sleeping seizures. I am so scared!! - Epilepsy Message Board

Denise Rozak · 02-17-2001, 09:19 AM

My daughter is 8. She has only had 4 episodes of " sleeping seizure" The very first one I took her to her dr. She seems to think that it is nothing to worry about. But the weird thing is, she is asleep when it happens and 90 % of the time comes out of it with light stimulation. She discribes the dreams she has and all include excitement, fear and anxiety. I have read up on it and it says that although it looks like a seizure it is not. Help me!!

Denise Rozak · 02-18-2001, 02:05 PM

well i really don't. but she shakes and drolles and when i call her name it takes her a second but she comes out of it. I read about night terrors and how they can look similar to a seizure, and i can tell you that her dreams are very vivid and even scary to listen to and she remembers everything after. maybe you can help me understand what this is.

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Look after yourself.

Denise Rozak · 02-23-2001, 07:43 PM

i took her to Dr and she seems to think that it is nothing but still wants her to get an eeg. i am so scared. should i be concerned. what do you think could be causing this.

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Look after yourself.

mctjhay · 02-27-2001, 06:52 AM

I have a 3 year old that has epilepsy. He woke up last October having his first seizure. I never noticed all the jerking this child does in his sleep. Until he had this spell. Know I have noticed that my 1 year old does just as much weird stuff in his sleep now that I pay more attention. I guess I never let it bother me before until I seen my 3 year old have his first seizure know I constantly find myself watching them. So maybe it's all normal. I think your body goes through all this jerking and gets ready for sleep. But both of my sons do the weird stuff too your not alone.

pha10100 · 02-08-2005, 01:48 AM

Ok just for the record my 6 year old son has this very same problem it started when he was 2.5years old. In that time he did have some 25 seizures while sleeping.
His EEG is abnormal and he was to a large extent drug resistant to tegratol, epilium and lamictal. In April 2003 he did have 3 seperate seizures each while sleeping. At the early stages of his attack I opened his mouth and found his tounge back in his mouth blocking his airway, I put my finger in to his mouth and removed his tounge and he gasphed for air. We went back to the specialists and was referred to an ear nose specialist, he did an xray and found my son had enlarged adeniods, they were removed and his epileptic condition has improved considerably with only one attack in 20 months.

Its my opinion that there is a direct linkage between epilepsy and sleep apena, where the sleep apena restricts air to the brain which subsequently leads to a seizure.
Any person suffering from siezures in their sleep should be checked for sleep apena to determine is this is where the problem is manifest.
regards pha10100