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Old 07-11-2007, 08:29 AM   #1
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Indoor Mold Exposure

I was wondering if anyone could share their "successful" medical treatment of indoor mold exposure with me.

Specifically, I would like to hear about your symptoms, which type of doctor/specialist diagnosed it, the course of treatment and how long it took to feel like your old self again.

The internet is follow of "horror" stories and it becomes depressing to read them. Most of them never describe a successful resolution or treatment either.

 
Old 08-14-2007, 07:18 PM   #2
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Re: Indoor Mold Exposure

Hi

I too am suffering from indoor mold exposure. I have high levels of 5 mold mycotoxins in my blood. Docs do not know anything about mold nor do they seem to want to. I went to a holistic doc who ordered these blood tests and I had to pay for them myself - $600. The lab apparently has stopped doing blood tests for mold as I guess not enough business from them. He suggested cholestrymine but I can't take it as I have osteoporosis and it causes brittle bones. He then wanted to give me weekly Vit C IV's but I only have one arm to use because I had a mastectomy so my left arm already looks like I am a druggy with all the blood testing, IVs, etc. that I have had so I have no idea how to detox.

Allergists only find out if you are allergic to certain molds and that is not the big problem. The problem is whether you have toxic mycotoxins in your system. We had over $30,000 mold remediation done and now we have a rotten and musty smelling garage window under the bedroom and you can smell it upstairs occasionally........still waiting for the carpenter to tear it out. We are basically broke as that was our equity loan which is now used up so we can't get the remediators back to take care of the window. I have learned quite a bit about mold so ask anything you like and if I can help answer some questions I would be glad to.

Suggi

 
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Old 08-17-2007, 01:44 PM   #3
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Re: Indoor Mold Exposure

Quote:
Originally Posted by suggi View Post
Hi

I too am suffering from indoor mold exposure. I have high levels of 5 mold mycotoxins in my blood. Docs do not know anything about mold nor do they seem to want to. I went to a holistic doc who ordered these blood tests and I had to pay for them myself - $600. The lab apparently has stopped doing blood tests for mold as I guess not enough business from them. He suggested cholestrymine but I can't take it as I have osteoporosis and it causes brittle bones. He then wanted to give me weekly Vit C IV's but I only have one arm to use because I had a mastectomy so my left arm already looks like I am a druggy with all the blood testing, IVs, etc. that I have had so I have no idea how to detox.

Allergists only find out if you are allergic to certain molds and that is not the big problem. The problem is whether you have toxic mycotoxins in your system. We had over $30,000 mold remediation done and now we have a rotten and musty smelling garage window under the bedroom and you can smell it upstairs occasionally........still waiting for the carpenter to tear it out. We are basically broke as that was our equity loan which is now used up so we can't get the remediators back to take care of the window. I have learned quite a bit about mold so ask anything you like and if I can help answer some questions I would be glad to.

Suggi
hi, thanks for sharing! i was wondering what type of symptoms you have/had? i fear that i may be exposed to mold in my apartment and want to seek medical help and check myself out. So what kind of dr did you go to?? a holistic? please let me know.
thanks! hope everything gets resolved for you soon!

 
Old 08-17-2007, 05:02 PM   #4
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Re: Indoor Mold Exposure

One thing to consider is air cleaners throughout the home. I have 3 Fresh Air Machines and an EcoQuest running in my 1300 sq foot home, I have noticed the difference in the air quality. It might be overkill since I don't even know if I have any mold problem but it has helped the air quality in my home.

 
Old 08-19-2007, 11:39 AM   #5
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Re: Indoor Mold Exposure

Alexiwildchild

Yes, I went to a holistic doc but he really did not help me although he knew about mold and ordered the blood tests. However, if I did take the cholestramyine like he wanted me to in spite of the osteoporosis and the fear of the bones going down as it does cause brittle bones -- I probably would have died. I only found out when I ordered my last batch of osteo meds (Evista) that it actually stated on the drug sheet UNDER NO CIRCUMSTANCES DO NOT TAKE EVISTA WITH CHOLESTRAMYINE. Boy, shows you what holistic docs really know.....and he was sending me to a compound pharmacy to get it and the druggist there had a list of my meds and did not blink an eye at the fact I was taking Evista.......just wanted to fill the prescription (no drugs from there are covered under insurance) and I asked for the drug sheet and that is how I found out about the brittle bones side effect and said never mind. You have to be your own detective when these "docs" prescribe something. You even have to be careful with regular MDs these days and they know nothing about mold. I have 3 air purifiers going, 2 dehumidifiers and 6 Airfrees in the house on different levels. The airfrees incinerate mold spores and bacteria.

 
Old 08-19-2007, 06:35 PM   #6
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Re: Indoor Mold Exposure

thanks so much for replying. i noticed your old threads about the mold, did you or are you feeling better now with the air purifiers??? i will definitely be checking into the Airfrees. my dad sent me my grandma's Ionic Breeze Quadra, but i read where it omits ozone...so don't want to use it in fear of creating other health issues. do you know if the Airfree does that? i also called around friday and it seems no one knows where to tell me to call or go to get mold testing of my blood....weird...
thanks again!!! let me know how things are going now please. i think i am just going to move..ughhh

 
Old 08-19-2007, 08:12 PM   #7
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Re: Indoor Mold Exposure

Hi

Sorry you are having so much trouble but it is most frustrating. No, the airfrees do not emit any ozone at all. The inspector I had said the ozone air purifiers were the worst going. I have Honeywell air purifiers but I like my airfrees the best. [removed] I can not say if I am better yet but hopefully the toxins are slowly coming out of my body. The only lab that did the testing was Immunosciences Lab but they apparently are not doing mold now -- probably because they didn't have enough docs asking for them. Shame, shame on the docs who are uneducated and do not care to be educated in mold problems. Hopefully they will do them again at some point as I think they are just about the only lab in the country that did them. My PCP just shrugs her shoulders and says she doesn't know anything about mold.

I had a mastectomy, have Crohns disease, osteoporosis, gastritis, esophagitis, chronic sinus problems and the holistic doc said it may all have come from the long term mold exposure and that I was at risk for liver and kidney cancer because of the high levels of mycotoxins in my blood. The blood tests he had done cost me $600 as the lab didn't take insurance and the holistic doc said not to send it in to the insurance company as it would raise a red flag in case I ever needed to change health insurance???? Can you figure it out - I can't. Where is help when you need it. Even if the tests were still around I couldn't afford to have them again to see if I was worse or better.

If your tummy can take it -- take as much Vit C as you can and when you get diarrehea cut down on the dose.....that is what the holistic doc said. Well, with my gastritis, etc. I am lucky if I can take 500/day.

You can also get some concrobium [removed] which is completely non toxic to clean with or fog your apartment. It kills and encapsulates the mold/spores as it dries and really works. You can fog with no protection at all. And then the airfrees, etc. should keep the apartment clean. Just make sure to keep the humidity down as much as possible.

Last edited by mod-anon; 08-19-2007 at 11:18 PM. Reason: do not instruct members on how to find websites.

 
Old 08-19-2007, 08:47 PM   #8
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Re: Indoor Mold Exposure

Hi! I checked out the Airfrees and they look very good, i will probably be purchasing one or two very soon. sorry to hear about all your problems, that's quite a bummer---I do hope you get well and don't have to be troubled with any more health issues. thank you so much for the info on the vitamin c and the concrobium. do you know how much of the vitamin c would be ok to take? i will be getting some tomorrow. i also have read where i think garlic or oil of oregano extract is supposed to be a good anti-fungal....don't know if that would help any?? sucks doctors aren't educated that much on this...especially when all you want to do is feel better! hope you have a good...mold free....week!

Last edited by mod-anon; 08-19-2007 at 11:19 PM.

 
Old 08-20-2007, 07:11 PM   #9
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Re: Indoor Mold Exposure

The way the holistic doc put it -- start out with 500 mg and keep increasing until you get diarrhea and then cut back on it and stay at the dose you can tolerate. Hope he knows what he is talking about. He didn't say how long to stay on the high dosage either.

 
Old 08-23-2007, 07:06 PM   #10
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Re: Indoor Mold Exposure

hey suggi,

thanks again! i just bought the Airfree after much research...can't wait to get it! i think it will definitely help in my case, at least give some relief until i can move>
hope all is well with you!

 
Old 08-28-2007, 08:03 PM   #11
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Smile Re: Indoor Mold Exposure

Hope you find it works for you. As I said I have a few of the little guys in my house and they seem to be working. They are supposed to incinerate bacteria and viruses also and I had about the best winter in a long time since having an airfree in my bedroom. Didn't get sick at all.

Take care.

 
Old 08-30-2007, 09:05 AM   #12
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Re: Indoor Mold Exposure

I haven't been on the board in a while as I took some time off to get my life in order.


What I've learned is this.....
If you are living in pain and experiencing physical symptoms from mold exposure, it is very possible that you will become depressed. That is what happened to me.

My story.....
After this past Christmas, I became sick with a lingering cold(?). My symptoms then became migraine like headaches, blurred vision at times, constant pressure in my head, insomnia, fatigue, general aches and pains in my face, lose my train of thought, sore throat, and muscle palpitations. These symptoms occurred daily - from the time I awoke to the time I went to sleep. During the months of January through April, I saw my primary care physician, two ENT's, an allergist, a pulmonologist, and a neurologist....to no avail. No one could tell me what was wrong. Finally, at the beginning of May, I discovered that my washing machine (located in a spare bathroom closet) had been slowly leaking. This had been going on for a while. And due to poor work when this bathroom had been added on 40 years ago, the floor in the closet had settled. Therefore, everytime the water leaked, it rolled to the back wall and was absorbed into the wall and floor. My friend and I removed the washing machine and began pulling the floor apart to try to determine what was going on. What we found was mold underneath the floor and in the walls. The wall board was so saturated, you could put your finger through it with ease. I immediately moved out of my house.

Over the next couple of weeks I would go back to the house to meet with the insurance company, and contractors to remove the mold, test the air quality and rebuild. The air quality test was an eye-opener. I specifically chose someone who only performs testing to get as honest assessment as I could. What he determined was that I had exposure to aspergillus, pennicilium and stachybotrys at extremely high levels. And to make matters worse....since I pulled apart the boards and wall to figure out what had happened, I essentially dispersed the mold throughout the house. I no longer could go into my house unless I had a respirator. I found a very good company to perform the cleanup (again, they only do cleanup; not contracting where the money is made). They had to clean everything down using hepa filter vaccuums, anti-microbial solutions, air handlers and of course remove the mold.

During this time, some of my old symptoms went away but new ones appeard; mainly, dizziness and shortness of breath. I asked myself what is going on with me? I felt like I was falling apart and began to constantly think of why I was sick and would search the internet daily (bad idea). When my pulminary tests came back fine and I spoke to my doctor, I mentioned that I think I'm depressed. I've never even remotely experienced depression or anxiety in my life. He agreed though and put me on Lexapro for the depression and Xanax for the anxiety. It's working .... almost all of my symptoms are gone. I am seeing a counselor and trying to be pro-active as possible (exercise, get more sleep, eat right, reconnect with friends). I am not ashamed of my situation....just frustrated. I knew what I was at one time and get frustrated that I am not back to that level yet. But my doctor explained it this way....you were in constant pain for months without any explanation. The combination of these two factors can effect the chemistry in your brain thereby making you depressed. A combination of the medication and my pro-active approach will get me back to where I was. Look at it this way, when people have a heart attack, there is a 60% risk that they will become depressed. It is not unusual to experience depression as a result of an illness.

I moved back into my house 3 weeks ago. I do have good stretches of days as well as bad ones. Overall, my friends and family say I'm much better than a month ago. I'm trying to learn new habits and re-connect with my house. That is one thing I lost....I am trying to see my house as my comfort zone again. I will probably sell it though....too many bad memories...the mold and I had bought it with the ex-wife.

I hope my story helps anyone reading this.

P.S. One of my co-workers mentioned that there was also a health news brief on CNN this morning about a link between mold and depression. I'm trying to find it now.

 
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