Re: New here
I am sorry to hear about your situation but from what side effects you mentioned it is possibile that the majority of them could be linked to Epilepsy. I have had E my whole life and have found there is much more to it than just having the odd siezure. Balance and co-ordination have always been a major prob for me. I cant walk a straight line with out wobbling off the mark, needless to say I am extensivly clumsy. Often I find myself feeling very weak in general and nearly all the time my speech comes out back to front or jumbled into some unregognizable sound, my thought process is very slow sometimes and it takes me about 3 or 4 times to register things. Recalling the information can sometimes take longer but I know its there, my short term memory is hopeless but my long term one is brilliant, so in short if you told me something today chances are I would remember it better in about 5 years time. The best discription is like a filing cabinet that has been upended and you ask me to find 1 page out of thousands. That is my mind. So as you can imagine forgetfulness is also at the top of the list. In answer to most of your questions yes alot of what you said can be linked to Epilepsy. The other thing is too after you have a siezure weather it be a big one or a minor one you normally get a headache and they are normally pretty intense. I am normally very tired and can sleep any where between 2hours for a minor and up to 2 days for a major siezure. Has you doc mentioned what sort of Epilepsy you may have? I have not been on Topamax so I can't say what it is like but if they are able to manage the Epilepsy better you might be pleasantly surprised that your MS is not as advanced as you might think. I do know from what my specialist said that there is a link between the 2 conditions and it is not unheard of for people to have both. If you have anymore questions I will be happy to help and I am sure most people here would like to help as well.
I don't suffer from Epilepsy, I just live with it
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