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Old 11-15-2005, 10:08 AM   #1
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Attention Depakote/carbamezepine Users

A deficiency in the amino acid Carnitine has been associated with taking Valporic Acid. "Carnitine deficiencies in children may manifest as loss of muscle tone, failure to thrive, swelling in the brain, recurrent infections, hypoglycemia and heart disturbances" (Heal with Amino Acids by Sahley and Birkner). Carnitine may offer protection against Valporic Acid and carbamezepine drug toxicity. When you or your child's anticonvulsant, CBC with Differential, platlets, SGOT, SGPT, and Lipase levels are tested have your doctor include Carnitine-Total and Free levels to rule out a deficiency. Be sure your doctor is aware that only the L-Carnitine form of Carnitine is effective.

 
Old 11-17-2005, 10:40 AM   #2
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Re: Attention Depakote/carbamezepine Users

Yeah I had to ask my son's neuro for the L-Carnitine. He never offered it. Thank God my son is getting another neuro. Thanks for the info!

 
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Old 11-24-2005, 04:45 PM   #3
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Re: Attention Depakote/carbamezepine Users

Good! It took 3 years and 4 neurologists until my son had valid test results and was put on the proper medication. Doctors make mistakes.

 
Old 11-25-2005, 07:39 PM   #4
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Re: Attention Depakote/carbamezepine Users

Interesting...our daughter was on Tegretol (carbamezapine) for 11 years (ages 18 months-12) and never knew about the amino acid deficiency.

Also didn't know that female AED users should take extra FOLIC ACID for the proper support of egg production and to help prevent birth defects. Found that out 2 years ago when we found a fantastic new FEMALE Epileptologist.

Women on AEDs also need to watch for bone density issues.

Thanks for providing the extra info...

Vicki
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Proud mom of Katie, the strongest and bravest person I have ever known! GBTG.

 
Old 11-26-2005, 05:16 PM   #5
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Re: Attention Depakote/carbamezepine Users

When I inquired about carnitine supplementation our wonderful female neurologist said that typically only children 2 years and under experience deficiencies but tested my 12 year old son's levels anyway. Just another reminder of how important it is to do one's own research and honor intuition. By the way, the L-Carnitine supplement "Carnitor" has been classified by the FDA as a drug(!) and therefore most insurance companies will not cover. L-Carnitine is available at health food stores but the makers are unable to provide dosage recommendations for children with deficiencies.

 
Old 11-27-2005, 12:11 PM   #6
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Re: Attention Depakote/carbamezepine Users

wow this is not good i've been on te*****l for 16 years that would explain it i'm trying to get tone this is not good .dragon princess

 
Old 11-27-2005, 07:12 PM   #7
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Re: Attention Depakote/carbamezepine Users

I should clarify that the deficiency has been associated with valporic acid (Depakote, Depakote Sprinkles). L-Carnitine has be effective in countering the drug toxicity that can occur with valporic acid AND carbamezepine (Tegretol, Carbatrol) use.

 
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