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Hello, I am new to this board. I would like to give a little backround on myself. I was a normal kid until age 14 when I started having seizures. The doctors called them speech seizures because I would black out and started talking funny. I had surgery in 1986 to remove a cyst from my left temporal lobe. Everything was fine until Nov 2001 when I woke up with EMTs standing around my bed. I was told I had a Grand Mal seizure and my then wife called 911. I was taken to the hospital, checked out and released. I started seeing a Dr at the Mayo clinic because I live near Rochester and was put on 300 mg of dilantin a day. I was ok for a while (I had a couple small seizures, but nothing significant) until Nov 2001. I was driving home from my daughter's parent/teacher conference when I was involved in a very serious car accident. I was told it was a seizure that caused it, but am not sure. I severly broke my left foot (my dr said most patients with a injury as severe as mine lose their foot) and broke my left collar bone, but looking at my car, I was lucky that was all I got. I had another visit with my Dr, did a sleep deprived eeg, and was told that I had the beginnings of a seizure which he said is rare during an eeg. He put me on Keppra along with the Dilantin. I am currently on 1500 mg of Keppra twice daily along with 400 mg of dilantin. I am still having seizures. I can have 7 in one day, then go a week or longer without having any. My girlfriend says my seizures are normaly just a blank stare or I will start talking funny or talk but make no sense (ex. I asked my daughters one time who they were). I am currently not working because of the injury to my foot and my doctor says I will probably never be able to have a stand up job again because of the injury. I have always worked in the automotive industry, so I have always had a stand up job.
Is anyone aware of any help I can get? I am trying social security, but they are saying I am not disabled enough not to work. It is very frustrating, becuase I never imagined that at 30 yrs old, I would be walking with a cane or crutches, having seizures, and not able to work.
I am very sorry for the long post, but it feels good to get some things off my chest. I hate unloading on my girlfriend or family members all the time. Thank you very much