Can anyone tell me what is the most common medication prescribed for simple complex or partial complex seizures? My daughter takes topamax now, 400mg per day, but has started having the partial seizures just recently. Just wondering what the most common medication is that is the most sucessful in treating this type of seizure.
I have been having these for 2 yrs they started me on depicote then canged to tegitrol now Im on carbatrol 2400mg & lamictal 300mg a day sounds like alot but they move you up untill they find the right dose to control things so have faith they may try several things to get the rigt stuff
I was wondering if you could tell me what you do in your seizures? I was told that i have complex parital, but i never really belived them.I have not talk to any one who has them. Would like information on it.
Layne - I can tell you what my daughter does when she has the complex partial seizures. At first she wouldn't tell anyone because she thought she was going crazy, then when she finally did tell me I had remembered reading something about it regarding the different types of seizures. She called me one morning at 6:00am, she thought it was 6:00pm the night before. She e-mails people, makes phone calls, changes her clothes many times, she also thinks there are other people talking in the other rooms (she lives alone so I can only imagine how scared she must get), it sounds to me as if it's almost like sleep-walking. The next day she remembers parts of it, but unless someone says something to her about her e-mails to them she doesn't remember them. I finally convinced her to call her neurologist to let them know what is going on, she will be seeing him tomorrow. Right now she takes topomax 100mg, twice a day so I'm sure he'll be changing her medications.
Originally posted by darlene: Layne - I can tell you what my daughter does when she has the complex partial seizures. At first she wouldn't tell anyone because she thought she was going crazy, then when she finally did tell me I had remembered reading something about it regarding the different types of seizures. She called me one morning at 6:00am, she thought it was 6:00pm the night before. She e-mails people, makes phone calls, changes her clothes many times, she also thinks there are other people talking in the other rooms (she lives alone so I can only imagine how scared she must get), it sounds to me as if it's almost like sleep-walking. The next day she remembers parts of it, but unless someone says something to her about her e-mails to them she doesn't remember them. I finally convinced her to call her neurologist to let them know what is going on, she will be seeing him tomorrow. Right now she takes topomax 100mg, twice a day so I'm sure he'll be changing her medications.
Hi Darlene! Thank you for the information on the complex partial seizures that does not even match what i do.I do not go out i am alert at all times that sounds like the type my sister has and they told her it was (physcmotor) can't spell it sorry. She will dance, clean, hide stuuf etc.When she comes out of one she does not remenber anything unless we tell her.I have the grand-mal but i never did believe that i had the complex partial seizures. I feel i have another type cause of all the Aura i have, but i don't go out.I take 4 Dilitian and 5 Depakote a day.
For my Complex Partials:
Depakote...after my first breakthrough they added Tegretol. It caused extreme legarthy and breakouts so they stopped that and added Dilantin. It caused my Asthma to go berserk so that was halted and they added Neurontin. After a few years I was fed up with the severe weight gain so they took me off of those and put me on Topomax and Lamictal. Also, because a majority of my complex partials happened around my menstrual, they prescribed the Depoprovera shot. Soooo, those are ALL meds that go hand-in-hand with Complex Partials but, they are not for everyone...as you can see.
Layne - My daughter went to see her neurologist and told him about what is going on with what we thought sounded like the complex partial seizures. He says he doesn't think it is, but yet everything I read about them it sounds just like them. I mean what else could it be if she's up and doing things and doesn't remember them?? Like sending e-mails to people, changing clothes, hiding things, hearing music or talking in the next room. Anyone have any ideas??
Originally posted by darlene: Layne - My daughter went to see her neurologist and told him about what is going on with what we thought sounded like the complex partial seizures. He says he doesn't think it is, but yet everything I read about them it sounds just like them. I mean what else could it be if she's up and doing things and doesn't remember them?? Like sending e-mails to people, changing clothes, hiding things, hearing music or talking in the next room. Anyone have any ideas??
Seizure's causing Visual & Auditory Hallucinations...?
I have just registered to this site and this is the first time I have replied to messages on a board so please bear with me while I find my way around.
I live in New Zealand and after reading Darlene's letter I wanted to reply to that in the hope that she or someone else may be able to help me with my 10 yr old son. He has severe CVD (Colour Vision Deficiency), single vision with shadows/double vision. He has had his eyes tested by an Optomologist, Paeditrician, Paediatric Neurologist and an Eye Specialist. The Optomologist diagnosed him with CVD, but can't seem to find much else wrong with his eyes, even though he sees double and shadows around objects. His vision had been like this for about the last 2 years. 3 weeks ago the Paeditrician and Neurologist examined him and think that he may have some sort of abnormality in the back of his brain and may be having some type of seizures causing visual and auditory hallucinations. He has had a CAT scan which was normal and has been referred for an EEG. He sees things that are not there. A couple of exmaples of this is, about 3 months ago at KFC he asked me what flavour was my ice-cream. I did not have an ice-cream and neither did anyone else sitting at our table. About 2 months ago he was sitting in the front passenger seat of the car while I was driving and he told me he saw a green car turn in front of us and that it flashed across his mind in segments. I did not see any car at all. The neurologist said it was a hallucination. He thinks that these hallucinations are a totally seperate problem to the problems with his eyes. Yesterday he was tested by the Eye Specialist who says he has a very sensitive Retna and his eyes are very healthy, that he is a keen observer and has an active imagination. (that was his explanation for the objects my son has been seeing, that no-one else sees). 2 weeks ago we shifted into an old house. I heard, before and after we shifted, that the house has a history of ghosts. I kept this very quiet with my son and did not tell him as there has been a ghost seen in his bedroom in the past. However, he did overhear me talking about it with someone. While he has told me of "seeing" a ghost about 2 months ago, at our old house, for the last week he has told me of seeing a ghost one night standing in his doorway, and this past weekend saw 3 ghosts one night in his room and 2 in the hallway. He also saw a pair of hands floating around the room and saw something with tentacle's creeping along the floor by his wall. Some of these ghosts were small, the size of a child, white in colour, although the man he said he saw standing in his doorway last week was fully clothed, with "lots of teeth missing". While no-one else in the house has seen this my partner and I have heard "noises" coming from his bedroom that we can't quite explain. Another problem is that on either side of our house there are 2 power lines with 6 lines between them which hang in front of my son's bedroom. The house is top-storeyed and his bedroom is upstairs and in the middle of these lines. After putting him to bed a few nights ago I happened to notice that his skin felt rubbery on his face, arms, neck etc and I could feel vibrations in my hand from his body. After realising his electric blanket was switched on we turned it off and the vibrations were gone. Turning it back on again the vibrations were back, etc. I have since spoken with my Paeditrician as I am confused about the whole situation, at present I am waiting on him to call me back. He feels that it would make no difference if I changed the position of my son's bed in the room as I was concerned about an electricial field from the power lines interfering with his brain function. He feels that my son may be having some type of seizure which is causing visual and auditory hallucinations/disturbances, as he has also heard noises which nobody else hears. The Paeditrician described this to me as a person hearing a string quartet or a radio playing in a room when there is not. I know that my story sounds a bit bizzare and complicated but I was hoping someone can reply to me and maybe give me some information if they have had a similar experience with this type of seizure. I do not know much about this kind epilepsy. I look forward to any replies. Thank-you for your time.
i know this message is a little late and i hope you get it. but i wanted to tell you to keep searching. I am no doctor but it sounds like it might a nuerological problem.
I have been having seizures for about 2 and a half years. Ive been to see nuerologists, the ER, have had CT, MRI, and EEG scans and all comes up normal. This was all caused by an accident where i was hit in the head and knocked out.
But I was finally diagnosed with epilepsy 2 days ago. And it is such a releif(i guess). At least i know what is happening.
The main point I want to get across here is that you need to be supportive of her because i know she is scared and to just dont give up like i did for most of the time i didnt know what was happening.
Hello Darlene, i'm a 35yo female & 'knock-on-wood' have been seizure-free for 4 1/2 years. I had surgery to correct my problem; frontal-lobal-lobectomy. I suffered from all types of seizures, petit-mal, complex/partial, grand-mal, absence, etc. since the age of 5 or 6. as I got older the type & frequency would change. in my case they became more frequent & scarey. I belive my seizures were related to my menstral cycle, I would have them every month right before I would start my period. I experienced Complex-Partial the most & tried every medication out there. I felt like a guinea pig always trying new meds but I realized everyone's brain accepts things differently & what works for you may not work for others so you need to keep trying different ones until you find the one that helps you. Dilantin gave my the least side effects & I preferred taking it over others.At the time of my surgery I was taking: 300mg Dilantin, 200mg Topamax, 400mg Neurontin a day! but still had seizures every month. after years of doctors ,tests & pills, my doctor said some people just are not effected my seizure meds & I happened to be one & suggested surgery so I said "sure, why not, maybe I can drive again" so here I am happy & healthy at last.
[This message has been edited by DennyHanna (edited 07-13-2002).]