Lots of new names around, Roll Call anyone?? - Epilepsy Message Board

Lisa T · 07-08-2004, 09:29 PM

There seems to be alot of new names on the board lately, so I thought maybe it was time for an old time roll call... how about it?

I'm Lisa and I have had E for almost three years now. I'm currently taking Topamax 75mg 2x daily (hoping to get it increased next week

) I also take Magnesium Oxide to help with the side effects of Topamax. The longest I have been seizure free in this three years is 34 days, but no complaining that is way

better than every two days like in the beginning!! I have GMs.

Did I forget anything?

I'm 31 and married with two wonderful kids and we have three dogs and at last count 14 cats( but 3 are ready to drop kittens anyday

). Gotta love living on a farm, its everyones favorite spot to drop animals. And one horse who is 33 (yes its no typo 33) years old! Did anyone need a cat??

Have a good night all

Lisa T

aprilr607 · 07-08-2004, 11:35 PM

hello,

we live on a ranch too! we board horses for people and have about the same number of cats. that is too funny! My son just started having them a month or so ago, mainly in his sleep. This is all new to us so I am still learning we go in for our 4th eeg tomorrow morning . How often do you have the sz, they seem to be in my sons sleep or right before he wakes up in the mornings, they have him on trileptol 600mg 2 times a day. well i just wanted to say hi, it sounds like we may have alot in common. bye for now.

dalesgirl · 07-09-2004, 12:47 AM

I'm Susan. My husband had his first 'known' seizure March 1st of this year and is on Dilantin now. The seizure was due to a diving accident in 2002. We're playing with the meds to make sure they are the right doses and also looking into other things to see if he's still having them at night or maybe another problem.

We live in Indiana and have 3 kids (two boys and one girl).

heavenangel24 · 07-09-2004, 08:23 AM

Hi Im Tracy. I take 100mg 2x a day of Topomax and 400mg 2x of Tegretol XR a day. I started having seizures in 95'. Im 25 years old.
The reason I started having seizures doctors dont know.
I take a handfull of viatmins everyday.
Cause with Topomax you have to take multivitamins cause it robs your body of nutrients. So you have to replace your body of the nutrients.
I started losing hair. So I am taking Biotin.
I am using Nioxin products.

MandiX · 07-09-2004, 08:54 AM

I'm Mandi, I'm a 21 year old college student. I was diagnosed with Temporal Lobe E a month after my 16th birthday but was rediganosed with Juvenile Myoclonic E three years ago. I'm on 200mg x2 of Carbatrol and 75mg x1 of Lamictal. As of the 16th I'll start the switch to get me off the Carbatrol. I haven't had a grand mal seizure in 5 years and any other type in a year. I do get myoclonic jerks upon waking which is what we're trying to fix with the Lamictal.