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Old 02-21-2004, 03:59 PM   #1
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Question Looking for answers about alcohol

I had my first and only seizure in my sleep in December (2003). I am 34 years old. Needless to say, this was quite a surprise. I had an EEG and an MRI done. The EEG was done mere hours after the seizure, so of course it came back abnormal. At first look, the MRI showed I had a small tumor on the base of my brain. Two weeks later when I went back to the neuro I had a normal EEG and at a second look they told me the spot they thought was a tumor on my MRI was a gliche or a piece of dust. I get to go through all of the tests again in April. In the meantime, I am on 300 mg of Dilantin.

I have read and read and read about this medicine. I know you shouldn't drink any alcohol. However, I must be honest. I truly miss a good buzz. It's not like I drank a lot before this happened anyway - having 3 young children. But reading the medicine insert says people who are acute alcohol drinkers will have an increase in their serum level and people who are chronic alcoholics will have a decrease in their serum level.

While I know most of you have played by the rules, I know there has to be a few out there who have actually tested them. From what I read 2 drinks a day is fine, but 3 and more is not. What I want to know is what happens after drink number 3? How does a person know if they drank one drink too many? What signs or symptoms occur?

If anyone could provide some insight on this, I would truly appreciate it. I haven't drank anything in 3 months, but I don't feel like I should be punished for a lifetime either.

 
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Old 02-22-2004, 09:21 AM   #2
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Re: Looking for answers about alcohol

Goodmorning Hootowlmom,
I have recently begun to have seizures in my sleep as well, beginnning last November, and they are quite artful in context. I have a VNS complicated by a temporal lesion that can be picked up by an EEG. I have complex partial and intensen focal motors that sometimes generalize. I take 600mgs/day of Topamax. (P.S.) The implant is turned off and scheduled to be removed (the lead and all!).

I am 26yrs old and in a Masters program dealing with Criminal Justice and Law. "The Program" is very competitive so, as you can imagine, a glass of wine or 2 fingers of scotch loosens the collar every now and then. I have informed my neuro I have no intentions of stopping my benefit of beverage. I have seizures on the wagon and off. There is no difference. Epilepsy does what it wants to.

The danger arises not when you are drunk but rather afterwards when the brain begins to process or "detox" and loses alcohol levels. This time frame is when most people, epileptic or not, have seizures related to alcohol.

I have never, in 11.5 yrs of Epilepsy, had a seizure related to alcohol consumption. I do not drink alone (I like to talk (can't you tell!)) I do not drink to excess, due to my meds I am a very cheap date. I drink with food & it helps that I like to eat. I spread the time period in which I drink out over a large time frame and include water and lots of it right before I go to bed. At bed time I drink O.J. and take Aleve plus I don't stay up late or past my normal bedtime drinking. It is important to give yourself at least 3 hours between drinking and sleep time. This allows oxidization to occur and you a chance to hydrate very well before you sleep (less chance for nightime spookies!). If this is a buzz you are chasing you will have already had it. You will be able to go to sleep peacefully without fear of waking up disoriented or worse.

After drink three you become very drunk depending on the meds you take. (Ex: while I was on Depakote I was able to consume very large quantities of alcohol partially because my body weight was higher (190 lbs) and partially because my liver was huge and conditioned to oxidize at a faster rate. I could drink anybody under the table. Now is not the case. Topamax has lowered by body weight to 125-130lbs (I am 5'9") and my liver and kidneys function at a slower rate or rather I should say a more normal rate. I am drunk within an hour and a half on 3 drinks at my current weight. So, I drink one drink to feel nice with a meal and sometimes I can't even finish it. 4 yrs ago I would have laughed. I could drink a fifth of scotch by myself and not flinch.

The symptoms are typically drunkenness of the individual. If you are going to have a seizure they will be your symptoms compounded by your characteristics of drunken behavior. I do not think the one drink can put you over the age. You must remember that a beer, glass of wine, and one shot have the same alcohol consistency. If you are drunken the buzz intensifies.

Sweetie, don't punish your self for wanting to exceed moderation for it is the hardest path in life to reach and American society doesn't foster such thoughts or actions easily nor do the compulsions of man's Id or desires. If you would like to talk further about this topic the gate is always open. I hope I have helped in some way. This is something that I battled and rebelled against for a very long time.

Slainte.
The Gardener

Quote:
Originally Posted by hootowlmom
I had my first and only seizure in my sleep in December (2003). I am 34 years old. Needless to say, this was quite a surprise. I had an EEG and an MRI done. The EEG was done mere hours after the seizure, so of course it came back abnormal. At first look, the MRI showed I had a small tumor on the base of my brain. Two weeks later when I went back to the neuro I had a normal EEG and at a second look they told me the spot they thought was a tumor on my MRI was a gliche or a piece of dust. I get to go through all of the tests again in April. In the meantime, I am on 300 mg of Dilantin.

I have read and read and read about this medicine. I know you shouldn't drink any alcohol. However, I must be honest. I truly miss a good buzz. It's not like I drank a lot before this happened anyway - having 3 young children. But reading the medicine insert says people who are acute alcohol drinkers will have an increase in their serum level and people who are chronic alcoholics will have a decrease in their serum level.

While I know most of you have played by the rules, I know there has to be a few out there who have actually tested them. From what I read 2 drinks a day is fine, but 3 and more is not. What I want to know is what happens after drink number 3? How does a person know if they drank one drink too many? What signs or symptoms occur?

If anyone could provide some insight on this, I would truly appreciate it. I haven't drank anything in 3 months, but I don't feel like I should be punished for a lifetime either.

 
Old 02-22-2004, 03:58 PM   #3
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Re: Looking for answers about alcohol

Thank you Gardener for taking the time to truly "fill me in." That is the kind of information I am looking for. I need to know specifics. Knowing that I need have a final drink 3 hours before bed and drinking lots of water is a good thing to know.

It seems like this is such a hush, hush topic. While I am sure many have views about it, few speak up. While I am sure many are fine with never having a drink again, several are kind of ticked off about it.

I am glad you took the opportunity to respond back me. I truly appreciate it. I feel a lot better now. I'm living in frustration because they have no clue why I had the seizure and if I even have epilepsy (or a brain tumor for that matter.) Right now I am on the waiting train. My band-aid is a dose of Dilantin. I can only hope some conclusions can be made in April.

In the meantime, I am searching for answers from those (you all) who have been part of the experience much longer than I. Thanks for your insight and wisdom.

 
Old 02-23-2004, 09:38 AM   #4
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Re: Looking for answers about alcohol

Goodmorning Hootowlmom,
It is not a problem. My family introduced me to alcohol when I was a child. It is a part of our culture as a family. We have beverage with every meal beginning with dinner at mid-day.

The examply I was going to give you today was the person who is trying so desperately to diet and lose weight. When they go for weeks at a time on very strict regime and they lose hope, often times they cave in and eat the 7 layer cake. Instead, they may have better success in have the thin mint after dinner every other day, which is what they truly want, and will suffer less of a set back in the long run, not to mention less health consequences.

This is only a "hush hush" topic because people make it one. Just like people called epilepsy "spells" or "episodes" and "fits of the devils" at one time, alcohol has a place of moderation for some people. Everyone is entitled to their own feelings for the very reason that those feelings are their own. May every person find their own peace.

I find my peace in moderation. If I step over the line my brain lets me know it. I like talking to you. Anything else going on?

It's a yucky day outside. The plants need help today.
Carry on.
The Gardener.

Quote:
Originally Posted by hootowlmom
Thank you Gardener for taking the time to truly "fill me in." That is the kind of information I am looking for. I need to know specifics. Knowing that I need have a final drink 3 hours before bed and drinking lots of water is a good thing to know.

It seems like this is such a hush, hush topic. While I am sure many have views about it, few speak up. While I am sure many are fine with never having a drink again, several are kind of ticked off about it.

I am glad you took the opportunity to respond back me. I truly appreciate it. I feel a lot better now. I'm living in frustration because they have no clue why I had the seizure and if I even have epilepsy (or a brain tumor for that matter.) Right now I am on the waiting train. My band-aid is a dose of Dilantin. I can only hope some conclusions can be made in April.

In the meantime, I am searching for answers from those (you all) who have been part of the experience much longer than I. Thanks for your insight and wisdom.

 
Old 02-26-2004, 07:20 AM   #5
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Re: Looking for answers about alcohol

Gardener,
While you have been experiencing yucky weather, ours is actually good for a change. I found it ironic you mentioned dieting. I have been a part of a challenge to get into better shape. While I don't eat seven-layer cakes, I must say the mints taste awesome!!! Actually, I think being on the meds has helped in the fitness department. Weird, I know.

It absolutely amazes me that NO ONE else has any opinions on this topic. I guess that is probably typical. Topics you would think would generate conversation just don't and topics you wouldn't think anyone would care about end up with a lot of response.

Oh well. Guess I will have to look to other sources to find my answers. I think the major difference between you and I is that you have had the seizures almost half of your life. I have had one in a 34-year time period. You get kind of spoiled (I guess is the word I am looking for) being healthy for that long. When you get slammed with it, it is a total shock.

Maybe I will get lucky and I won't have another episode for 34 more years!!! (I can only hope!!) Thanks again for your advice. I appreciate it.

 
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