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hawk1 04-13-2012 07:23 AM

chemical sensitivity and trigeminal neuralgia
 
Does anyone else who has developed chemical sensitivity also experienced trigeminal nerve damage? When I first developed chemical sensitivity, it started with extreme burning in the face, nose and eyes. Once the burning eases up, my eye sockets will feel bruised for days afterwards. Chemicals do not have to smell to be present but I know that my reactions are starting when the burning starts in and I know to get away from the area immediately because the longer I stay around, my reactions will progress and pain will move into my chest and rib cage causing internal pain that can last for a couple of days to a week, depending on the exposure. I have been to EI specialists and not a one has mentioned the possibility of trigeminal neuralgia and I just happened on to an article that explains that chemical irritation can cause this condition, and the symptoms you experience. I have very minimal pain in the mandibular nerve but alot of pain in the areas of the ophthalmic nerve and the maxillary nerve. Any type of fragranced product I am exposed to will initiate the burning and my nasal passages will start sweling and close up trying to protect itself from the exposure. Has anyone found a type of treatment that will help?

angdunn 09-27-2012 09:12 PM

Re: chemical sensitivity and trigeminal neuralgia
 
Hi!

My symptoms are not the same as yours, but my trigeminal nerve is definitely involved. How/when did your problems begin? I was exposed to lignite (soft coal) pollution in Dec./Jan in Kosovo. I also have been unable to find anyone with similar symptoms.

I breathe in chemicals through my nose (or mouth) which then causes a taste/tingling sensation in my tongue and pain in my teeth. It can be any of my teeth although the pain is usually concentrated to my front top or bottom teeth. My triggers are substances from Kosovo, VOCs, smoke, heat sources, cleaning products, personal care products, plastics, etc.

I also have digestive problems, clotting, damage to my spleen, abdominal pain, fatigue, headache, sinus pain. This week I'm off my supplements so my urine can be tested for metals. I found relief by limiting my diet to organic fruits, vegetables (no nightshades), gluten-free grains, beans, fish, poultry. Zinc and Alpha Lipoic Acid supplements help too.

Could you pass along a link or reference to the article you found? Thanks!

hawk1 09-28-2012 09:18 AM

Re: chemical sensitivity and trigeminal neuralgia
 
I found the research articles at a website at the University of California, Chemosensory Perception Lab. Some of their research scientists have published papers on this subject. My triggers started with the synthetic chemicals in fragrances used in a multitude of consumer products then progressed now to car exhaust, diesel fumes, gasoline and printed materials, just to name a few. I have not used chemicals in my home for years because I have a bird, no teflon, not the self cleaning mode in my oven, etc. so I am luckier than most in that I did not have to change much to create a safe place to live. Exposures will affect, not only my face, eyes and nose but also my blood pressure, white blood cell count, heart, gall bladder, just to name a few. You also need to visit the planet thrive website where there is over 2,000 members that also suffer from a host of environmental problems and contains very valuable health information for all of us. I wish you all the luck in the world in dealing and coping with your health problems and again, planet thrive is a great place to go for support and further information!

angdunn 10-01-2012 10:11 PM

Re: chemical sensitivity and trigeminal neuralgia
 
Thanks for your Planet Thrive suggestion. I just got signed up. Take care, Angie

jaishreejain 10-07-2012 10:29 PM

Re: chemical sensitivity and trigeminal neuralgia
 
Just curious if you are on any nerve medications such as Neurontin or Tigerton.

hawk1 10-09-2012 09:50 AM

Re: chemical sensitivity and trigeminal neuralgia
 
jaishreejain, I did try Gabapentin oral drops for 3 months but, unfortunately, it did not help before or after a reaction. I have never heard of Tigerton and tried looking it up on the internet but could not find any information on it. In my case, I have found that the most effective form of treatment for me is avoidance. So far, I have not found anything that helps to minimize the pain after a reaction or to even prevent a reaction. Thank you for the suggestions.

angdunn 10-12-2012 07:55 AM

Re: chemical sensitivity and trigeminal neuralgia
 
I was on Neurontin when I was hospitalized in June for severe abdominal pain. I'm not sure if it has anything to do with the medication, but I had a clot which caused damage to my spleen and my digestive system basically shut down. I had taken the Neurontin for about a week before my trip to the hospital and it DID help my mouth pain symptoms, but I am leary of trying it again since my digestive system is so sensitive.

Titchou 10-21-2012 11:30 AM

Re: chemical sensitivity and trigeminal neuralgia
 
The drug is called tegretol here. Are you planning surgery for the TN? It was very successful for my sister. And antihistamines can sometimes help chemical sensitivities...not always but a zyrtec a day is worth a try.

Nat777 06-25-2013 08:27 AM

Re: chemical sensitivity and trigeminal neuralgia
 
[QUOTE=hawk1;4960845]Does anyone else who has developed chemical sensitivity also experienced trigeminal nerve damage? When I first developed chemical sensitivity, it started with extreme burning in the face, nose and eyes. Once the burning eases up, my eye sockets will feel bruised for days afterwards. Chemicals do not have to smell to be present but I know that my reactions are starting when the burning starts in and I know to get away from the area immediately because the longer I stay around, my reactions will progress and pain will move into my chest and rib cage causing internal pain that can last for a couple of days to a week, depending on the exposure. I have been to EI specialists and not a one has mentioned the possibility of trigeminal neuralgia and I just happened on to an article that explains that chemical irritation can cause this condition, and the symptoms you experience. I have very minimal pain in the mandibular nerve but alot of pain in the areas of the ophthalmic nerve and the maxillary nerve. Any type of fragranced product I am exposed to will initiate the burning and my nasal passages will start sweling and close up trying to protect itself from the exposure. Has anyone found a type of treatment that will help?[/QUOTE]


My symptoms are very similar to yours. I get facial numbness and my face pulls up on the left hand side. My tongue burns and swells and I get scallops around its edge. Smells from fragrances, petrol fumes, plastics, air fresheners, fabric softener all cause this. I go dizzy and light headed, feel sick, can't concentrate, get *****ly itchy skin/rash. Tight chest and breathing difficulties. I have had vocal cord dysfunction diagnosed and have received physio to help with this. Sometimes my throat swells and sometimes I react to furniture/ soft furnishings which I cannot smell. I have been diagnosed as medically unexplained in the UK. The UK does not recognise MCS. Have tried various antihistamines but they all make me sleepy even the non-drowsy ones.

hawk1 06-25-2013 05:23 PM

Re: chemical sensitivity and trigeminal neuralgia
 
I am so sorry to hear that you are going through this. When I first developed MCS, my family doctor did not have a clue as to what he was dealing with and placed me on a number of antihistamines. At first they did help; however, the more sensitive I became, the less they helped. Even though they claim the US does recognize MCS as a disease, it is more difficult to be approved for any benefits. I have tried other medications prescribed by environmental illness specialists to no avail and have been living in total isolation for the last 1 1/2 years in our home out in the country. This is the only effective form of treatment for me. I do not know if you are already a member of the Planet Thrive community but sincerely invite you to join. We have close to 3,000 members from all over the world and you may find others from the UK that could help you to find further assistance there. My heart goes out to you as you are trying to figure out how to live with MCS.


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