AAAAAAHHHHHH Crap. - Epilepsy Message Board

Piano · 05-22-2002, 10:50 PM

Hi, guys. Had a first-time experience yesterday:seizure at work. I was in the bathroom, but someone walked in on me. Also another fist-time experience: my hands and feet went numb & tingly. I've never had a seizure remotely like this before. I (think) I was aware the whole time, and it was so strange feeling. Pretty sure it's not my "normal" kind. Anyway, just feeling kinda crappy about it and wanted to tell you about it.

Piano

Kokopelli · 05-23-2002, 12:37 AM

thats like one of those deja -vu's piano weird huh theres like an aura? and your awake and watching whats going on but your not there.. I prefer those over the grand-mals to be honest seems lately I been really tearing myself up with the grand-mals.. I remember my first experience at work hon it was frightning as when I came to the train was sitting there I guess they had pulled off the white line and the train had to stop that was embarrasing girl but they did the best thing they could do and that was pick me up and carry me on the train that day .. imagine if I went home? I probably would have never gone back. but I lived and I don't care what others think if I want to do something I am going to do it .. You need to be just like that Piano never worry

Kimba523 · 05-23-2002, 02:15 AM

Piano, Hi. I'm a *newbie* Your work-seizure experience sounds like my complex partials. I have those alot when I forget my meds. I always end up in the bathroom whether I'm at home, work, or out to dinner. I guess I subconsciously consider the bathroom a "safe haven" for it's usually empty. They seem to part more quickly if noone is around because that's one less thing my brain has trying to register.

Lisa T · 05-23-2002, 07:08 PM

I'm right there with you. I was really scared at work. Most everyone has been pretty cool about it though, always have a jerk though. I actually had one person tell me they wish they would of been there so they could of seen what I do when I have a seizure. I simply told them they needed to get a life and walked away! What an idiot. Everyone else just asked me what they should do if they see me go into one. I'm still having a little of the embarrassment problem. I know I can't control it, but still......

I was also in the bathroom. How come we all feel so secure there?? How have they been treating you since then?

Take care guys!!!!
Lisa

Beth's Mom · 05-23-2002, 08:52 PM

Piano -So sorry you had one at work...didn't you say you just started on a new med?

Lisa T.- I am always grateful when people ask about Beth and her seizures and even don't mind if they see her have one because I want them to know what horrific things they are for people to have in their lives...you never know when someone will decide to step in and help the next time they see someone having one, go into a research or medical career, or at the very least donate money toward epilepsy research.

Sometimes in my own weird way I liken them to seeing aliens from outer space...if you have never been around them you tend to not believe in their existence.(No, I have never had an encounter!). It was a long time before my family ever saw Beth have a seizure, since they live a state away.---They were saddened to see what she goes through but have more compassion and understanding for us when we can't join them. They also try to give me any info they might hear about research, etc.

Then again, this fellow employee who mentioned he was sorry he missed seeing the seizure could have been a total loser...and I am not the one having seizures so I should not dare to speak for you and your feelings.

KoKo...sounds like you got your Groov back, girl!

Marilyn