Seizure Meds. and Proper Protocol
What a great board. I'm a 38 year old male who up until 5 years ago, never had a seizure in my life. Then for no reason in 1998, I had my first one. In 2001 I had a had a series of cluster seizures (one right after the other) - that was not pleasant.
Since 2001, I have been doing just fine and my epilepsy was controlled with Depakote. Since I didn't have any symptoms I asked my neuro if I could try getting off the medicine. She agreed we could try to taper off the meds. Well, I tapered off without any problems until the day before yesterday (My 6th day without any depakote). I was sitting in a restaurant with my wife and BAM - it all began to happen again: Brief aura, loss of conciousness, waking up not knowing where I am, bitten tongue, massive headache, body feels like it got hit by a truck etc.
I'm really depressed about my epilepsy because it is keeping from pursuing my dreams of flying airplanes. I'm also upset cuz I had my hopes up that I could possibly get off the meds. I guess that's just not in my plan....
For those of you who are very experienced with seizures I was told to call 9-1-1 whenever they happen because it means something is not right to cause them to break through. My seizures are always the kind where I go unconcious and jerk for several minutes. This last time, the ambulance took me to the hospital and I had another seizure in the E.R. They ended up admitting me to the hospital for an additional day. Is calling 911 the proper thing to do all the time?
Also, do you know of a medicine that's as good as or better than Depakote? It works for me, but it is kind of expensive and I don't have the best RX coverage.
Thanks in advance for your help,