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Old 08-03-2002, 05:49 PM   #1
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emeraldbee HB User
Question sleepwalking and seizures

Does anyone have information on a relationship between sleepwalking and nocturnal seizures?
Case in point...
I went to bed at my usual time, awakened IN MY BED (I hope that's not cursing) with a badly hurting shoulder. I could not find my eyeglasses, which were normally left on the nightstand next to the bed. I drove to work,(without glasses) but the pain was becoming hard to bear, even with Tylenol. A friend dragged me to the hospital where two things were confirmed, a) I'd had a seizure during the night (I had developed a pattern of nocturnal seizures every six months)and b)I had a broken ball and rotator cup, as well as dislocated shoulder. There was also a lump the size of a small bird's egg on my forehead. The shoulder was set and surgery scheduled for the next week. No one could figure out HOW the shoulder got broken on a feather bed.

The eyeglasses? Behind the bathroom door, fifteen feet down the hall.

 
Old 08-03-2002, 10:17 PM   #2
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This does ring a bell. My first seizures were nocturnal and muc later i would have a simple partial as I was just about t fall asleep. Then after that, I discovered I was sleep walking. My Epi is the one who told me that I was seizing during sleep and walking always one way my sezures manifested themselves. I woke up on top of the washer/dryer once during the night and do not know how nor why I was there. I tried to say that maybe I was on my way back from the bathroom and thought I was getting up, but nothing made any sense. I have awakened on the sofa in the living room after having gone to bed at the other end of the house. I had the TV and lights on just as if was the morning and I just had gotten up. Since I was totally unaware during those incidents, they were determied to be Complex Partial seizures. In other cases I have had to piece together the after effects like in your case your glass being where they were and your shoulder broken in order to figure out what actually did happen just as you are tryng to do. So, yes, I do know what you mean, and sleep walking for me was a seizure. Never sleep walked prior to that. Tattoo

 
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Old 08-04-2002, 07:23 AM   #3
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Hello, Tattoo
Thanks for the info. Although the incident happened three years go, I have always wondered how it could have happened in the first place. The only good thing to come out of it was that it forced me to accept the fact that I had a serious illness going on. Prior to the break, I had been ignoring the seizures. I only knew that I was having seizures because I had told my sister, a nurse, about one of my nocturnal events (i.e. wet bed, bitten tongue and feeling like I had been run over by a truck about 24 hours later)and she told me she thought seizures were the cause. The weirdest thing is that I could almost have predicted the event as my seizures had progressed almost like clockwork; 4/26/97, 11/27/97, 4/27/98, 11/25/98 and then the big one 4/28/99 that broke the shoulder. The only thing Dilantin has done is break the six/seven month pattern to make the seizures more frequent. Because i live alone, i don't know if I've been sleepwalking since. Certainly nothing as dramatic as you've reported. However, I obviously return to the comfort of the bed anyway. Again, thank you for your response, this website is proving a Godsend.

------------------

 
Old 08-04-2002, 12:23 PM   #4
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Do you see any relation to the time your seizures are occurring and the time of the month? Do they seem to be happening near the onset of your period or any other consitently ocuring event? One is more vulnerable to seizure activity at that time due to the hormones involved. My Complex Partials always seemed to occur just prior to my period when the estrogen level is highest and the progesterone level is lowest. By the way, the wet bed also rings a bell. Try and keep a record of when all events occur as well as what else is going on like period time, lack of sleep, more stress, illness, etc. That helps you and you doc paint a clearer picture. Do you keep a calendar of these events? I have for many years. It helps when the doc asks you about your seizues. Tattoo

 
Old 08-04-2002, 03:57 PM   #5
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Tattoo,

The seizures are pretty much sticking to the end of the month, literally. The most recent two occurred the nights of 6/30 and 7/31. The periods had ended about 4-5 days prior. One of these boards, talking about times, had a reference to phases of the moon. I'm wondering if that might have something to do with things. With a pattern like this my doctor is bound to wonder if i'm making things up. The reason I did not go to the doctor in the beginning was that the dates seemed almost like anniversaries http://www.healthboards.com/ubb/bang.gif

I've been keeping track of the seizure dates on my calendar. I think I may start keeping some notes about the events as well because after the June event I was confused and disoriented for two weeks http://www.healthboards.com/ubb/dizzy.gif http://www.healthboards.com/ubb/bang.gif. I thought I would lose my job. Luckily, I have a wonderful boss, but he won't stay wonderful forever.

My real concern, though, is why this medication appears to be having no affect, in fact it seems to be making things worse. Kim told me to get another doctor and I think I'll have to. See you around the boards

 
Old 08-05-2002, 03:00 PM   #6
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Hi again. My first med was Dilantin. That was 1965. It did not help a bit, and really Dilantin was not made for Complex Partial seizures. If your diagnosis is Complex Partial, I am not sure why your doc chose Dilantin in first place. There are several AEDs that are specific to Complex Partials and the newer AEDS are also for Complex Partials. If your doc is not in Epilepsy Specialist, Epileptologist, at a Comprehensive Epilepsy Center, or if your doc treats other neuro conditions besides epilepsy, I strongly encourage you to find a good Comprehensive Center. I think I posted a thread called How to Find A Doc/Facility. The points mentioned are great for a guide in determining which Centers may provide you the best care. They are not all alike and not all provide good patient care. You want one that is patient oriented and has the patient as Priority, not research first. I asked all of those questions when I went to the Facility I now use. The sooner you get to a Comprehensive Center, the better for you all the way around. I cannot stress this strongly enough. Tattoo

 
Old 08-05-2002, 05:52 PM   #7
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Hi, Tattoo,

This explains much. My doc is a neurologist. My 'official' diagnosis is "Stress-related Seizure Disorder". I decided to do a little investigation on my own after reading some of the articles on Epilepsy (not to mention the fact that I can't be that stressed http://www.healthboards.com/ubb/bang.gif). I've been getting more and more worried that I'm not getting the right treatment. I may have mentioned already that I'm already up to 500mg of Dilantin and have had two more seizures June and July. And they ain't pretty! I'll start looking around for a specialist, and thanks for the help, your are truly tuning out to be my guardian
See you 'round the boards!

 
Old 08-06-2002, 07:46 AM   #8
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The diagnosis you gave or your doc gave rather only says that stress triggers your seizures. Stress DOES trigger siezures, but that is not a typical diagnosis. It is rather a triggering factor. That sounds like similar to a 'diagnosis' of sugar related hyperglycemia. No such diagnosis but more of a trigger and effect. A diagnosis of epilepsy is usually defined by the type of seizures it produces, as in Complex Partial, Absence, etc. there are triggers for seizures and some are common with most people such as stress, lack of sleep, hormones, certain foods/chemical aditives, etc. You may find variations among those, but some are rather common.

 
Old 08-06-2002, 05:13 PM   #9
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Thanks,
the key is that i'm armed with more information than before and that's what REALLY counts.

[This message has been edited by emeraldbee (edited 08-06-2002).]

 
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