Heart broken mother part 2 - Epilepsy Message Board

niecsey · 09-12-2005, 11:07 AM

Well it happened again.....Friday night this time it was different from the others. We (me and my little girl) were feeling really tired so we put on our jamas well l did she only had the bottoms on and thought she had the jama top on only she didnt and was confused dizzy and weepy l didnt know what was comig next l thought she was just really tired l put her to bed and went into the bathroom she followed me and was saying things like 'why am l outside the bathroom what am l doing etc etc l still never clicked what was about to happen so l put her in bed (near mine) told her to go to sleep and 10 mins later she raised herself up on her arms her head went back and her eyes rolled around all over!!

her eye lids tinged blue she wasnt shaking that l could tell just her head jerking slowly her arms were stiff my reaction was to lie her down mother instinct but she was so stiff then l remebered that you leave them unless there in danger she did not vomit with this seizure although l heard a few 'gagging; type sounds this only lasted approx 40/45 seconds , a few mins later we asked her if she was ok and she said 'yes' smiled and went back to sleep this is so bloody hard its cruel!!! Does anyone know what type of seizure she might of had? We are due at the hosp 3rd Oct when l will tell the doc Thank you all so much for your sharing and time xx

kayakmom · 09-12-2005, 05:11 PM

I am so sorry she had another one....please write this all down in a notebook. Keep a journal of this to tell the doctors , it really helps since it is easy to forgeth things under the stress of an appointment.

It is hard for me to know what kind it is for sure....sounds like a complex partial with the movements and stiffening, I would think. They can secondarily generalize and that can be the jerking and the stiffened part(called tonic)...

I hope the apt helps figure this out!

niecsey · 09-13-2005, 04:36 AM

Hi Kayak

there was no shaking this time as in previous seizures and l couldnt see the rest of her body as she was under the quilt lve also noticed shes doing a lot of 'lip smacking' when shes asleep do you think this is 'seizure activity too?' there is so much l want to know ...l cant wait for the next hosp appointment l spent hours doing searches last night on the net its hard work lol thanks again hun hope you and yours are well xx luv niecsey

kayakmom · 09-13-2005, 05:33 AM

Niecey, Lip smacking can be part of partial seizures, BUT it can also be a "normal" part of sleep and not be anything to worry about! So confusing, isn't it! try doing a search with epilepsy 101 in it, you should get good information.

I would say, TRY not to worry about every little thing you see as a possible seizure, unless you see that it leaves her impaired afterward. Is she waking ok, most of hte time? Is she functioning ok?

Hang in there!

niecsey · 09-13-2005, 05:59 AM

Yea shes functioning great top of the class l should of realised when she got confused something wasnt right........... some mornings shes in a horrendous mood. I wil try the search cheers xx