It appears you have not yet registered with our community. To register please click here...


 Home Message Boards Videos Join for Free User Blogs Board Index
Search
 
Forgot your username or password?


Epilepsy Message Board
Post New Thread   Closed Thread
Share
 
 
LinkBack Thread Tools Search this Thread Display Modes
Old 04-27-2005, 07:56 PM   #1
Newbie
(female)
 
Join Date: Apr 2005
Posts: 2
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
amijoy HB User
Does anyone else have this kind of epilepsy?

i was diagnosed with epilepsy in june of 2004. it was coincidental. i was on my way to the waterpark with my husband and daughter, when i passed out in the car and my husband said my face "twitched". i've never had a convulsive seizure. i had 2 EEG's since then. both were VERY positive. i've had an ambulatory EEG. i never had to press the "episode" button one time, during the entire weekend. i was just positive the test would be negative. the results of the test showed constant seizure activity. the only things i notice, are "lights".
when i wake up, first thing in the morning and turn on the lights, all the lights have trails. as if i were tripping on acid. (i've never tripped on acid, but i've watched plenty of movies) at night time, if i'm really tired, or stressed, the same thing happens. all the lights trail. these are the results that showed on my EEG. especially the ambulatory EEG. that sort of activity. (according to my physician) i don't know the technical terms for any of this.
what i'm now realizing, is what i've always thought to be normal, may not be. when i lay down at night and close my eyes. it's hard for me to sleep. when my eyes are close, i see strobe lights, as if someone has one, directly in front of my face. but i thought this was normal. i can remember seeing this, as long as i can remember. (not always, of course) and now, they tell me this is a type of seizure.
this is the only type of seizures i have. i am on topamax 200 mg daily. it's helped my headaches and migraines, but i still see the lights in the morning and night. will this ever go away? and i never hear of anyone else having this simple and mild form of epilepsy. i feel lucky, but also i feel misdiagnosed. any information would be appreciated.

 
Sponsors Lightbulb
   
Old 04-27-2005, 11:19 PM   #2
Inactive
 
Join Date: Oct 2002
Posts: 292
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
Phoebe HB User
Re: Does anyone else have this kind of epilepsy?

Some people experience their seizures as seeing something or even hearing something depending on the specific area of the brain involved and what that area does. It is usually the same thing each time. I never experienced what you describe. What diagnosis did your doc give you? It will be specific to the seizures you have and area of involvement. Did you have an MRI? You mentioned the EEGs, but no MRI. With the visual things happening seems as though your doc would have wanted one to make sure there is no other possible cause. Visual disturbances are common with migraines like you mentioned you have. Do you feel comfortable that the visual events you describe is not associated with migraine in any way? Is the doc treating seizures the same one you see for migraines? I had a headache doc try and treat my epilepsy once. NOT a good idea for me at all. I needed the Specialist. The Epileptologist. I have not heard of your description of seizures before now. How is your consciousness during these events? Have you lost consciousness at all or have periods when you do not rmemember what happened? Phoebe

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Anyone Else Have Serious Multiple Mental Health Issues? James2468 Mental Health 6 08-17-2010 04:03 PM
Tegretol causing osteoporosis, anyone know? singingirl Epilepsy 24 10-16-2008 09:49 AM
Behaviour problems and epilepsy anyone? daisy01 Epilepsy 3 01-01-2008 11:48 AM
What does it feel like to have a seizure? Aquaticgirl Epilepsy 32 08-10-2007 03:08 PM
Does anyone know? heather06 Epilepsy 1 05-30-2006 04:36 PM
Does anyone get SSDI? tiresome Epilepsy 3 04-03-2005 02:11 PM
Anyone DX with catamenial epilepsy GoAwayEpi Epilepsy 1 03-05-2005 08:37 AM
does anyone else get this mommajessibelle Epilepsy 1 10-18-2003 09:27 PM
does anyone else have these fears? mommajessibelle Epilepsy 12 08-06-2003 10:13 PM




Bookmarks

Thread Tools Search this Thread
Search this Thread:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off











Message Boards
  • Open to All Other Health Topics
  • It's Life - Off Topic Discussions
  • Natural Disaster Sympathies and Support
  • Health News
  • HealthBoards Testimonials
  • Suggestions for New Boards
  • Registration/Membership/Site Problems
  • Health Issues
  • General Health
  • Abuse Support
  • Acid Reflux / GERD
  • Acne
  • Share Your Acne Story
  • Acne Tips
  • Acute Respiratory Distress Syndrome (ARDS)
  • ADD / ADHD
  • Addiction & Recovery
  • Addison's Disease
  • Aging Issues
  • Allergies
  • Alternative Medicine
  • Alzheimer's Disease & Dementia
  • Amputation / Prosthetic
  • Amyotrophic Lateral Sclerosis (ALS)
  • Anemia
  • Aneurysm
  • Anger Management
  • Angina
  • Anxiety
  • Share Your Anxiety Story
  • Anxiety Tips
  • Arthritis
  • Asperger's Syndrome
  • Asthma
  • Autism Spectrum
  • Autoimmune Disorders
  • Back Problems
  • Beauty & Cosmetics
  • Bell's Palsy
  • Bipolar Disorder
  • Birth Control
  • Blood and Blood Vessel
  • Bone Disorders
  • Bowel Disorders
  • Brain & Head Injury
  • Brain & Nervous System Disorders
  • Brain Tumors
  • Breastfeeding
  • Burns & Injuries
  • Cancer
  • Cancer: Bladder
  • Cancer: Bone
  • Cancer: Brain
  • Cancer: Breast
  • Cancer: Cervical & Ovarian
  • Cancer: Colon
  • Cancer: Esophageal
  • Cancer: Kidney
  • Cancer: Lung
  • Cancer: Oral
  • Cancer: Pancreatic & Liver
  • Cancer: Prostate
  • Cancer: Rectal & Anal
  • Cancer: Skin
  • Cancer: Stomach
  • Cancer: Testicular
  • Cancer: Throat
  • Cancer: Thyroid
  • Cancer: Uterine
  • Candida
  • Caregivers
  • Carpal Tunnel Syndrome
  • Celiac Disease
  • Cerebral Palsy
  • Chemotherapy
  • Children - Special Needs
  • Children's Health
  • Chronic Fatigue
  • Codependency
  • Colds & Flu
  • Swine Flu (H1N1)
  • Cosmetic / Plastic Surgery
  • Costochondritis
  • Crohn's Disease / Ulcerative Colitis
  • Cystic Fibrosis
  • Death & Dying
  • Degenerative Diseases
  • Dental Health
  • Depression
  • Share Your Depression Story
  • Depression Tips
  • Diabetes
  • Hypoglycemia
  • Diet & Nutrition
  • Digestive Disorders
  • Disabilities
  • Divorce & Separation
  • Dizziness / Vertigo
  • Down Syndrome
  • Drug Interactions
  • Dyslexia
  • Dysphagia
  • Ear, Nose & Throat
  • Eating Disorder Recovery
  • Endocrine Disorders
  • Endometriosis
  • Environmental Disorders
  • Epilepsy
  • Epstein Barr Virus (EBV)
  • Exercise & Fitness
  • Eye & Vision
  • Family & Friends of Cancer Patients
  • Family & Friends of the Mentally Ill
  • Family Planning / Adoption
  • Fibromyalgia
  • Foot Problems
  • Gallbladder
  • Genetic Disorders
  • Grief & Loss
  • Hair Loss / Alopecia
  • Hair Problems
  • Headaches & Migraines
  • Health Insurance Issues
  • Healthcare Professionals
  • Healthy Lifestyle
  • Hearing Disorders
  • Heart Disorders
  • Hepatitis
  • Hernia
  • Herpes
  • High & Low Blood Pressure
  • High Cholesterol
  • HIV Prevention
  • HIV/AIDS Living With
  • Hormone Problems
  • Hospice
  • Human Papillomavirus (HPV)
  • Hypochondria
  • Hysterectomy
  • Immune Disorders
  • Incontinence
  • Infant Care (up to 18 months old)
  • Infectious Diseases
  • Infertility
  • Share Your Infertility Story
  • Inner Ear Disorders
  • Interstitial Cystitis (IC)
  • Irritable Bowel Syndrome (IBS)
  • Kidney Disorders
  • Knee & Hip Problems
  • Lasik Eye Surgery
  • Learning Disorders
  • Leukemia
  • Liver & Pancreas Disorders
  • Lung & Respiratory Disorders / COPD
  • Lupus
  • Lyme Disease
  • Share Your Lyme Disease Story
  • Lymphedema
  • Lymphomas
  • Men's Health
  • Menopause
  • Mental Health
  • Mesothelioma
  • Military Health Issues
  • Miscarriage & Still Birth
  • Mononucleosis
  • Multiple Sclerosis
  • Muscular Dystrophy
  • Myositis
  • Nail Problems
  • Neurofibromatosis
  • Neurology
  • Neuromuscular Diseases
  • Neuropathy
  • Nutritional Disorders
  • Obesity
  • Obsessive Compulsive Disorder (OCD)
  • Occupational Health & Safety
  • Orthopedic
  • Osteoporosis
  • Pain Management
  • Chronic Pain
  • Share Your Pain Management Story
  • Panic Disorders
  • Paralysis
  • Parenting Issues
  • Parkinson's Disease
  • Personality Disorder
  • Phobias
  • Pituitary Disease
  • Polio
  • Polycystic Ovary Syndrome (PCOS)
  • Post-Traumatic Stress Disorder (PTSD)
  • Postpartum Depression (PPD)
  • Pregnancy
  • Share Your Pregnancy Story
  • Pregnancy Tips
  • 2010 Mommies
  • 2011 Mommies
  • Pregnancy-Teen
  • Prostatitis
  • Psoriasis
  • Rape / Sexual Abuse
  • Rare Disorders
  • Raynaud's Syndrome
  • Reflex Sympathetic Dystrophy
  • Relationship Health
  • Restless Leg Syndrome
  • Rosacea
  • Sarcoidosis
  • Schizophrenia
  • Scoliosis
  • Self-injury Recovery
  • Senior Health
  • Sexual Dysfunction Treatment
  • Sexual Health - General
  • Sexual Health - Men
  • Sexual Health - Teens
  • Sexual Health - Women
  • Sexually Transmitted Diseases
  • Shingles
  • Shoulder / Rotator Cuff Problems
  • Shyness
  • Sickle Cell Anemia
  • Sinus Problems
  • Sjögren's Syndrome
  • Skin Problems
  • Sleep Disorders
  • Smoking Cessation
  • Speech & Language Disorders
  • Spinal Cord Disorders
  • Stress
  • Stroke
  • Sudden Infant Death Syndrome (SIDS)
  • Teen Health
  • Thyroid Disorders
  • TMJ Disorder -TemporoMandibular Joint
  • Tourette Syndrome
  • Transplants
  • Trigeminal Neuralgia
  • Trying to Conceive (TTC)
  • Urology
  • Vaccination & Immunization
  • Vitamins & Supplements
  • Weight Loss
  • Weight Loss / Surgical
  • West Nile Virus
  • Women's Health



  • TOP THANKED CONTRIBUTORS

    Epilepsy

    92261 (9), Positive Cynic (7), Travis from MN (6), 030free (6), heyloe (4), cardshark (4), neurowreck (3), dogmom (2), webartethan (2), Looking4aAnswer (2)

    Site Wide Totals

    thanbey (581), janewhite1 (526), BlueSkies14 (511), SpineAZ (483), DGabriel10 (463), mscat40 (419), tetonteri66 (418), jennybyc (399), sammy64 (388), jgrangran (357)

    All times are GMT -7. The time now is 09:12 AM.



    Site owned and operated by HealthBoards.com™
    Copyright and Terms of Use © 1998-2012 HealthBoards.com™ All rights reserved.
    Do not copy or redistribute in any form!


    SEO by vBSEO ©2011, Crawlability, Inc.