Wish me luck - Epilepsy Message Board

mollyd1234 · 02-16-2004, 07:45 AM

I don't post here very often (I do read all the posts though which have helped tremendously) but I just need a little support. After 5 years of being seizure free I took my last 200 mg of tegretol 2 nights ago. I've been weaning SLOWLY since last April! I also suffer from panic attacks so every little head twinge I get I think I'm going into this massive seizure. I've been on 200 mg of Tegretol (after being on 800 mg) since August and my doctor said anytime I wanted to stop taking that nightly 200 mg dose I could, it was up to me when I was ready. I forced myself to be ready. I didn't refill my prescription. Anyway, I'm terrified but how am I ever going to know if I need it or not if I don't try? So, it's been two days, so far so good. Please send any and all good thoughts my way
Molly

KaitiePrincess · 02-16-2004, 10:01 AM

Hey Molly, I'm definately thinking about you throughout this! You'll do great, just try not to get really stressed out, or go without too much sleep...And just think about how awesome it's going to be to not have to worry about that last pill at night! You'll be free from this worry!

Wow! I haven't even managed to find something that works even slightly - and I can't even IMAGINE five years...you are an inspiration that there really is hope!

Love And All the Best,
Kaitie

Lisa T · 02-16-2004, 05:36 PM

All my positive thoughts are going your way!! Please keep us updated as to how you are doing, although we KNOW you are gonna do fine.

My thoughts are with you!
Lisa

mollyd1234 · 02-18-2004, 06:30 AM

Thank you both for your kind words and for thinking of me. I'm having a rough time with this though. Ever since I've been off the Tegretol (a whole 4 days) I'm very anxious and two nights ago, all I did was cry for no reason. I'm terrified as to what (if anything) is going to happen to me. It's not a good way to live your life. I'm a college student and I left class early yesterday because I felt dizzy and panicky. Anyway, I know that I need to be strong and give it a chance but I don't know if I can. I see my doctor (he's a neuropsychiatrist) today. I know that Tegretol is a mood stabilizer so maybe that's why I'm so weepy. Anyway, thanks again.
Molly