Topamax causing rash - should I be concerned? - Epilepsy Message Board

spongebob_mom · 11-13-2004, 06:39 AM

I have only been taking 25 mg for a week (I just started 50 mg today). I noticed this morning that I have a very small itchy rash on one arm (about 4 small spots). It's not very itchy, but of course I read that I should report all rashes immediately to my doctor because it could be very serious. I am really bummed because I am tolerating this drug very well so far (no s/e) and I really want it to work - I suffer from seizures AND migraines. Is it possible that this rash will go away with time if I titrate slowly? Should I call my Dr. on a Saturday? Is it that important for 4 small spots on my arm?

Thanks for your help,
Jane

kayakmom · 11-13-2004, 07:09 AM

I responded in the other forum, but in case you did not see it...

Please call the doctor and describe it to him/her. It needs to be chaecked any time you have a rash,, especially on a new med! Hope it goes away, though

spongebob_mom · 11-13-2004, 08:32 AM

Hi Kayamom,

I responded to your other post on the other board. I post on a bunch on epilepsy boards so I can increase my chance of getting responses! I am so new to epilepsy and I need lots of information!

All this drug stuff has really got me worried.

Thanks for your thoughts.

Jane

RadioKen · 11-15-2004, 04:52 AM

I had a little bit of rash from it in the beginning. It went away, but it's probably a good idea to tell your doc just in case. Probably just your body getting use to a new drug. Are you drinking plenty of water with it?

Ken

spongebob_mom · 11-15-2004, 01:10 PM

Hi Ken,

Oh yes, TONS of water. My regular neuro just called me today to follow up from when I called and spoke with the on-call neuro over the weekend. I told her that I have read lots of stories online about people experiencing small temporary rashes with Topamax and she seemed very surprised. She said that must be rare because she's never heard of it. Well, I'm here to tell her that it's true! Anyhow, I have had a couple very small, minor rashes that have cropped up for a couple hours and gone away. They are hardly there, really.

The latest annoyance I've been experiencing is kind of a bad taste in my mouth along with a dry mouth. I drink so much water - I should just get a catheter and hook a bag to me! LOL!

Jane