It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Epilepsy Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 06-25-2002, 09:53 PM   #1
Junior Member
 
Join Date: May 2002
Location: toledo, oh, usa
Posts: 22
PatM HB User
Question Stigmas

I am trying to help a group document different stigmas.
I need help identifying these preconceived notions.

 
Old 06-26-2002, 05:31 AM   #2
Junior Member
 
Join Date: Jun 2002
Location: Garland, TX USA
Posts: 11
casandria HB User
Post

I wish I could help, but as I've just recently been diagnosed and most of the people I've told don't even know what it is, I'm unaware of any.

 
Sponsors Lightbulb
   
Old 06-26-2002, 08:54 PM   #3
Veteran
(female)
 
Join Date: Apr 2002
Location: VT USA
Posts: 450
Krazykcio HB User
Post

Along with the stigma of having epilepsy, I think we all deal with the public's fear and lack of education surrounding seizures. Let's face it...seizures (especially grand mals) are very frightening. I remember how frightened I became every time one of my student's had a seizure. Once I knew how to help these kids I found it much less stressful. Now that I suffer from grand mals myself I pray that I never have to put someone in the position of having to witness them. I'd much rather be alone than to make someone nervous. I have tried to educate my friends, co-workers and family members, and have left the decision of whether they want to call an ambulance if I have a seizure up to them. This way they can make sure I'm ok without actually having to deal with taking care of me if they aren't comfortable.
Yes, the stigma of "E" is pretty strong, and I'd like to think we are making some changes. (There was a time when an epileptic child and his/her "fits" were well kept family secrets.) Now, with the American Disability Act, employers can't legally discriminate against us....but we all know the horror stories about the lame reasons many of us have been given in order to keep us off the streets and timeclocks. I could go on and on.... Hope this answers your question.
__________________
When Mamma ain't happy ain't noone happy!

 
Old 06-27-2002, 09:59 PM   #4
Junior Member
 
Join Date: May 2002
Location: toledo, oh, usa
Posts: 22
PatM HB User
Thumbs up

Thanks Krazy, responses like yours will help me help others to understand how it feels to be isolated.
thanks again

 
Old 07-04-2002, 01:25 PM   #5
Senior Member
 
Join Date: Apr 2002
Location: Springfield, MO USA
Posts: 120
Piano HB User
Post

The last time I went to an opthamologist, he dialated my eyes and was shining the colored lights into them (I'm sure you know what I mean). His nurse came in and her eyes got big and she said, "Doctor, she's an epileptic." The doctor jerked back so fast I'm surprised he didn't end up with whiplash. I think he was afraid he was going to induce a seizure, but I felt like a leper.

Piano

 
Old 07-11-2002, 09:13 PM   #6
Junior Member
 
Join Date: May 2002
Location: toledo, oh, usa
Posts: 22
PatM HB User
Wink

thanks piano, doctors should be more educated on how their reactions effect patients. unfortunatly it is only by being in our situations that anyone can really appreciate our problems. a trained group consellor from my center is a fine example of this. she had spent years in college learning how to help others, but when she witnessed a group member experiencing a complex partial seizure at one of the meetings she freaked out.

[This message has been edited by PatM (edited 07-12-2002).]

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
How many of you suffer b/c you're too afraid to ask for more pain meds. IZZY'SMOM Pain Management 31 02-26-2008 05:18 AM
This is why I get frustrated and stressed out from my parents (long post) keyboardplaya Depression 21 06-14-2007 07:14 AM
daughter post chemo but having problem suezav Family & Friends of Cancer Patients 11 08-08-2006 03:36 PM
Speaking of dishonesty in relationships.... Banana Split Relationship Health 44 08-23-2005 05:46 AM
SOME JUSTICE GAINED FOR US....read here darkangel Acne 60 10-09-2003 05:49 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



030free (19), 92261 (11), Positive Cynic (9), Travis from MN (6), Nicole K (6), heyloe (5), cardshark (4), neurowreck (3), dogmom (2), webartethan (2)

Site Wide Totals

teteri66 (1162), MSJayhawk (991), Apollo123 (890), Titchou (826), janewhite1 (823), Gabriel (757), ladybud (742), sammy64 (666), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 11:07 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!