| | Phenobarbital, nocturnal seizures
I had my first seizure ever in October of 2000. I had just quit taking Paxil for 3 months and went off of it cold-turkey. My "sample pack" ran out and I didn't want to be 27 years old and already on a daily regimine of prescription pills. Paxil also clouded my reality and made everything "seem" better when really my problems were still there. Three days after I quit, I had my first seizure ever. I wonder if the Paxil started this condition but that is another topic altogether.
I didn't go on any AED's at the time because I thought I would be lucky enough to be a single episode case because no one in my family has ever had epilepsy and I was having withdrawl symptoms from the Paxil. I eventually did have a second seizure, almost eight months later while taking no meds. I had auras for hours leading up to the second seizure and I had felt that weird feeling a few months earlier but no seizure. I didn't know what it was and I am not sure if I had auras warning me of my initial seizure as as was having withdrawl effects of the Paxil. Every seizure I have had since, I have had auras. One other time I was having auras in the morning so I went back to bed and woke up later and was fine. I never had "auras" or seizures before I took Paxil. I would say that 50% of my auras become GM seizures but I always have auras (so far).
Anyway, here is a list of the seizures I have had so far.
2nd-5/30/01-prescribed 400mg Dilantin
3rd-4/5/02-6:30 A.M. (woke from sleep) prescribed 750mg Depakote and slowly weened off Dilantin due to raised liver enzymes.
4th-8/11/02-9:30 A.M. (woke from sleep)
5th-8/11/02-1:30 P.M. (woke again from sleep)-prescribed Phenobarbital
All grand mal
When I called the Nuero and talked to the nurse, she said my Depakote level was fine and acted rather put out with a "I don't know what to tell ya" attitude. I told her the last three seizures I had were in my sleep and she said, "I'm going to go ahead and write you out a prescription for Phenobarbital." The prescription states to take it at night but I don't don't want to be on more prescription medicine. I have heard that Phenobarbital is addictive and eventually can cause seizures. I don't need more problems.
Should I take the Phenobarbital (1gm) every night before bed or should I just save them and take them when I have an aura? I have heard Phenobarbital is good at stopping seizures as they occur.
I am 29 years old currently and I pray that someday I "outgrow" this epileptic condition or at least get it under control. It is really taking it's toll on me mentally. I am scared to even leave the house anymore. The last seizures I had really took me awhile to recover from (around a week), but maybe that's because I had two GM's so close to each other. I felt really mentally drained and my memory felt washed but it is slowly coming back.
I don't live the most perfect of lifestyles either. I still occationally drink a few beers and I know this does not help my condition. I smoke pot frequently also. Having E doesn't want to make me do these activities less either although I know I should. It's actually quite the opposite. I have never had a seizure while drinking or smoking pot, but I almost always did the previous day before a seizure.
Also, the nurse said nothing about not driving. Can I still drive? Can you drive if your seizures are nocturnal? I live in the state of Missouri and the law here is 3 months no driving as far as I know but I have seen people in here that state that that does not apply to nocturnal seizures. I was only driving 12 miles a day to work and back and I think that will be the extent of my driving for the remainder of my days, or at least until I go a few years seizure free. I would never be able to live with myself if I hurt someone. I didn't ask the nurse 'cause she already sounded like she was going out of her way to help me. Kinda sucks cause I like my Nuero but his nurses need to either get a better attitude or get into a profession that they want to do. I quess everyone has a bad day every now and then. I havn't drove since I had my last seizures and I don't think I am going to for 3 months but I am just curious.
Anyway, any comments or suggestions about the Phenobarbital would be greatly appreciated as well as any other comments or suggestions anyone may want to make. I am looking for answers and suggestions.