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Old 01-18-2005, 06:38 PM   #1
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Angry Stres = Partial Complex Seizures

Well, I don't care what the doctor says, today I've come to the conclusion that stress is causing my seizures. The neuro increased my meds from 800mg tegretol XR to 1200mg about 2 weeks ago. I was doing fine for about a week, then all of a sudden **** hit the fan!! I'm looking into my first new car. You know how that is, exciting, stressfull, all kinds of emotions at the same time. Every time I have talked to someone about getting the car I've had a seizure, and that has been like 8 times today. No deja vu like any other time, just a full force partial complex which lasts longer than before too by like 5-10 seconds. Neuro says that we won't change meds until i reach max dose or stop having seizures. What the hell, we all ready know the meds aren't working like they should, so why not add a med or change it This is starting to **** me off. I'm fine at work, but on my days off I'm getting these damn things. Had 2 EEG's within about 3 months and they both came out neg. Had an MRI a few days ago. Stop giving me tests and switch my meds all ready. Every time I bring up stress as a factor they just look at me like I don't know what I'm talking about. Well doesn't this just prove what I've been thinking for the past year????
Sorry about the rant, had to do it. These things are getting on my nerves, and i just needed to let it out.

Last edited by Kramer_DU; 01-18-2005 at 06:39 PM.

 
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Old 01-18-2005, 08:44 PM   #2
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Re: Stres = Partial Complex Seizures

Ditto...

Our Epi told us that the more stressed Katie (16 1/2 yrs.) is the more simple and complex partials she would have. As a preventative measure she had therapy the months leading up to her surgery, to help her work through anything.

Stress is a big factor...we definately saw it when she had her final exams every term. A greater increase in the simple partials (and length of them), they doubled or tripled in number. There were days where she had 10-15 in one day, but no complex partials. Then 3 days in a row have complex partials. She would get stressed every time she had a SP thinking it would go to a full CP. We increased the B vitamins and she took Melatonin to get a good nights sleep.

Good luck with the car thing...they say car buying is a major stress. I just bought a new car in July. It helped that I knew exactly what I wanted, but the price negotiation was the BUGGER! I still walked out spending $1500 more than I intended. UHG. But I love my new Escape! Vroooooooooooom!

As far as your meds, voice your opinion. It's your body and they are "hired" to help you. You DO have input. Put your foot down if you need to.

p.s. How are you able to drive with uncontrolled CP seizures???

Vicki
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Proud mom of Katie, the strongest and bravest person I have ever known! GBTG.

 
Old 01-19-2005, 09:44 AM   #3
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debvid HB User
Re: Stres = Partial Complex Seizures

Stress definitely effects Bonnie's seizures, she has more! Strss at school with test and such and stress in relationships cause more. I've seen her have them in the middle of an argument with me, really makes me feel bad.

Vicky, we just started the melatonin. It is amazing, it really helps her! The first night she took it, she had the best sleep ever. She can fight it, but it really helps if she just lays down. I hope it keeps working.

Debbie

 
Old 01-19-2005, 10:32 PM   #4
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Re: Stres = Partial Complex Seizures

what is this about melatonin? My doctor has never mentioned this.

Diana

 
Old 01-20-2005, 07:28 AM   #5
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tkdmom96 HB User
Re: Stres = Partial Complex Seizures

Hi Diana,

Melatonin is a hormone that is released at night telling us when it is "time to go to bed". It sets our sleep cycles. It comes from the Pineal gland somewhere in the middle of the brain. It's about the size of a pea. It is secreted to insure you get a good nights sleep so your body can "heal" (immune system) and grow at night.

We were told by our Epi that because of the Lamictal possibly causing sleep problems (as do other AEDs) that we should consider having Katie take melatonin before going to be to help "aid" her in going to sleep. It is suppose to help get a deeper sleep without waking up funky or groggy. Katie started out taking 1.5mg for the first week and then went up to the full 3mg.

Also, with the year of surgical testing and the 2 surgeries she had, it was to help her get a good nights sleep to ward off extra anxiety and stress. And it REALLY helped!!!

If you try it, start on the lower dose then work up to the higher dose, if you feel you need more. MAKE SURE YOU TAKE IT 20-30 MINUTES BEFORE YOU GO TO BED, or the affect will diminish. If you take it at 9pm but don't go to bed until 11, it will not help you. You will have gone over the time limit of it working properly. AND don't take more!!! Not good for your body! Talk to your neuro before you start it though, to make sure they know you are taking it.

Katie took it for over a year and had no problems with the 3mg tablets. ALSO>>>make sure you take a synthetic or pharmacy grade product. DON'T take a natural or animal product. They can have viruses and junk in them that can cause auto-immune problems, since the hormone comes from a gland in the brain. Yuck!

You can also research Melatonin online.

Vicki
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Proud mom of Katie, the strongest and bravest person I have ever known! GBTG.

Last edited by tkdmom96; 01-20-2005 at 07:28 AM.

 
Old 01-23-2005, 10:08 PM   #6
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DianaF HB User
Re: Stres = Partial Complex Seizures

Thank you for the information on Melatonin. I will certainly ask my neuro.

I saw the neurosurgeon last Monday. He doesn't feel I am a candidate for surgery. He is now going to talk with my neuro and together they are going to decide what the next step is.

 
Old 01-25-2005, 07:39 PM   #7
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tkdmom96 HB User
Re: Stres = Partial Complex Seizures

Hi Diana,

I'm sorry to hear the surgery is off, for now. Have you considered getting a second opinion, or did what the surgeon have to say sound absolutely conclusive?

Please, if you will, share why he felt that way...

Vicki
__________________
Proud mom of Katie, the strongest and bravest person I have ever known! GBTG.

 
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