I am on Tegretol XR and lamictal. I've had epilsepsy for almost 20 years now. I've been on tegretol the entire time and lamicatal only half the time. ANYWAY...I want to get off of tegretol. I want children someday (tegretol is one of the seizure meds that is not good for a fetus) and since it's metabolized by the liver I'm paranoid about liver disease later on in life. My doctor wants to take me off of it too. I was on it for GM and then got diagnosed with partial as well 10 years later so they put me on lamictal with my tegretol. I had just went 16 months seizure free but forgot my meds the other day and had one. (partial) I've been free of GM's for years now. I'm scared though! Obviously it would be a slow process that would take a couple of years...but I am deathly afraid of having a seizure. I only have both the GM and partial at night but what if they turn into day seizures?
Anyway...has anyone gona off of Tegretol before? Whats happened? How did you feel? Help! lol
i was on tegretol for about 13 yrs and the i switched to topomax. i started having more seizures on the topomax so ive been switching meds for about 6 monthes and now i just started on depakote. so i guess my transition didnt go that smoothly but my doc said that tegretol doesnt work for the seizures i have. as far as how i felt i felt fine. i never really had any side effects, but i started on it when i was so little that i dont remember not being on tegretol. i didnt notice any changes going off the med, no withdrawal symptoms or anything.
i hope you do ok w/ the change and no additional seizures come.
One time coming off Tegretol/carbamazepine, I got really irritable and grouchy over stupid stuff....am back on it now, and had to taper it very slowly that time I went off of it to go on something else.
So going off Tegretol made you grouchy? I've been on it for so many years who knows how it affects my personality! I talked to my Dr. today.. I'm going to go from 800mg a day to 600mg. I'm a bit nervous, but I know it's time. Hopefully I can just be on one drug (my lamictal) and thats all I'll need.
I was horrible- getting upset at stupid things, but realizing the overreaction at the same time, feeling I was going nuts. I wasn't on that much at the time, and am sensitive to meds in general- others taper off fine....
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