Frustrated As All Get Out! - Epilepsy Message Board

KaitiePrincess · 02-11-2004, 03:27 PM

Hey Everyone, It's Kaitie. I am writing mostly to vent (apologies in advance).
I just got off Topamax and at first I thought this was the greatest thing ever - and I switched to Lamictal. Two major problems...most important I'm having like a jillion Complex Partials a day. (Like 10 at least) and the other thing...I'm gaining weight - grrrrr....

The whole purpose of getting off Topomax was to increase my energy level and to make me a little 'faster' so to speak...school was suffering. Well I truly haven't noticed much of a difference - so now I'm wondering if I should just go BACK onto Topomax and get rid of the seizures.

I HATE taking ANYTHING quite frankly - so this really really sucks. I'm thinking now about all sorts of depressing things - like 'God, I'll be taking these stupid pills forever!' and then, I wonder what people think of me - when I'm talking to them and then I just stop, and do something else.

At a craft store the other day I had like 5 items at the checkout, then I had a CP and then before I know it I guess I was organizing my things on the counter and I'd decided already that I didn't want two of them, but apparently when the cashier asked if I wanted them I said yes. Then my friend tapped me on the arm (this part I know, the rest she told me about) and said "Do you REALLY want those???" and I'm like - no. But STILL I didn't know what was going on...and then I was just like - CRAP, no, no I don't want those...and then I felt like CRAP for so long afterwards.

I HATE THIS HATE THIS HATE THIS!
Join me in my rant if you like.

Love Kaitie

kayakmom · 02-17-2004, 09:12 AM

Vent away!! So hard when you do not have control! Hope you are having a better day today!!

angie75 · 02-17-2004, 06:52 PM

Quote:

Originally Posted by KaitiePrincess

Hey Everyone, It's Kaitie. I am writing mostly to vent (apologies in advance).
I just got off Topamax and at first I thought this was the greatest thing ever - and I switched to Lamictal. Two major problems...most important I'm having like a jillion Complex Partials a day. (Like 10 at least) and the other thing...I'm gaining weight - grrrrr....

The whole purpose of getting off Topomax was to increase my energy level and to make me a little 'faster' so to speak...school was suffering. Well I truly haven't noticed much of a difference - so now I'm wondering if I should just go BACK onto Topomax and get rid of the seizures.

I HATE taking ANYTHING quite frankly - so this really really sucks. I'm thinking now about all sorts of depressing things - like 'God, I'll be taking these stupid pills forever!' and then, I wonder what people think of me - when I'm talking to them and then I just stop, and do something else.

At a craft store the other day I had like 5 items at the checkout, then I had a CP and then before I know it I guess I was organizing my things on the counter and I'd decided already that I didn't want two of them, but apparently when the cashier asked if I wanted them I said yes. Then my friend tapped me on the arm (this part I know, the rest she told me about) and said "Do you REALLY want those???" and I'm like - no. But STILL I didn't know what was going on...and then I was just like - CRAP, no, no I don't want those...and then I felt like CRAP for so long afterwards.

I HATE THIS HATE THIS HATE THIS!
Join me in my rant if you like.

Love Kaitie

Sorry you had such bad luck w/Lamictal. I had a silmilar experience, then got the allergic rash, and had to go off it anyway. Back to topamax and trilieptal I am. Yuck. Hang in there. I have Complex Partial too. I hope you get a better med.

Angie

KaitiePrincess · 02-17-2004, 07:35 PM

Angie - did you notice a major personality change on Lamictal? I mean, I'm moody as all get out! I'm grumpy and snappy and people ARE noticing...

Love Kaitie

xcavator · 02-17-2004, 09:19 PM

Have you tried Zonegram? I am using 300 mg with Keppra and only some CP's. I am 46 and started having Grand Mals at 40 for no reason. Damn frustrating. So vent baby vent!