I have partial complex seizures and getting ready to do a wada test which shuts down part of the brain and sees if the other part can function without it has anyone done this test before
I almost got through the WADA test but the tech got the cathador up to my coriodid artery in my neck and they found some blockage. The part of the test I went trhough wasn't a big deal. They give you an injection of a local anistetic on the inside of your thigh and put the cathador in. The biggest thing was laying still for a few hours after to make sure the artery didn't bleed. The actual test, I didn't get to. I wish I could tell you more. Good luck.
Hi roxieb-I'm new with this-so be patient with me. I saw your comment on the wada test. I had one in Jan 2002-Iwas scared at first-all the neros that were working on my case were great-it was a easy test-they learn alot-yes you have to lay still for a while-just like someone has to do after a heart cath. The Dr. that did the test found out alot-about when the damage took place-how the opposite side of my brain took over. I went threw so many tests before they wanted me to do this-changed my meds-the time I took them-lots of EEG-MRI-CATand blood tests. All of this was worth it for me. I had surgery in May 2003-have been seizure free since Sept.2003!! ! I know you may of had the test since you posted this- but it will help them so much!!! Cheri
I recently joined this web site and find it very informative.
I have had complex partial seizures since the age of about 7. I wan't aware, at that time, I was having seizures (no aura). It was about this same time that I remember having my first EEG.
Fifty one years later and after being on the merry go round of ASMs for 31 years I decided to become proactive in my care rather than reactive. It has made all the difference in the world.
Only because I did extensive research and demanded that a different approach be implemented did I find out the cause of my seizures, via an MRI. The MRI revealed trauma to my left temporal lobe from earlier in my life. After learning this I put two and two together and recalled how I actually received the trauma. It was about the same time as my first EEG. I was hit very hard in the head, just above my left ear, by a steel bar at a playground.
I have just undergone the extended VEEG for a period of 4 days. While being deprived of my full regime of medications and exposed to sleep deprivation, I finally experienced 4 seizures. The video confirmed my type of seizure as well as indicating that the left temporal lobe was the only portion of my brain registering abnormal activity during these seizures. This has been somewhat reassuring that the left temporal lobe appears to be the sole source of my seizures. I am scheduled to take the WADA test in less than two weeks.
Until I joined this site, I have been very concerned about the test. The doctor indicates I have a very high probability (90%) of being seizure free resulting from surgery.
I am still scared to death about the uncertainties and of my condition resulting from surgery and any potential burden I could place on my wife.
I will be in greater contact with this site and would be greatful for know of your experiences in this daunting process. Likewise I would like to be of assistance in any way.
The attitude I have adopted that seems to bring ease to me is that this is life and I should enjoy the ride.
Congratulations on taking the initiative to be your biggest advocate. As I have learned with my son, the only way to get results is too educate yourself and proceed to petition for what you believe in.
Although he is not a candidate for Brain Surgery(his seizures come from multiple lobes) I have done plenty of research on the subject in preperation for the possibility that he might have surgery.
Good luck with the WADA test and if they proceed with surgery, I wish you a seizure free life following the procedure!
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