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Old 07-31-2002, 06:38 AM   #1
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dstock11 HB User
Question Cold sores and Tegretol

This is my first time on seizure meds. I have been on Tegretol for 3 weeks now and am experiencing cold sores in my mouth - tongue, roof and sides of tongue. Tired but doing better on this med and docs say I will get use to it. I am on 200mg twice a day. Anyone have this problem? Will it go away?

 
Old 08-01-2002, 03:47 PM   #2
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I took a lot of Tegretol n my life, and I also had cold sores, fever blisters. I always attributed it to a decrease in my resistance since a fever blister is really herpes simplex and once it is in your system, it lives in the nerve endings. When there is a dearease in resistance, the herpes can raise its head so to speak. I am not awre of Tegretl causing a decrease in resistance, but thefact that it does affect brain cells, it just may have ab affect on other nerve cells as well. I donot know this or a fct however. something else to consder is what effect the Tegretol hs had on your physical status be it in change in sleep or eating habits etc. Those can also cause one to be more prone to developing fever blisters/cold sores. They also appear in times of Stress as well so may be there an added stress of some sort on your body whether it be due to Tegretol or not. The changes in eating, sleep, etc are added stresses in a sense. The body has to adjust to that. Give it some time for your body to adjust just like the med is gradually being increased so you adjust to it. Maybe you will niotice a decrease in the cold sores. I would want my Epileptologist to be aware, however. Tattoo

 
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Old 08-01-2002, 07:02 PM   #3
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Thanks for the response Tattoo. I spoke to my Neuro yesterday and he took me off the Tegretol and put me on Trileptal. He was concerned that it could be an allergic reaction. What you said does make sense and I read that Tegretal can bring down your immune system and make you susceptible to infections. It just gave me a washed out/drained feeling (like a viral feeling) along with these sores. I could handle and was getting use to the Tegretal fatigue too. So back to square one with a new med and getting use to it. From what I understand it is from the same family of meds. Doesn't sound like any of them are perfect... everyone has their own reaction. If they keep you seizure-free and you are handling it ok... that's the important part, I think.

 
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