Big Seizure Today Grand Mal Or? - Epilepsy Message Board

buliem · 11-22-2004, 11:18 AM

I'm really hating that I have to post this but my son Patrick had had pretty big seizure this morning. He was in the bathroom and I heard a thud. I called his name and there was no answer. I ran in there and he was on the floor seizing. His eyes were open. I called his name and he said yes, yes but I could tell he was pretty out of it. The jerks weren't super violent and he came out of it pretty quickly. He was a little confused after and he said he had a headache. Up until this point we've only seen Absence Seizures (petit mal) I'm not sure if this was just a bigger one of those, a grand mal or a myoclonic seizure. The neuro wants to see us at 1 pm. I'm pretty upset but I'm keeping it together on the outside anyway. Patrick will be 10 tomorrow. Man this is hard.

healinggarden · 11-23-2004, 03:53 PM

Quote:

Originally Posted by buliem

I'm really hating that I have to post this but my son Patrick had had pretty big seizure this morning. He was in the bathroom and I heard a thud. I called his name and there was no answer. I ran in there and he was on the floor seizing. His eyes were open. I called his name and he said yes, yes but I could tell he was pretty out of it. The jerks weren't super violent and he came out of it pretty quickly. He was a little confused after and he said he had a headache. Up until this point we've only seen Absence Seizures (petit mal) I'm not sure if this was just a bigger one of those, a grand mal or a myoclonic seizure. The neuro wants to see us at 1 pm. I'm pretty upset but I'm keeping it together on the outside anyway. Patrick will be 10 tomorrow. Man this is hard.

Sorry to hear that

I hope you get a good diagnosis!

I first started with grand mal seizures as a child, then I had absence seizures, and now I have complex partial seizures. Doctors think it's weird, but I don't seize violently like I did when I was a kid. Is he under large amounts of stress? I always have worse seizures when I'm stressed. I'm hoping you get good news! Keep us updated!

Kat

buliem · 11-23-2004, 05:27 PM

Quote:

Originally Posted by healinggarden

Sorry to hear that

I hope you get a good diagnosis!

I first started with grand mal seizures as a child, then I had absence seizures, and now I have complex partial seizures. Doctors think it's weird, but I don't seize violently like I did when I was a kid. Is he under large amounts of stress? I always have worse seizures when I'm stressed. I'm hoping you get good news! Keep us updated!

Kat

Well I thought maybe this was a atonic clonic. The doctor said yes but maybe he just wasn't listening that closely to me and thought I said tonic clonic. Guess I should have just asked if it was a grand mal or not. He did jerk a little. He upped his dose of depakote to 1000 mgs a day. We are going for an EKG tomorrow morning. He is worried about his heart. He wants to check him for syncope. I pray he doesn't have a heart condition. My friends husband has a rare syndrome that causes his heart to beat irregularly. He had a very similiar seizure a few years back. He had a couple surgeries and now has a pace maker. UGH.

He wasn't stressed but we did have a birthday party for him the day before. We played laser tag. He's not photosensitive so I thought it would be okay. You only turn ten once. Maybe all the excitement was too much for him.

Thanks for the reply.

Keeping fingers crossed and praying of course.

kayakmom · 11-25-2004, 09:13 AM

I hope the med increase helps keeps any more of these away....

I would lean more to a tonic clonic(same as grand mal, new term)....the jerking can be fairly mild for some....

It could also be a complex partial that secondarily generalized since he could talk to you at first.

Headache is pretty common after a seizure.

An ATONIC would be a very fast drop and then the usually recover. There can be atonics that go into a convulsion, though....sorry they neuro was not too specific..

I would not think the party the night before had too much to do with it....the photosensitivity is usually a more immediate reaction and not the next day. Unless he stayed up really late with it all, it is probably just a fluke.

Hang in there!

buliem · 11-26-2004, 12:22 AM

Quote:

Originally Posted by kayakmom

I hope the med increase helps keeps any more of these away....

I would lean more to a tonic clonic(same as grand mal, new term)....the jerking can be fairly mild for some....

It could also be a complex partial that secondarily generalized since he could talk to you at first.

Headache is pretty common after a seizure.

An ATONIC would be a very fast drop and then the usually recover. There can be atonics that go into a convulsion, though....sorry they neuro was not too specific..

I would not think the party the night before had too much to do with it....the photosensitivity is usually a more immediate reaction and not the next day. Unless he stayed up really late with it all, it is probably just a fluke.

Hang in there!

Thanks. I was kind of blaming myself. He did go to sleep at his normal time after the party. He was up sort of late the night before but got to sleep in. I'll feel a lot better when I get the results of the EKG. Funny now I find myself wishing it's only Epilepsy. Never thought I'd say that.