Where do I begin. Last Thursday Patrick and I spent 7 hours in the ER. He had been lethargic and sleepy for days. He'd get up, eat a little bit and go back to sleep. He was even napping at school and nodding out. He was also sick with a cold and cough so I wasn't that concerned. After going to the GP and being placed on an antibiotic I just wasn't seeing any improvement. He was on 1500 mg of depakote and his last blood level (morning before meds and very late due to the wait) was 118. According to the maker of depakote theurapeutic levels are 50-100. Pat's neuro said he could go to 150. I read over 135 for males is dangerous. Again this is straight from the maker of depakote. Anyway I contacted the neuro and he told me to take him to the ER for a blood level, liver function and CBC. I had given him his morning dose and they weren't able to draw blood until approx. 3:40 pm. A good 5-6 hours after his last dose. Well his level was 127. The ER doc ordered a chest Xray to rule out pneumonia. It was clear so he came to the conclusion that Patrick is over medicated since the levels were well above therapeutic. Besides the fact that he watched the child sleep the day away. He didn't perk up until 5pm. I've been complaining about the cognitive effects for months! Aargh!!!!!!
There were also some blood and liver changes. Very scary. We saw the neuro on Monday and he finally agreed that depakote probably isn't the drug for Patrick. Seems I had to have another physician witness my child's behavior before he would believe me and his liver needed to be affected too! I'm really peeved. Now we are reducing the depakote and adding Keppra. We may use Keppra as a monotherapy. That drug also scares me as we have major depressive disorders in my family along with three suicides. What can I do except watch him I guess? I'd switch docs but don't want to do so in the middle of a med change. Guess I need to be patient but that darn doctor better listen to me next time. Things should not have to reach critical mass. I know my child. Sorry for the long post. Just venting.
BTW I never got to ask about the EEG, I was so concerned with the bloodwork. I take it from some comments the neuro made that it wasn't good. We go back to him next week.