Lyrica-- new med, anyone been on it? - Epilepsy Message Board

neurowreck · 10-05-2005, 04:43 PM

Saw my doc today- blood pressure still low, and other stuff still screwed up, but she decided to try Lyrica- it's a new, better form of Neurontin (that I did ok on for 6 years- just can't afford the generic stuff on disablity)....she gave me 2 months of samples, and told me to see how it worked. It's for partial seizures with another primary med, like Neurontin, and also for neurogenic pain, like Neurontin....anybody been on it? Got 2 other meds to add to the collection- finally had to type up my list where I set my stuff up- it either keeps changing, or I'm just too unsure of myself to remember what this week's regime is

neurowreck · 10-06-2005, 05:24 PM

After first night (am doing bedtime for a week, then add the morning dose, so I don't get too zonked- got 2 other meds, plus one adjusted yesterday), I'm tired and balance isn't great (not new), but nothing dreadful. Just feel worn out, which isn't all that different than usual!! Still interested in anyone else's experience with this.

kayakmom · 10-08-2005, 08:22 AM

I have read on another board about 2 members that have just been put on Lyrica. One is a disabled 18 year old. Her mom has been pleased so far. Her control has greatly increased and her typical clusters have been absent. She usually has status events and has not.....The other poster is a man who has just started it....

it is similar to Neurontin and shows some promise in clinical trials anyway. It has only been out a few weeks.

I hope it does well for you!

neurowreck · 10-08-2005, 09:28 AM

So far, the only thing I've noticed is fatigue, but that's to be expected with any new med. It's put out by the same people that make Neurontin- but less expensive, and still brand name, and not available in generic like Neurontin is (wonder if it's a monetary trick to make more money off essentially the same drug). I did ok on Neurontin (it was originally used for my dysautonomia, and not seizures)... guess time will tell....I've started it just at night at first, and will add the morning pill next week.
Good to hear others have been on it and it's helped.

Eilidh1 · 10-20-2005, 08:02 PM

Hey neurowreck

How are you doing on Lyrica now? I was prescribed with it today, not totally sure about it because it is so new, but thought i'd throw caution to the wind and try it, i can always go back off it, and you never know, it could be the drug I'm looking for. I'm taking it with Keppra (3000mg daily) and Lamotrigine (600mg daily). Tapering it in REALLY slowly to avoid side-effects. I have grand mal seizures, myclonus and absence seizures.

Cheers,

Eilidh
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