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Old 07-16-2012, 09:47 AM   #1
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Question Looking for support

Hello,

I've been reading through several boards for awhile, but this is my first time posting. I was recently (March) diagnosed with endo, myofascial pain syndrome, and IBS. Back in October 2011, I was also diagnosed with PCOS.

I finally was able to schedule my first lap for August 17th, and I feel like the date can't get here soon enough! I feel that my endo symptoms have been getting progressively worse over the last several months, and it seems that I am in constant pain on a daily basis now. I also tend to have a lot of nausea that accompanies my pain. I wonder if anyone has experienced the same combo?

The doctor and specialist that I've been seeing have both been great, but it sort of weirds me out that they want to completely stop me from having any future periods because of the endo. I'm all for it if it will make the pain go away, it just seems so against nature.

Today, I just sort of feel like I'm at my wit's end with dealing with all of this for almost a year (symptoms first started back in August 2011) and thought I would post just to try and get some support from others who are dealing with similar issues. Everyone around me has been so supportive, thankfully, but at the end of the day, they still can't understand what it's like to go through all of this.

Also, if anyone has any advice for me before the lap, I would really appreciate it. I've heard the gas afterwards can be one of the worst parts of the whole procedure.

Thanks in advance for any and all feedback and support!

 
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Old 07-16-2012, 10:04 AM   #2
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Re: Looking for support

I don't have endo, but I did have laparoscopic surgery last year, for a digestive problem. (And I have myofascial pain, which is fun fun fun.)

The gas wasn't fun, but it was doable. The trick is, don't stay in bed. The nurses had me up and walking as soon as the anesthesia wore off. As I recovered at home, I would take a gentle walk outside twice a day, and every time I got up to go to the bathroom or get something to drink, I would walk around the house for a few minutes. It really helped. Also, I hugged a pillow against my abdomen when it hurt. After about a week, the incisions were basically healed and most of the gas was gone.

 
Old 07-18-2012, 04:29 AM   #3
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Re: Looking for support

Hello there! I'm not sure if this will help but I can sympathize with what you are going through. I'm 34 and have had problems with my period for a very long time. I was always a heavy bleeder with TERRIBLE cramps. I have polycystic ovaries as well as PPMD. PPMD is a disaster. I would always tell my mom what was happening to me but never knew it actually had a name until I saw a commerical on TV. Usually from ovulation on, I'm an emotional nightmare. I have issues with depression to begin with. I can go to bed in an ok mood and wake up hating everything about life. I'm that way until I get my period. I have terrible thoughts in that time. It's quite crazy. If you read the symptoms you will have a better idea, unless you already do. Sorry for rambling. As the years went on, I noticed that my left side was always worse than my right. I get severe pain on my left side with an intense burning feeling. I had a lap in December. My gyno found cysts and the beginning of endo. Both were too small to remove. I'm already on birth control pills to "help." She mentioned Lupron to me, which may be the treatment you had mentioned. I agree 100% that it's unnatural. I'm 34, not sure if I'm going to have children, but feel putting my body in unnatural menopause is just that...unnatural. So I still deal with the pain every month. It amazes me that endo has been "around" for how long.....and that's the only treatment. I start taking naproxen and water pills when I'm ovulating to help with cramping and bloat. Unfortunately, nothing really helps with the burning and symptoms of endo. I know that's not the answer you wanted. I wish I had one. I just wanted to share my experience. As far as the surgery, I did have a very hard time with the anasthesia, but not everyone does. People react differently. As far as the gas, that was hard but take meds. I agree with the previous post, keep moving. I would walk around to try to move the gas along. As much sense as it makes, I didn't think of it....you bleed for a while after. I hope someday there is a better answer for endo.

 
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endometriosis pain, myofascial pain syndrome, pcos



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