain completely went away I had awful side effects from it so got off an the pain continued I went to 7 different doctors for one finally to tell me I had endometerosis. I was diagnosed when I was 20 I'm now 21 I had the surgery an the pain still was there they put me on a shot called the lupron shot it's an awful shot it makes you go through menopause dizzy headache mood swings but my pain has completely gone away it gets better but you need the surgery I was at a stage 4 by 20 years old it's a tough road but gets better!! Goodluck

Old 09-10-2012, 07:35 AM   #12
Join Date: Sep 2012
Location: Georgia
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Michelle200 HB User
Re: 20 yrs old, suffering with endo need help :(

You really need to push the fact that you are in pain and it is getting in the way of your daily life. Its stupid they want to wait so long. i waited a two weeks and they did the exploratory laparscopic surgery which did diagnose adhesion's from my c section and i have endometriosis wrapped almost 90% of my right kidney. my doctor wants to wait and not take it off, but im constantly sick. nauseous, headaches, dizzy, weak, so much pain, even though its risky surgery cause of the major blood vessel its wrapped around, but i want to feel better. but you need to push them about it. cause the exploratory surgery isnt a big deal, you will just be sore. i hope this helps =) should i wait for kidney surgery??

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