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Old 04-24-2005, 04:38 PM   #1
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Simple Partial Seizures

Hi Guys I have not written anything in a while so I decided to write and see if anyone out there has these type of seizures I have. They are called Simple Partial Seizures and my doc has put me on Keppra and they have not stopped my seizure because there is no type of blood test to see how it is going. I have been unable to drive for the last three years and i am starting to get frustrtated w/ this. So if any of you have this type of seizure can you let me know what kind of medication you are taking.
Thanks,

 
Old 04-25-2005, 11:59 AM   #2
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Re: Simple Partial Seizures

Hi there! I have 2 types of seizures but the basic one is Simple partial where I get leg jerks and stiff arm, I have been on Tegretol and Frizium my whole life and I have been controlled as well! The doctor had to up my dosage therefore I am on 1200 mg of Tegretol and 20mg of Frizium at the moment but when I first got diagnosed I was on 400mg of Tegretol and 10mg of Frizium. Hope this helps you! Can you let me know what kind of seizures you get? I mean what happens? Maybe I can give you more advice.

Mindy

 
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Old 04-25-2005, 01:09 PM   #3
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Re: Simple Partial Seizures

That is what I call my son's type seizure...he will turn his head to the left and smack his lips or pull on his glasses while doing so...they last about 10 seconds or less, He can even talk when they are going on....I ask him if is is alright and he will say "I'm okay"!!! He is on Tegertol XR as we go off Lamictal. Lamictal gave him very bad headaches with vomiting then inturn gave him an ulcer...so when as we are going off the Lamictal he uppped the Tegertol xr to 1200...so far so good...best news...no more headaches as of last Wednesday. The neuro (that I will NO LONGER use) said to me "I may have started him off with to high a dosages" REALLY! We have one more week of 50mg Lamictal twice daily then 50 mg for two weeks daily then we will see if he has any seizures before adding a new drug. He is hoping that the Tegertol XR 1200 mg will be all he needs.Our regular GP is the one that is taking him off the Lamictal and increasing the Tegertol until we see another neurologist....we will see the one he used to use before the quack one!
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Old 04-25-2005, 02:01 PM   #4
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Re: Simple Partial Seizures

Mindy-
The type of seizures i get are i will start coughing and in some way space out and say I'm o.k. and it last for only about 10-20 seconds. I am able to continue doing what i was doing before the seizure can on. Then it is all over and i write down what time i had it. So the only thing i can't do is drive. So i hope this answers your questions and if you can help me anymore i'd appreciate this.
Thanks

 
Old 04-25-2005, 03:49 PM   #5
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Re: Simple Partial Seizures

TMS~
Hi! My sister in-law's friend has simular seizures but she goes into a space out stage I will try to inform myself with what medication she is on and if you don't mind me asking are you from Ontario? I have a great Neuro in London, Ontario. he is great! I will get back to you on this one! Take care!

Mindy

 
Old 04-25-2005, 04:18 PM   #6
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Re: Simple Partial Seizures

No i live in the US just to let you know i am on 2000 mg. Keppra and it works some what.

Last edited by tms; 04-25-2005 at 05:00 PM.

 
Old 04-26-2005, 01:53 PM   #7
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Re: Simple Partial Seizures

Hi everyone I first just wanted to thank you all for responding to my posting. I need to know if any of you have these types of symptonsbefore you go into a seizure. I have been paying attention and when I went into one this morning my mom was there w/ me. I told her I think I will be going into a seizure and sure enough I went into one. I first start coughing and say I'm O.K. and then my mom will ask me questions to see if i can answer her back and most of the time I can. I am just wondering if any of you have experienced these symptoms while driving because at the moment i am not driving and I am just curious if you have these how you feel while driving. If you could answer me i'd appreciate this. Thanks

Last edited by tms; 04-26-2005 at 04:41 PM.

 
Old 04-26-2005, 10:30 PM   #8
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Re: Simple Partial Seizures

I have pc seizures from a head injury and am on 3000 mg keppra. I get the spaciness and the staring spells, leg jerks muscle twitches. I am allowed to drive during the day but for short distances . Doc says when you are tired you are more prone to these seizures. Another problem from injury or maybe part of the seizures is i forget what im doin like now and dont quite remeber what your initial question was. Anyhow good luck.
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Old 05-05-2005, 12:25 PM   #9
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Question Re: Simple Partial Seizures

I need some help from you guys.My son started having what we call "spells" about a year and a half ago,he's 15 now.The neurologist said that he had a "seizure disorder",not epilepsy.She put him on keppra but I never saw a reduction of the spells, they actually kind of increased when she first started him on it.After many tests and no answers, we finally kind of just stepped back and tried to watch and see how the meds would work.He was on keppra for about a year,with no change.His spells last about 10-20 secs and don't seem to faze him too much,but 1 problem is that he is challenged and mentally hes around 8or9 years old and he does'nt articulate how he feels all the time and he's prone to hiding the truth about his spells. I think he does it b/c he knows I worry,but he also does it b/c he knows I'll limit certain activities if he's having alot of spells that day.The question I wanna ask you guys is"Do these seizure disorders come and go?" My pharmacy made a mistake about 3 months ago when it was time to refill his prescription and b/c of that he went 2 weeks without the keppra{they put the wrong dr. on the precript and caused a big hoopla with the insurance people}Anyway... My son's seizures just stopped .He made a remark that he's not had 1 in a while so I just left him off the keppra to see if the disorder had went away{the doc said most seizures in young adults go away on their own}so.. we{me and doc} decided to keep him off it and we all thought that everything was better.Well 2 months later my son is going to have his 3rd sleep study and the day before he has a spell and tells me about it.All I can think is "What the H#@$ is going on.The doc never said they might come back and she really never did try and explain anything about his disorder and I can't find anything on the web about seizure disorders only about epilepsy.Well it's been a month since the spells came back and he's seeing a new neuro next week but these people w/ their 20 years of schooling think we should just know everything already and they act like they don't have the time to explain anything{just give him the pills and we'll see him in 3 months}is usually all I can get.Can any of you help me with a little info?I'm kind of stuck and don't know where to go for the info I need.Blessings to you all.
Leslie

Last edited by needadr.w/aclue; 05-05-2005 at 12:29 PM. Reason: double wording

 
Old 05-06-2005, 04:00 PM   #10
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Re: Simple Partial Seizures

There is a school of thought that some docs have to try and decrease the stigma of epilepsy by calling it a Seizure Disorder instead. If the seizures are originating from a group of misfiring or damaged brain cells/neurons, they are one in the same really unless the cause of the seizures is another cause besides the typical like possible pseudoseizures. I'd call that one a seizure disorder since the origin is usually not from brain cells misfiring. As much trouble and heartache as we go through trying to find a med that will stop our seizures, I am so sorry for your son that you chose to stop the one that was working. Did you feel he would be better off or did you think he was cured? We all have to take our meds, and in the case of parents of children with any illness, they have to see to it that the meds are taken until the child is able to do it for themselves. Those who visit here will tell you their stories I feel sure. There are some strong parents here for you to learn from. Maybe you were not aware, but there is no cure for Epilepsy. Unless you can find the exact cause and eliminate that cause, I would expect an illness to remain. If we are fortunate enough to find a med that works, we are fortunate, but even then there is no guarrantee it will continue to work. It also is not a cure. The meds many times will lose effectiveness at some point and need to be adjusted. If a Diabetic takes insulin or another oral hypoglycemic and his blood glucoses get stabilized,would he stop taking the insulin thinking that he was cured? No he wouldn't since the insulin was what caused the stabilization of the glucose along with diet and other care etc. Our illness and need for treatment is not different. Ours is less understood and less accepted however. I encourage you to find a doc who can provide the quality of care your child deserves. There are many causes of seizures an some are metabolic and more medical in origin. You may have to do some reesearch on this to find the best route of care for your child. I was diagnosed at age 14, and my family never really accepted my epilepsy. Please keep us posted. Phoebe

 
Old 05-07-2005, 11:46 AM   #11
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Re: Simple Partial Seizures

Dear Phoebe,
Thank you for your response.I'm completely clueless here.I've had 2 neuro's tell me that he might grow out of it .I asked point blank if he had epilepsy, and they said no,It's a seizure disorder.How is a parent supposed to trust these doctors.I'm glad I've joined a board where i can learn something from people who are living it.We stopped giving my son the Keppra because the pharmacy made a mistake that took 2 weeks to figure out and I could'nt get the prescription filled,Well in those 2 weeks he did'nt have a spell so I called the nuerologist and she said that we could keep him off it to determine if the disorder had gone away.I don't know what to think any more.This is a small town ,they're not many options for neuro's.I'm going an hour out of town next week to a new neurologist, but I want to be knowledgeable enough to ask the right Questions.Any feedback that this board can give would be greatly appreciated. Thanks again for your time.Leslie

 
Old 05-07-2005, 01:32 PM   #12
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Re: Simple Partial Seizures

First let me apologize for misunderstanding. When I read that his seizures stopped. I thought it was with the Keppra. I am sorry I misread it. If a med isn't helping and mauking it worse, you may think it isn't a good med for him. It may not be, but Keppra is not approved for monotherapy. It is not approved to be used alone. It is supposed to be used with other AEDs, antiepileptic drugs. Not alone! Most of us take at least two meds at the same time. Many take more than two. Not just one. Did he try Lamictal? Has he tried something like Tegretol and another like Lamictal with it? I think Lamictal is good. I took it too. Tegretol affected my memory and cognition while takng it. I have Complex Partials. Partial seizures are the hardest to treat with meds. Across the board. not all meds work for all people. I is a real trial and error experience to find the right combo of meds. It may help to take your some to someone who has lot of experience in seizures. Not all neuros do Trust me! We all seem to go from doc to doc to doc looking for someone who really knows epilepsy regardless of what you call it. I would want to ask your doc point blank "What is the difference?" when she said it was not epilepsy but was a seizure disorder. Also ask her what the cause of the seizures are if it is not caused by brain cells misfiring. it is true that too much meds can cause seizures too. Is he taking any other meds? The combinations also have their own effects. If you can, please see if you can find a seizure specialist, and Epileptoligist for an evanuation or second opinion if nothing else. They ony treat seizure/epilepsy patients. They also will be able to tell you better if it is caused bu a neuro cause or another like metabolic, glucose metabolism, endocrine, structural involving the insertion of brain into spinal column etc. There was a child whose mother used to come to one of the other board,s and that turned out to be the problem. The mother had to go to great lengths to find that out and had to search for the doc who had experience in that area. The doc needs to give you some definite answers, and if she can't, search for one who can. Many of us have done that and parents too. It is not easy, but there is a lot of support here and on other boards like this. Don't give up hope. Has she mentioned the VNS as a possiblity? Hope you haven't mentioned that and I missed it. There also is a lot of good info here if you use the Search feature. Phoebe

Last edited by Phoebe; 05-07-2005 at 01:53 PM.

 
Old 05-29-2005, 01:02 AM   #13
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Thumbs up Re: Simple Partial Seizures

Just wanted to add a little bit of info i have learned over the years. Started having grand mal seizures during viet nam(76). The medications i am on now are dilatin(500 mg), lamicatal(125 mg), levetiracetam(1500 mg) and lorazepam(1 mg when needed). Medication types and levels have been changed many! times over the years trying to find the right level for me. One thing that has helped me the most from having 8-10 grand mals a month to having petite mal(6-7 a week) is calmness and acceptance. Please tell him not to start worrying about the seizures or they could also increase. Have noticed that society over the years has accepted the words"seizure disorder" better than "epileptic". Seizures may never go away, but they can be controled also by ourself.

 
Old 05-29-2005, 02:41 PM   #14
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Re: Simple Partial Seizures

Hi I also have Simple Partial Seizures which sometimes go into complex. I've been on different tablets for the last 18 months and am on Keppra, Epilim and Lamatical. I'm still not controlled, although am better than I was. I keep getting told by the doctor that the Epilim is maybe the tablet that's not controlling me and says what ever happens he wants to keep me on the Keppra and Lamictal.

 
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