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Old 12-29-2004, 05:44 PM   #1
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Kramer_DU HB User
Thumbs down Tegretol Sucks!!!!!!

Ok, so about 3 weeks ago my tegretol stoped working again. I'll be fine for a month with my partial complex seizures, then all of a sudden I will get them for a day or 2, then they will go away. Well about a week befor X-mass my doc put me on Tegretol XR. It's a time release pill. 1 pill is supposed to last about 12 hours. I take that twice a day. Boy let me tell you taking 1 pill twicw a day is a whole lot better than taking 1 5 times a day. Well, I've been on this new med for about a week. Was doing fine....BUT...I had more spells over the weekend. Had about 4 of them. 2 were within an hour of each other. I don't know what the deal is. I guess I could be getting a tollerance to the meds. I've been on tegretol for about 11 years now. I go to the NEURO on the 4th. First time in about 4 years. hopefully he can give me something better, cause it sure does suck having these damn things at work. I drool all over the place and I can't talk at all. Everyone things I'm choking or going to puke. I can't tell them what is going on cause I can't talk. Just gota wait till the spell is done. Then I just hang my head and tell them what happend. UGH!!!! I need a new med. Anyone have any suggestions for partial complex seizures?

Last edited by Kramer_DU; 12-29-2004 at 09:14 PM.

 
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Old 12-30-2004, 10:36 AM   #2
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DianaF HB User
Re: Tegretol Sucks!!!!!!

I am on Carbitrol - I understand it is also a long-lasting Tegretol.

I understand your frustration. I have simple and complex-partial seizures also. I have been on almost every medication available to us. I still have seizures every 8-12 weeks.

I was just okay'd for surgery. I am so happy!!! I want to be free of these dang things and drive again.

 
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