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Old 03-25-2004, 09:47 AM   #1
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Question Phoebe: Question re: burr hole/subdural strips

I just spoke with the clinic nurse specialist (left hand of our Epi) and she said Katie could be out of school for up to 6 weeks (per neurosurgeon) after the subdural strip placement. They originally told us up to 3 weeks. I have it set with the school for the 3 weeks.

I'd like to know how long you may have missed work or how long you were "out of it" that you weren't able to do any "brain thinking" (school work like) activity? I am JUST a slight bit panicked right now! If she has to be out up to 6 weeks that puts her one week before the term is done (one week of review) and 2 weeks before final exams. Our school is small/private and doesn't offer summer school. Ontop of that, if Katie's results come back that she is able to have the resection, they will do that in June (most likely the second or third week). So summer school isn't an option if she is to start school ontime in the fall, post surgery.

She has very good grades going and we can't mess up this freshman year. She is 2/3 of the way complete. Otherwise, why did we bother even going to school this year? UHG!

I'd appreciate a reply as soon as you are able, or if anyone else has experienced this type of surgery...

Thanks,
Vicki
mom of Katie, the most courageous young lady I know

p.s. Katie is a healthy young lady, exercises, takes vitamins, is not a complainer and is very easy to get along with. Hopefully this will aid in a quicker recovery...

 
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Old 03-25-2004, 09:42 PM   #2
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Re: Phoebe: Question re: burr hole/subdural strips

I really wish I could answer this more completely, but I didn't have the subdural strips. I only had the VEEGs and then the surgery. they did an electrocorticogram during surgery. I wonder though if 6 weeks is the standard used by the Epi. If that is the case, it may really depend on how she does from day to day. There are many factors to consider. She doesn't need to be stressed, but if the Epi knows that being out of school would be more stressful for her that being at home, he could allow her back to school sooner. I really think that how she is allowed to progress back to her usual routine depends on how she is at the time. Has Katie expressed these same concerns? I would also consider the fact that this is one short period in her lifetime, so what she may accomplish on the health front of things and how much going through this could benefit her for a lifetime may outweigh any losses in school days. After my surgery, I was not working so i didn't have to rush back to my job or school. I do know that for me, I did what I could to make sure that the process I had gone through received my full attention and respect since it was such a positive life changing event for me. I wish I could tell you more, but I didn't have to have that procedure. Another thing to consider is the possibility of developing an infection after the strip placement. Being around many other people in school would make a person more susceptible to developing an infection if the area has not adequately healed. I now you mentioned how excited Katie is about having the surgery. Since the strip placement is one aspect of it and one that brings her a step closer, how does she feel about the school issue? Phoebe

 
Old 03-27-2004, 12:05 PM   #3
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Re: Phoebe: Question re: burr hole/subdural strips

Hi,

Katie doesn't want to miss too much school because she understands what could happen to this school year's grades. She understands the importance of this surgery, as do we, but she doesn't want to have to redo the school year either. We could have had the surgery sooner and skipped this year all together, we purposefully set up this timing. I believe Katie will be more stressed at home than at school, knowing it is compromising the work she has already put in. (2 terms worth of final exams=14 exams)

We are hoping that the 6 week mark is the "outer" range of recovery time. Why would the Epi tell us up to 3 weeks back in December, for this surgery? She also works with the neurosurgeon, Katie will have, almost daily. I would assume she would be careful when quoting time frames, knowing how this neurosurgeon works. It wasn't a rushed meeting either. It was a non-clinic day, so we were her only appt. that morning. We were with her for an hour, along with the same clinic nurse specialist, who I spoke with regarding the above post. This particular nurse is very detail oriented. I call her a "lab coat" nurse. She should have probably been an MD herself, she is very bright. She's been in neurology since we came on board 15 years ago.

I guess we will have to take it day by day and see what happens. We have to trust that because Katie is a healthy young lady, it will be a plus in her recovery. The comment from the nurse threw a monkey wrench in all that I had worked out with the school. We are on spring break now and the headmaster is going to Italy with Andrew's group...so that leaves no one to discuss this with until they return. (the afternoon before the new term starts!)

The risk of infection is what they are concerned about. Another positive is that our school is small. Only 27 kids in the highschool and 150 in the entire school K-12. So, I will try to stay positive with this issue. It will work out whatever way it is meant to. If we need to hire a personal tutor until the end of the year, it will be all part of the plan. I guess it's only money and will settle itself out in the end, NOT that we are that well off that we can throw another big chunk of cash out the door, but it is what it is.

Go with the flow...

Thanks for your response, I appreciate it!

Vicki
mom of Katie, the most courageous young lady I know

 
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