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Old 06-24-2004, 08:14 PM   #1
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Lisa T HB User
Question I'm worried and need those comforting words I know you all will give me..

Hey everyone....I have to go in for an outpatient surgery on the 30th and I'm concerned. I'm having laparoscopy done, my doc thinks I might have endometriosis... anyways I haven't been able to sleep, therefore my seizures (that were finely becoming under control!!!! ) are now out of control!!!! I'm stressed, exhausted.....

My concern is going under anethesia... and then someone cutting on me while I could go into a seizure..... everyone who is going to be in the room talked to me, reassured me they would know what to do if I were to go into one, but I'm still really bothered by this! I really need this surgery, I WANT this procedure done, so I don't understand why its bothering me so bad!!??

Any ideas how I can make myself feel better???

Lisa T
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Old 06-24-2004, 08:49 PM   #2
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Re: I'm worried and need those comforting words I know you all will give me..

Hi Lisa!

First thing we were told with the anesthesia is that it acts as a type of "anticonvulsant" during surgery. I would ask what type of anesthesia will be used and if it will also act like that. Katie had a seizure Sunday night at 9:45 pm, just before going to bed, 8 hours before surgery. I said, "GREAT!" I was feeling more nervous about that than the surgery. But I remembered what they had told me about the anesthesia.

Katie was fine and they operated on the brain, I'm sure you'll do well with your procedure. None the less, I "understand" how you might feel. Have you ever been put under general an. before? I haven't. Doctors are very good at what they do now, especially in this area. They monitor things constantly.

Try some soothing music (if your radio/stereo has a timer), read a relaxing book before bed, or talk to your doctor about using Melatonin. Katie uses Melatonin before bed. She has a very active mind and thinks things to pieces sometimes. The Epi said to use it as she/we prepared for surgery. She has used it since October 2003. There are days where she doesn't take it also. But does use it more often than not. It's not suppose to be addictive either.
Otherwise there is Tylenol PM which has the same type of ingredient as in Benadryl. Takes the edge off and makes you sleepy. My grandma (91) has used this for "sleepless" nights and has been fine with it. She lives on her own yet and had a heart attack at the age of 89 and takes many heart meds and the cardiologist said the Tylenol PM was ok. Check with your doc first though, AEDs could be different. But Katie has used Benedryl for allergies before.

Hang in there...if you want and know that this should be done, have faith in your doctors, then try to think as positively as possible...deep breathing and nice relaxing music...

I'll be praying for a quick and safe procedure...

Vicki
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Old 06-24-2004, 09:03 PM   #3
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Wink !

You just got me over it Vicki!!! There is no way Katie and I should be compared. She went thru MAJOR surgury, mine is out patient.....


The reason I can't sleep is from the pain, they have given me different types of pain medications but nothing has helped. The most sleep I get a night is about three hours and never in a row! My seizures are feeding off this!!!!!

Thanks for making me look at the bigger picture, even though I know that wasn't your intention!!!!!!!! Give Katie a big hug for me!!

Lisa
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Old 06-24-2004, 09:37 PM   #4
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Re: I'm worried and need those comforting words I know you all will give me..

Hey Lisa,

I know your off now, but I didn't know the lack of sleep was from pain...sorry to hear that. I'm sure that is where your seizures are coming from, the lack of good solid sleep. You need to have the prcedure done if you are in that much pain. A client of ours has endo. and has had it for many years. I know she has her good days and her bad days. She is in her mid 50's and is a bubbly and wonderful person to be around!

Did you know the endo. national offices are here in the Milwaukee area? I think it's in Brown Deer. About 15 minutes from here. I use to drive past the building all the time. I know that was a bit of info you needed right?

Thanks for your continued support and we will lift you up as high as we can!

To restful nights...and I will pass the hug on to Katie, she's a hugger!

Vicki
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Last edited by tkdmom96; 06-24-2004 at 09:41 PM.

 
Old 06-25-2004, 06:17 AM   #5
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gagcas HB User
Re: I'm worried and need those comforting words I know you all will give me..

hi lisa,

first off let me tell you im sorry you have to go thru the pain of endo. my sister had it and had the same surgery you are having, and as well my sister in law. she has it probably as bad as your describing. they both decided to have it done becasue the doctors pretty much told them if they didnt they would have no chance to have children and if they wanted to to have them now. my sister has a 4 year old and sis in law 1 year old. i know they are in constant pain.

second of all, i can understant your worry. even though i dont have the siezures i agree with vicki. you need your sleep. and as far as the tylonol PM. those are my happy little pills before bed. lol. i cant sleep either. i dont know if my system is just on the mother mode or not. i have always been like that since i had kids, and they seem to work for me. but as far as the pain, i dont know if it will work with your pain or not, but it sure knocks me out. lol. i still get up but not as much.

i would just express you conserns to the doctor and let them do thier job. im sure if it would be harmful to your siezure health they wouldnt be doing the surgery. just keep your head up and just keep thinking that when it is done and over with you should be able to sleep, because it the endo will be taken care of. did they say if they did find it they would take it out while they were in there? good luck and let us know how it goes. take care.
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