Has anyone experienced this? - Epilepsy Message Board

Josie's Momma · 04-29-2005, 01:17 PM

I have a four year old daughter. She is very healthy in general. She is not on any medication or anything.

She will go into these staring "episodes". It's like she is paralyzed. She doesn't so much as blink. After them she knows what you said to her. We always thought they were just her being stubborn because it generally happened when she got in trouble.

The other morning I went to wake her up. She had had trouble going to sleep the night before. She would not wake up. I figure she is tired and go to take a shower. When I get out she still would not wake up. Her breathing was regular and it didn't matter what I did, if I moved her she would stay in the same place with her eyes closed. I put her in the shower and turned it off and she still didn't wake up. She finally opened her eyes about 30 minutes after the onset of it.

Her pediatrician said it was psychological and to see a psychiatrist. I got a second opinion and was sent to a neurologist. She had an EEG done today and we have an appointment May 19. In the meantime, I am wondering if anyone has ever heard of having a seizure this way? It is really scary to not know what is happpening to your child.

Thanks in advance.

kayakmom · 04-29-2005, 01:50 PM

Hope that appointment goes well the 19th and you get answers!

yolo · 04-30-2005, 09:24 AM

That is the strangest thing. Do loud noises effect her? My wife has 3 different types of sz and takes about 30 pills a day. But the sz I see the least in her are staring or absence sz they only last a short time less than a minute and she does not remember what I said during them.

Please keep us posted

Live well

Yolo

EthanF · 05-18-2005, 02:45 AM

Josie's Momma

I am a 27 year old epileptic myself and have been since I was 10 months old. My mom has told me that during a seizure I have a tendancy to look behind me and toward the right even though there is notthing there. I also sseem to remember from a few seizures having a feeling coming from that area that there is someting in that directiont that I have to look at. I don't hear it, see, it or smell it, but I just get a feeling that there is something in that direction that I have to look at. Ask your daughter if any of these feelings sound familiar. I will ask my mom to give me a better description of how I act during this to help you out

Best Luck to you and your daughter
Ethan