Originally Posted by chaz's mom
HELLO I'M VERY NEW TO THIS SITE MY 12 YEAR OLD DAUGHTER HAS GENERALIZED EPILEPSY AND NOTHING SEEMS TO BE HELPING HER THE DOCTORS HAVE MENTIONED THE KETOGENIC DIET HAS ANYONE HAD SUCCESS WITH THIS .
My son who's 10 has generalized epilepsy also. Petit mal (abscence) and grand mal (tonic clonic) We just added another drug (Keppra) to his depakote. He was not having seizures (still a slightly abnormal EEG) on 1500 mgs of depakote but he became a zombie on it. We backed off on the depakote to 1250 mg per day. He was doing alot better (no seizures for over a month) but just had a grand mal this morning. Must have stayed up too late the last couple of nights and with the Keppra he's having a hard time getting to sleep. Even an hour past his regular bed time can set him off. Sigh. We haven't tried the keto diet yet. Seems very difficult to follow and carries with it some pretty serious side effects as well. The neuro wants us to increase his Keppra by another 250 mg in about a week. We'll see. I just don't know how this child is going to be able to get the 10-11 hours a night's sleep he requires not to have a seizure for the rest of his life.
Sorry I couldn't be much help for your regarding the diet but I'm here to listen. E can be a very frustrating and scary disease as I'm sure you well know.