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Old 03-15-2005, 09:53 PM   #1
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Join Date: Feb 2005
Posts: 24
amandamcn HB User
Angry I'm sorry but I need to vent..

I'm so frustrated right now. tonite i had a horrible near-black-out, too the point where i was forced to shut off my car and just sit. the dizziness was overwhelming, and the tunnel vision just as bad. The side effects from my meds have become increasingly worse. I have JME, and my neuro says that Depakote is my only answer..absolutely refuses to let me switch meds, and talk of other treatments with home remedies is strickly not an option according to him. The dizziness has gotten worse and worse over the past month. While I know that stress is the number one cause of my seizures, I have started smoking again as a stress reducer...however, the dizziness and nausea is terrible because of the combines nicotine and medication. It's either have a seizure from the stress or face possible cancers from the nicotine (not too mention all the other little annoyances)..what's odd is that I can tolerate alcohol perfectly, absolutely no affects with the two combined..it's just the nicotine. Over the past week I have seriously considered throwing away my bottle of depakote and taking measures into my own hands. While I never want to have a seizure again, I don't know how much more of these side effects I can take. Looking at the FDA papers on Dep. has made me realize that I have EVERY SINGLE SIDE EFFECT LISTED, minus one. I'm just not sure what to do anymore.... Sorry this was so long... i just needed to vent..
best of luck to everyone, Ama.

 
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Old 03-17-2005, 04:13 PM   #2
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kayakmom HB User
Re: I'm sorry but I need to vent..

Anna I am so very sorry!! Sounds so miserable. I would suggest you see if you can find a neuro for a second opinion. YOUr neuro does not seem to be listening. There are other meds that work for JME< although Depakote does often work well for it. EACH person is different and your quality of life is important!!

I sure hope you can get someone to listen and help! My daughter, Anna, does not yet have a JME label but her symptoms are like it in many areas. She is doing well on zonegran right now as far as seizure control. Her memory is having big problems from the med however!

Hang in there. Keep pushing for answers!
__________________
mom of 2 teens who have battled seiuzres.

 
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