Re: I'm sorry but I need to vent..
Anna I am so very sorry!! Sounds so miserable. I would suggest you see if you can find a neuro for a second opinion. YOUr neuro does not seem to be listening. There are other meds that work for JME< although Depakote does often work well for it. EACH person is different and your quality of life is important!!
I sure hope you can get someone to listen and help! My daughter, Anna, does not yet have a JME label but her symptoms are like it in many areas. She is doing well on zonegran right now as far as seizure control. Her memory is having big problems from the med however!
Hang in there. Keep pushing for answers!
mom of 2 teens who have battled seiuzres.