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Old 08-11-2002, 05:01 PM   #1
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Tripletsand1 HB User
Question Abnormal EEG -What about meds?

I was wondering if anyone had any advice for us. My son (age 8) has Asperger's Syndrome (like mild autism) and mild cerebral palsy. We've been noticing that he is having frequent staring spells and decided to do an EEG to try to rule out absence seizures. Two regular EEG's were normal but the 24 hour EEG picked up abnormal spiking in the temporal lobe while he was sleeping (staring spells turned out to be nothing). I'm getting conflicting information from docs on what to do about this. Our pediatrician feels that it would be worth doing a trial of anti-seizure meds, even though we didn't catch any seizures. She feels that maybe some of his other issues could possibly be related to this problem and that he could still have an underlying seizure disorder that we didn't pick up. The neurologist doesn't feel that he would gain enough benefit to outweigh the side-effects of the meds. Has anyone done a trial of meds without having a full blown seizure disorder? Thanks in advance!

 
Old 08-11-2002, 09:12 PM   #2
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Mommeee HB User
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I wish someone had looked much closer at my staring spells when I was a child that they thought were "nothing". I didn't have my first full blown grand mal seizure until I was 19 years old. Even now my EEG when I am off meds only shows minor spike and wave activity that isn't always caught in every EEG and would not be caught unless they do one that is "sleep deprived". I also work with children and adults with developmental disabilities and can definately understand you not wanting to medicate your child unnessesarily of course. Are there any other issues? Sleep problems for instance? Behavioral issues? These things might also point to seizure activity.

 
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Old 08-12-2002, 05:35 AM   #3
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jkjk HB User
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I agree they should look closer into the staring
spells people have as a child and rather than say
nothing is wrong cause they do not see abnormality
in the eeg they should do MRI's and other testing
and look at it closer. Far to often they think
a psychological problem exist when in fact it is
seizure activity that if they stopped what they
see would also deminish and stop. Also some have
misdiagnosed seizure stare spells as ADD and put
people on things like ridilin which worsens the
condition and people who go thru this find in
their adult years they are worse off. Also the
failure to treat a case in childhood is nearly
a guarantee of worse more full blown seizures
in adult years where as if it were treated
proper in childhood years the chances of
seizures getting worse is far less. Untreated
abnormal electrical activity relating to seizures
gets worse and also spreads because the nature of
how the brain is effected by the abnormal
discharges and is also asking for things like
atrophy to occur in one or more areas of the
brain. I to didn't have a first grandmal until
17 or 18 but have had seizures since 8yr that
went untreated by many medical professionals
as a child and was given antipsychotics which
cause seizures as a child. every eeg shows
spikes regardless of how many hours I slept
before hand and an MRI shows right hipocampus
mesial temprol sclerosis and am just recently
starting to have problems with blood chemistry
that the neuro I see don't know what is causing
it or why it is there one prob has to do with
depleted sodium levels which in body chemistry
is part of brain chemistry and has to do with
inner cortex of brain chemistry where potasium
has to do with outer cortex and they interact
in a balancing of brain chemistry.


Quote:
Originally posted by Mommeee:
I wish someone had looked much closer at my staring spells when I was a child that they thought were "nothing". I didn't have my first full blown grand mal seizure until I was 19 years old. Even now my EEG when I am off meds only shows minor spike and wave activity that isn't always caught in every EEG and would not be caught unless they do one that is "sleep deprived". I also work with children and adults with developmental disabilities and can definately understand you not wanting to medicate your child unnessesarily of course. Are there any other issues? Sleep problems for instance? Behavioral issues? These things might also point to seizure activity.

 
Old 08-15-2002, 03:30 PM   #4
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Tripletsand1 HB User
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Thank you for sharing your experiences. I think we've decided to consult with a new pediatric neurologist.

Thanks again!!!

 
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