My name is Martin and my wifes name is Holly, she'll be the one that will be most active here. The reason being, I was active many years ago on an epilepsy board when a person I've grown close to had a child go into a status seizure that caused her to be severely disabled. I took it hard especially since her child had the same type of seizers as my son does. I left that board never to return, I just couldn't handle it anymore.
We've been to many Neros in 3 states and they are stumped as well.
I'm afraid that the pressure is tearing my family apart, financially as well as emotionally.
Anyway, I have an 12 year old son (Eric) that has autism as well as seizures.
My wife and I will be reading the posts in here so we don't ask the same questions that has been answered time and time again. My son seemed advanced for his age until he turned 2 or shortly after. That's when he lost his speech and isolated himself from the rest of us. Our 10 year old daughter (Melissa) is in perfect health... thank God!!!!
Anyway, I'm exhausted so I'll let my wife continue tomorrow. I'm glad I found the strength to join a message board again.