Re: Lamictal and vision problems?
When I was on Lamictal, I never had to have a level drawn. I am not sure if that was because it was so new that maybe it wasn't known yet what the level should be, or if it wasn't needed due to the way it is metabolized. I was on Tegretol at the same time and that drug does have double vision as a side effect when it is too high. I did experience that a lot, but it was due to the Tegretol and not the Lamictal. I take Keppra now, but if I had to change meds, I'd try Lamictal again without a question.
If I had to guess, I would say your child's vision problems are due to either one of the other meds or the concomitant effects, effect of one med on another. If it is really due to the Lamictal, seems like her vision would be better as the level comes down. SInce I don't think you mentioned that it was gettng better, I would strongly look at one of the others. I can't believe your child was toxic for 2 years without anyone knowing. The doc who prescribed the meds should have needed a level of some of those if not all and more than once a year too. Too much med can cause seizures too.
Do you plan to seek a Pediatric Epileptologist since your child's seizures are not controlled and since the doc she has is not following her carefully as evidenced by the no levels and the TWO years of toxicity? I am so sorry she had to go through that since some of her seizures could possibly have been due to the high levels. if you do not want to go to a Comprehensive Epilepsy Center now, how about a second oopinion with another pediatric neuro. Seizures can progressivly get worse if not stopped. I have had epilepsy since early childhood after having Encephalitis too. I didn't find the right care until my 40's. I didn't have this info though. Phoebe
Last edited by Phoebe; 02-06-2005 at 08:59 PM.