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Old 04-26-2005, 01:22 PM   #1
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Join Date: Apr 2005
Posts: 4
MYSTICAL7 HB User
Angry misdiagnosis

i feel there is somethiing i have to tell you all when i was 18 i was diagnosed
of having epilepsy started on the drugs and the more drugs i was given the more
fits i had its too long to go into the whlole story but i was taking 15 anti-convulsants a day and i was suffering 30 to 40 fits each day it was a life
of hell and i was very poorly in 1990 i was told by a proffessor i didnt have epilepsy the fits had all been induced by the drugs i was taking. i was very
angry to think 12 years had been robbed from me and i was also very upset
because i could not have a family. I fought a case for 9 years but i didnt get anywhere because all my records went missing i didnt even get a penny
i am now 44 and i have lupus there is a chance it has been caused by the drugs
i took but i will never know , if anyone is in doubt of the seizures they are having please see someone i dont want anyone else to suffer like i did this went on for
12 years i was 18 when diagnosed and 30 when i was told i wasnt epileptic,
i drive now and i havent had a fits since the drugs where stopped in 1990
i am still agrieved but it is going less i will help anyone where i can and
if i can stop this happening again then this is my purpose, close friends and
family think i should pursue a case but it is behind me now and i dont want
anymore stress especially with having lupus.

 
Old 05-04-2005, 07:15 PM   #2
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Join Date: Apr 2005
Location: LONDON
Posts: 59
PINKY1 HB User
Re: misdiagnosis

Quote:
Originally Posted by MYSTICAL7
i feel there is somethiing i have to tell you all when i was 18 i was diagnosed
of having epilepsy started on the drugs and the more drugs i was given the more
fits i had its too long to go into the whlole story but i was taking 15 anti-convulsants a day and i was suffering 30 to 40 fits each day it was a life
of hell and i was very poorly in 1990 i was told by a proffessor i didnt have epilepsy the fits had all been induced by the drugs i was taking. i was very
angry to think 12 years had been robbed from me and i was also very upset
because i could not have a family. I fought a case for 9 years but i didnt get anywhere because all my records went missing i didnt even get a penny
i am now 44 and i have lupus there is a chance it has been caused by the drugs
i took but i will never know , if anyone is in doubt of the seizures they are having please see someone i dont want anyone else to suffer like i did this went on for
12 years i was 18 when diagnosed and 30 when i was told i wasnt epileptic,
i drive now and i havent had a fits since the drugs where stopped in 1990
i am still agrieved but it is going less i will help anyone where i can and
if i can stop this happening again then this is my purpose, close friends and
family think i should pursue a case but it is behind me now and i dont want
anymore stress especially with having lupus.
THANK YOU SO MUCH FOR YOU REPLY.IVE BEEN EPILEPTIC (I THINK) SINCE I WAS 7 IM 36YRS OLD NOW.I HAVE WONDERED ABOUT BEING MISSED DIAGNOSED? I HAVE BEEN WITHOUT ANTI-CONVULSANTS AND MY FITS WERE NO WORSE OR BETTER SO I DECIDED I WOULDNT TAKE THEM,AS THEN AT LEAST I COULD BE MORE COMPUS- MENTUS THEN.AND THEY MADE ME VERY ILL TOO.I HAVE MY FITS DAY AND NIGHT,MY GRAN-MAL HAVE ONLY EVER HAPPENED VERY EARLY IN THE MORNING "DONT KNOW IF THATS RELAVENT?" BUT THANK GOODNESS SOMEONE HAS BEEN WITH ME EVERY TIME IVE HAD ONE.
CAN ANYONE PLEASE TELL ME IF THEY KNOW WETHER BAD NIGHTMARES CAN BE A WARNING OF GRAN-MAL FITS,BECAUSE IVE NOTICED THAT BEFORE (ABOUT 3 DAYS )BEFORE I HAVE THE MOST AWFUL DREAMS AND WONDERED IF THERE WAS A CONECTION? THANK YOU SO MUCH FOR REPLYING...

 
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