Hello and welcome to the E boards,
Our daughter was diagnosed at the age of 8 months and had seizures for 15 years and was on 7 different medications. She had surgery June 2004 and has been seizure free since. She will be 18 in July!
I am a straight shooter and the people who know me here on the E boards for the last 4 years (where ALL of my posts are from, not a bunch of other boards, all 680+) know that I love to help and that you will get an honest answer from me, with no sugar coating.
A few things that I have learned over the last 15 years (from doctors and NP)...and I do not intend to be the bearer of any type of news...as I am not a doctor or nurse, just have been through ALOT with our daughter...but these are facts >>>
1) Your son has now had 3 seizures, that you are aware of. 2 or more seizures is cause for concern and is by most doctors considered a seizure disorder. Whether it be light sensitivity, illness etc. There is a reason somewhere that his body triggers into a seizure, and needs to be investigated.
2) Seizures that are left uncontrolled (no matter how "minor") can cause more problems down the road. As time goes on, pathways are created that can make having another seizure that much easier for the brain. Seizures can also "extend" and begin to include other parts of the brain as these pathways continue to be created. This was shown to us by our Epileptologist through EEGs and VEEGs.
3) It doesn't surprise me that your son had a seizure at camp. If he is indeed photosensitive, the woods or campground would be the perfect place for something to happen. All of the sun trying to come between the leaves of the trees (and as the trees sway and move causes the filtered light to move/flicker more), the glare/glistening/reflection of the sun on the pool or lake water, the movement of the clouds across a sunny blue sky...etc. These are all irritants of the photosensitive person. Same with COMPUTER screens, TVs, videos games, disco balls, camera flashes, strobe lights, and flourescent lighting in stores and schools.
I would contact your doctor and set up an EEG as soon as possible. If school is out, it is the PERFECT time to get a jump on things, before the new school year starts. I would request the "sleep deprived" version of the EEG. And it sounds as though they really need to push the photosensitive part of the testing. Our daughter had no problem with lighting conditions during EEG testings, everyone is different.
Stress is another factor in having seizures. He may be worried that he has had 3 now and may have some anxiety, which does also go hand in hand with seizures. Lack of sleep, change of environment, and broken glasses could also have caused a low seizure threshold, but the point still remains...he has had 3 seizures now...for some reason. I know it is difficult to deal with, I was there for a LONG LONG time. But modern treatments for Epilepsy are SO different, even compared to 15-16 years ago! Many doctors believe in the least amount of medication, with the least amount of side affects to treat the seizures the person is having.
All my best to you and your son and if you have more questions, please post...