Im so scared...would someone please help? - Epilepsy Message Board

khorne · 01-15-2001, 09:05 AM

For the past 2 yrs.Ive experienced a sort of dizziness(for lack of a better word)thats very hard to explain. Drs said it was my middle ear,but after tons of tests we abandoned that idea & now believe its neurological. Ive had an MRI & an EEG& theyre both normal. But what Im really afraid of is the feeling I get in my head where it feels like theres too much energy &slight pressure...almost what I think it would feel like right before a seizure.Thank God Ive never had one (yet & hopefully never will). It drives me crazy & can last all day. Please, anyone whos had a seizure try to explain what an aura (as Im told its called) feels like.Ive started CARBAMAZEPINE (anyone taking this also?)& have an appt. with a neurologist nexy month. Any replies would be greatly appreciated. Im really freaked out by all of this. Thanks! Kristin

Rey · 01-16-2001, 08:45 AM

Kristin, I'm not taking Carbamazempine, but it sounds like everything than can and should be done, is and has been done or is planned. Although waiting is hard, seeing a neurologist is probably the best plan, but please relax(I know this is easier said than done, and I'm in that place right now), knowing that your EEG and MRI were normal. What's the saying, "Its always darkest before the dawn"?. I've just 'discovered' the internet and sites for with bulletin boards and chatrooms which can help bring peace of mind galore. I hope you can find peace. If needed, please phone your doctor or his nurse, and let him/her know the anguish and concerns you feel.
Annie

Rey · 01-16-2001, 09:08 AM

Kristin, I'm not taking Carbamazempine, but it sounds like everything than can and should be done, is and has been done or is planned. Although waiting is hard, seeing a neurologist is probably the best plan, but please relax(I know this is easier said than done, and I'm in that place right now), knowing that your EEG and MRI were normal. What's the saying, "Its always darkest before the dawn"?. I've just 'discovered' the internet and sites for with bulletin boards and chatrooms which can help bring peace of mind galore. I hope you can find peace. If needed, please phone your doctor or his nurse, and let him/her know the anguish and concerns you feel.
Annie

Dazoo · 01-17-2001, 08:29 AM

Try not to worry too much. I know it can seem a little overwelming. I've been taking Carbamazepine since Aug 1996 and have had no dizzy spells or fits since and also lead a completely normal life.

------------------

terrib · 02-01-2001, 01:02 AM

Kristin:
I have experienced the same thing only twice as far as I know, but I definitely can relate to how you are feeling right now. But like you, all I felt was dizzy, a slight pressure at the back of my head (for me it became more painful as the episode progressed), and just feeling like you're fighting to keep yourself from going into a seizure. When I feel the pain at the back of my head, my body starts to stiffen and I feel short of breath, in my case, all the symptoms of a grand mal seizure ready to happen (but luckily it doesn't). Every time the aura (if that's what it is)manifested itself, I was in a very relaxed state. (on the verge of sleep)Hope this helps. You haven't had any seizures so far, so that's a good sign. Keep your chin up!

[This message has been edited by terrib (edited 02-01-2001).]