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Old 11-20-2003, 09:25 PM   #1
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Epilepsy "Cries" and loss of bodily functions

My brother gets these right before he has a gran mal seizure.I just recently read though is that the reason they do an epilepsy"cry"is because they just wasted their oxygen on that cry.They also lose oxygen with gran mals.My brother on certain occasions has turned blue because of the lack of it.Has anyone been told they have had that cry?And also I never really knew this about bodily functions,but they can lose all bodily functions in a gran mal.As far as we know,my brother hasn't done it yet{#1or2}but I know he has to go after.Anyone had this before?

 
Old 11-21-2003, 05:19 PM   #2
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Post Re: Epilepsy "Cries" and loss of bodily functions

I'm not sure what an epilepsy cry is, so I can't help you there. Yes some people do turn blue. For me, for some reason, my hands go ice cold and turn blue. And yes on the other issue you brought up. When my seizures are strong I lose bladder control, but I do not lose it everytime. I have been lucky and have never lossed my bowel, not to say that won't happen (I'm knocking on wood if you thought you heard something )

Well I hoped this helped a little, have a good one!

Lisa
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Old 11-21-2003, 09:09 PM   #3
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Re: Epilepsy "Cries" and loss of bodily functions

The cry sounds like a loud scream.Kind of like this "wheww".Kind of like a scream on a rollercoaster or a theme ride.He does this right before he has a gran mal and falls to the ground.It's actually quite normal from what I've read.

 
Old 11-22-2003, 10:14 AM   #4
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Re: Epilepsy "Cries" and loss of bodily functions

Quote:
Originally Posted by bruised
The cry sounds like a loud scream.Kind of like this "wheww".Kind of like a scream on a rollercoaster or a theme ride.He does this right before he has a gran mal and falls to the ground.It's actually quite normal from what I've read.

Before everyone of my husband's GMs he does have the noise. It sounds like a huge grunt while the air rushes out of him almost -- what I would classify as a noise men make when they open things that are difficult. It usually sounds to me like he is trying to fight it. The sound is unnerving and sad especially since after the effort (what I think is an effort to fight against it) he always loses and has a GM.
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Old 11-26-2003, 04:23 PM   #5
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Post Re: Epilepsy "Cries" and loss of bodily functions

Hi - my daughter Rebecca often screams when she goes into a tonic clonic seizure - I always find that so heart breaking - since I now sleep with her, I have witnessed it happening when it is least expected, so it seems to be a reflex reaction. She also voids during a seizure, although for many years that was not the case. Even when we would put diapers on her, the gush of urine would still leak through - and so it is............all the best......Paula
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