Does Anyone Have As Many Peti~mal Fits As Me? - Epilepsy Message Board

PINKY1 · 08-09-2006, 05:25 PM

HI, IM TRYING TO FIND OUT IF I'M RARE AS I HAVE ON A GOOD DAY ABOUT 50 PETI~MAL SEZIOURS A DAY AND ON A BAD DAY I HAVE THEM EVERY 20 SECS OR LESS

ON A BAD DAY I CAN'T STRING THREE WORDS TOGETHER. (LITRALLY)
I AM JUST TRYING TO FIND OUT IF THIS IS RARE OR QUITE A REGULAR THING?

PINKY1

neurowreck · 08-09-2006, 06:33 PM

Sounds like you need meds adjusted, and to see your neuro....

PINKY1 · 08-10-2006, 05:20 AM

Quote:

Originally Posted by neurowreck

Sounds like you need meds adjusted, and to see your neuro....

HI IVE HAD EVERY MED YOU CAN THINK OF. IVE ALSO HAD THE VNS FITTED WHICH IS NOW SWITCHED OFF. I AM CURRENTLY ON DEXADRINE WHICH DOES HELP A BIT,BUT IM LOOKING FOR ANYONE WHO'S IN A SIMILAR POSITION WHO MIGHT BE ABLE TO UNDERSTAND HOW I FEEL.
PINKY1

mbarletta · 08-21-2006, 02:55 PM

Quote:

Originally Posted by PINKY1

HI, IM TRYING TO FIND OUT IF I'M RARE AS I HAVE ON A GOOD DAY ABOUT 50 PETI~MAL SEZIOURS A DAY AND ON A BAD DAY I HAVE THEM EVERY 20 SECS OR LESS

ON A BAD DAY I CAN'T STRING THREE WORDS TOGETHER. (LITRALLY)
I AM JUST TRYING TO FIND OUT IF THIS IS RARE OR QUITE A REGULAR THING?

PINKY1

Hi, they say my son, who is 7, was having 100's a day. He has tried 9 medications and is now on 3 meds 3 times a day. He still has 1 an hour on a good day and on a bad day has clusters every 15 minutes. As parents we are frustrated and running out of medications to try. You are not alone.

tatie · 09-27-2006, 06:06 AM

hi iam 28 years old and at the moment going through a bad spell i dont have as many as you .....
no where...
but mine work differently.......
sometimes i can have a very mild one go on and off for hours and i dont notice until i do something stupid like look for the milk and i cant find it cause i placed it in the pantry the last time....
some days i will have several .......
some days none....
sometimes weeks with none..........
then i will have a few days in a row where it is hell....... one after the after the other..... in a loop......
I can have more severe ones where they are more then just absentee i have been absent for up to ten mins sitting or jolting standing........

I am on four meds....... topamax tegretol cr, tegretol and lamictal,
and still it is happening.....
i am looking at being cased for surgery