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Old 07-24-2002, 08:27 AM   #1
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Smile Complex partial seizures

Y'all I'm from the South) have a great group here! I have a couple of questions. I'm 26 and have had several episodes where I have a strange tightness in my head and feel very uncomfortable and end up a little light-headed and confused. I lose a little time during this, but am aware during most of it, although it is in a "dreamy" like state. The neurologist seems to think complex partials are what I having. The CT, MRI, and 2 EEGs have been normal so far. I'm awaiting the results of a 24 hour EEG. This has been inching foward since April. Does this sound like something some of you have experienced?

Sometimes I also have twitching on one side of my body. It is not "jerking," just twitching--how about that? Is that normal? Sometimes I forget how normal really feels because I've been trying so hard to describe every sensation, hoping to help my neuro diagnose me!Thanks!

 
Old 07-24-2002, 12:28 PM   #2
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hi,
I have temporal lobe epilepsy,and I have complex partial siezures.Mine start with deja-vu,or a smell,a word or a tune,light flickering through trees etc.I then go dizzy and It seems I am dreaming,I get an undescribable sickness In my stomach,and my left arm hurts,i generally hold my arm and slump to the floor.i can't respond to anyone whilst It Is happening,and my wife say's I sometimes talk gibberish while this Is going on,I am very tired after this and sometimes fall asleep.I often get twitching In my left eye and right corner of my mouth,I also get muscle jerks In my arms and legs.So yes It Is normal to get all sorts of twitches with epilepsy,everyone of us are different so It will effect us In different ways.Hope this helps,all the best.
garry

 
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Old 07-24-2002, 12:44 PM   #3
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Thanks for your response. How about your emotions surrounding this?
I do not get emotional, but after one of these happen, I appear to others as mad or "in a bad mood". They say I'm not myself for a few minutes--that I can't laugh and seem in the moment. During that time I am trying to act normal and trying to figure out what the heck I'm doing. I do get sleepy but usually try to fight it off if I'm not in a convenient place for snoozing.

Are your twitches small? Mine are small--another person could feel them but not see them unless they looked carefully.

Thanks!!

 
Old 07-24-2002, 01:50 PM   #4
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hello again,
I get frustrated with my emotions,I can be laughing one minute and yelling in a flash,sometimes I hate everybody and am picking at people for no reason.My wife say's I am the most difficult person to live with.It's a good job she used to be a nurse,so she does understand,and generally leaves me alone when i am like this.I sometimes look In the mirror,and hate what I see,and wonder why other people bother with me.i have grown up like this so i don't know any different,I don't know what Is normal.I have seen a clinical psychologist,and she just said"typical tle".When I have twitches,no one else can tell unless they are looking carefully.
garry

 
Old 07-25-2002, 04:25 PM   #5
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hi kim,
Thanks for the kind words,it really helped,and I really appreciate It.I am on a bit of a downer at the moment,I was reading some postings on another site and one of the topics was how supportive the parents of people with epilepsy were.This made me think of how cold my mother is.She has never rung or got in touch to see how I am coping.My other problem is I have been getting shooting pains down my legs,and my bum going numb.My lower back Is hurting and I get uncomfortable sitting for a long time.I had an xray and my lower spine is damaged,so i am on pain killers.My Tinnitus has got louder and affects me sleeping.I suppose all this has got on top of me ( I'm dropping apart lol).I know how you feel with your daughter,we all worry for our kid's.when Emily was born,her hip wasn't formed right and she had to wear a horrible plastic brace type nappy,that forced her legs out sideways to make the ball and socket come into contact while they formed correctly,the poor kid wore this for months and she was very upset and uncomfortable,we couldn't help her.But she has grown up to be a beautiful young girl.I felt very guilty about Emily,so maybe that's kinda like what your husband Is going through?.As for Keppra,no I'm sorry I haven't had anything to do with it.I can't imagine why your doctor said anything like he did in front of your daughter,It seem's heartless to me,maybe he just want's to get you to think really hard about medication.When I asked my doc about sudep,he just said they don't know enough about it yet.I don't know whether It makes you feel any better but my younger sister has been on aed's since very young,and she's done o.k.Try not to worry,I know It's hard,and It's easy for me to say...but when Emily was going through her problem I had to be strong and take control of the situation,and worrying too much would have made me ill,and I would have been no good to anybody,The situation caused a lot of friction in our house I can tell you!.Anyway,keep us posted as to what's happening,with your daughter.I hope everything turns out ok.
garry

 
Old 07-28-2002, 02:08 AM   #6
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Hi Garry, does your daughter by chance has congenital hip dislocation disorder, or hip displaysia? Because that's what I was born with.

 
Old 07-28-2002, 04:55 PM   #7
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Happyiris, I am from the South too. Howdy. I have Complex Partial epilepsy, but had successful surgery at the Medical College of Georgia in Augusta, Ga. I only wish I had had it done years ago. Simple Partials do not usually involve a loss of consciousness, but Complex Partials do. My Simple partials just made me feel strange. It has its own feeling. It's like trying to describe what it feels like to be nauseated to someone who has never been nauseated before. I did lose consciousness with my Complex Partials and those as well as the Simples are very individual in how you experience them. I had a tendency to get up and walk around during Complex Partials regardless of where I was or if it was night or day. I did have the Déjà Vu later on as well as a feeling of what is called Jamas Vu (sort of a feeling like you are in someone else's house even though you are conscious and aware of all surroundings and recognize everything as being yours. It just feels very unfamiliar) That didn't develop until later on after many years of seizure activity. I did also have the jerking you describe. I think those are called myoclonic jerks. It is not a continuous jerking as in tonic clonic seizure activity. It is an occasional out of the blue jerk of my arm. Since surgery, I have not had that and no more Complex Partials either. All I have if ever is a 1 sec aura (a 1 sec weird feeling). I never had auras of any type until later on and only a couple of years before I had surgery. Are your meds working or are you even on meds yet? I encourage you to seek a Comprehensive Epilepsy Program for treatment once you receive a dx of Epilepsy. The sooner you get the seizures under control, the better! I cannot stress that enough. You do not ant a General neurologist treating you at all. They will keep you as a patient, continue to play will meds in an attempt to find a magic bulet, and refuse to send you on to a Specialist when the meds do not work. Meanwhile, it's your Quality of Life that suffers, not theirs. That's what they did to me and by their selfishness, they robbed me of a lot of good years. If you think about it, they took a good portion of my life Surgery gave it back to me, but now I have to learn so much that I never was able to take advantage of before. At age 14 when diagnosed, it's like I got off the Merry-Go Round. They should have referred me on to the Epileptologist in Augusta. I was 14 when diagnosed and did not have surgery until age 47. That's a lot of time wasted. The statistics are: If one AED (anti-epileptic Drug) fails, there is only a 15% chance that ANY of them will ever work at all. Please find a good Epileptologist for you treatment f you are diagnosed and one med does not work. Complex Partials are the hardest to control with meds. I do so wish I had those years back, but since that is not possible, I have to figure out where to go from here. Also, please know that just doc says he is an Epileptologist does not mean he has done the Fellowship in Epileptology, and it also does not mean that he is a good doc. Ask the right questions when choosing a doc. I have only praise for the entire team at Medical College of Georgia in Augusta. Tattoo

[This message has been edited by Tattoo (edited 07-28-2002).]

 
Old 07-29-2002, 02:33 PM   #8
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Howdy, Kim. I need to apologize for the length of this!!!The first thing I want to say is Thank you for caring so much about your daughter. I really needed that in my life and have never received it. It's so very late for that now. As an infant, I had a very high fever and convulsed as a result. (Dad is a doc and should have gotten my temp down, but doc's children never get sick. Wouldn't be proper.) Once potty trained, the bed wetting started every night and continued into adulthood. I was blamed for that. The only checking done re this was a trip to the Urologist to discover I had a large bladder. Wow! Wrong type of doc! Much much later and way into adulthood, one AED stopped that. I had been having nocturnal seizures! No one believed that I was not at fault. At age 11, I started having Simple Partials during the day. I could feel these, and did not lose consciousness. I just felt really strange for abt 30 sec. I called them "Funny Feelings". Another lady called her's Icky Feelings. If you think abt it, age 11 is about the time when things hormone wise start beginning to kick in. I started having periods at age 12. There is a definite connection between hormones and seizures, It has been proven and is called Catamenial epilepsy if the seizures confine themselves to the time of the menstrual period. Estrogen lowers the seizure threshold making one more vulnerable to having a seizure, and Progesterone raises the threshold allowing one to tolerate a greater degree of seizure activity before having a seizure. Something along those lines. I am not a doc, but you do not need one to understand this stuff. At age 14 as a freshman in high school. I had my first Complex partial and did lose consciousness. As I mentioned above, I tended to walk around during my Complex Partial seizures. I was at school, began to feel "funny" and that's all I remember except what seemed a little like a dream state. I continued to walk to where I had been going before the seizure. Almost made it too! Didn't run into anything either. I really think that I can still see because I have really taken some walks! I was finally taken to Augusta and diagnosed with epilepsy even though the EEG was negative which is not at all uncommon to find. The description by my mother and the fact that I had had more than one was enough for the doc. I started on Dilantin. It did not help. The bed wetting and seizures continued through high school. No one ever asked me for a date either. I had to ask the boys to the Jr-Sr Prom. I was active in high school however, I was good at Math and taught the other kids how to do their Algebra. I also was in the band, I have very good ear for music. I started with the flute at age 9 and with piano younger than that. Also had 12 years of dance lessons too: tap, ballet and modern jazz. Now, back to high school. I continued with band in HS. Also, a was majorette and a Captain of the Flag Corp when one was started. I also took baton twirling lessons and went to Indian Lake Twirling Camp in Ga as well. I became a Candystriper at the local hospital at age 13 and Nursing Assistant for 1.60/hr at age 14. Epilepsy was never mentioned in my home at all. and I have heard my father sat the word once in my entire life! Do Not Disregard Epilepsy to your daughter. That is such a disservice to her to refuse to accept that as a part of who she is.!!!!!It is no different that disregarding and rejecting her. Epilepsy did not stop me from doing what I wanted, but I was never the kind of teen that was out a lot and we didn't have the activities like the teens do now. My father would have had something to say about it if I was out possibly. Ruled by the hand!! Still socialization pretty much stopped when I started was diagnosed, received the label, and started taking meds. The diagnosis did a lot to cause that. I feel like and have said in the past that it feels like I got of the Merry-Go Round of life Socially. I also feel like someone put me in a cage at that time too. That's exactly how it feels. I still had all of the seizures I described. No med changes and no blood levels were ever checked. This was father's fault. I feel sure that MCG thought my father was taking "care" of me. He wasn't. How could he admit to the Public that he had a child with epilepsy? Shameful! So, it didn't exist! One week to the day before I was to enter UGa to be a Math major, my mother handed me a bottle of new pills and told me to take 3 a day. No gradual build up at all. Just take them along with the Dilantin. I was always compliant with meds and did as she said. That med was Mysoline, and it metabolizes into Phenobarbital and one other metabolite. I slept through everything! Since my Math grades were as high as they were, my first courses at UGa were Biology, Pre-calculus, and English. I chose UGa because I wanted to be a Georgette! I was considered for that but never quite made it. I finally flunked out of UGa from sleeping through class. I woke up at 5pm every day and do not see how I made it as long as I did. I set two alarm clocks for different times, left the radio on full blast all night long so when the station came back on in the AM it would maybe wake me, I left blinds up all night so the sun may wake me. Nothing did! It seems like someone would have thought that the med was too high! No one did! I went from a promising student with very good grades to a failure. Seizures and bedwetting continued. No dates or any other social activities. I changed schools and majors. I wish I had not changed majors, but I thought I had to since I failed at UGa. Guidance was needed but not there. I did join the choir at this second college and was active in it as well as in band still. My college choir was invited to go to Israel and Jordon to sing Messiah along with 2 other college choirs at Christmas. I went with them. It was a great experience. All else regards adulthood. but the seizures stayed the same. Nursing School was difficult although the coursework was not at all hard. It is easy to become emotionally affected by your past so you have a good chance to manage your daughter's case right. I lived in Atlanta for many years and went from doc to doc and med to med as I mentioned in my earlier post. I suggested Depakote to one of those general neuros, and it made him very mad. His response was very unprofessional and it does involve the major teaching facility in Atlanta. I did change to Depakote and that stopped the bedwetting finally. Depakote caused me to gain 2 sizes and lose some hair. I had been put on Tegretol and taken off the Mysoline and Dilantin prior to the Depakote by one of those General neuros in Atlanta. No med was working. I was put back on Tegretol then Tegretol XR along with Neurontin. No help there. Lamictal replaced the Neurontin later on. One of the last changes in siezures was that they becam to containSecondarily Generalized actity. They worsened over tme! That is called Kindling in that the cell that misfire can teach the healthy cells how to seize (misfire). I then became aware of auras where I hadn't ever before. I CANNOT STRESS STRONGLY ENOUGH THE IMPORTANCE OF GETTING YOUR DAUGHTER TO AN EPILEPSY SPECIALIST, ONE WHO HAS DONE THE EPILEPSY FELLOWSHIP AND HAS THE CERTIFICATE ON THE WALL THAT SAYS HE HAS COMPLETED THE EPILEPSY FELLOWSHIP. Also, you want a doc that treats NOTHING else but epilepsy, no headaches, no MS, etc. Nothing else!!!!!!!!!! Do not cause her to waste so much of her life by letting the general neuros play doctor with the meds! Let an Epileptologist do that. There are better meds now than when I was young, but still they are not a guarantee. Seizures do change and meds can stop working. Adjustments are frequently needed as well. !! I went to the major teaching hospital in Atlanta and had a very bad experience there. I can tell you stories. I finally went back to Augusta when I realized they had an Epilepsy Center there. I did not now they had one until then. That was 1998. I have total trust in them there and highly recommend them to anyone. I was in Atlanta then and gladly went the 160 miles one way to see the Epileptologist there. Do not hold your daughter back from experiencing life as she wants, but keep her safe. She needs top learn these things too since she will take it with her. I will say that if you do go to Augusta and they suggest surgery, do it as soon as possible so she will not have the time wasted. She gets her life back at an earlier age. I checked out the docs there before I allowed them to do my surgery. I know where he got his training and who trained him. I also know how many cases he has logged. (We had a reunion this past weekend in Augusta for all those who had had surgery. It was a great experience. all of the docs and staff were there too.) Finally, surgery was suggested because no med worked and because I started burning myself during seizures trying to continue to do what I had been doing before the seizure. I was at that other major teaching facility in Atlanta when surgery was suggest but because of the very bad experience there, I asked for a second opinion and headed for Augusta. I have always lived alone since 1976. I also had my surgery alone as well. A friend took me to Augusta from Atlanta, dropped me off, and picked me back up one week later. The surgery was successful, and it feels like I've been let out of prison. Scary though after such a long time. Stick by your daughter, but allow her to spread her wings as far as she can! I didn't know anything about diets and seizures, but I have read that others have found sugar to be a precipitating factor. I did notice that MSG in foods may have a negative effect. Also, be aware of what your daughter's Medical doc prescribes because some of his meds can affect the AEDs. BCP's too. All together, I took Dilantin, Mysoline, Neurontin, Tegretol, Tegretol XR, Depakote, Lamictal, and now Keppra. The surgery and a low dose of Keppra is what gave me back my life. I just hope it isn't too late. I know you didn't want to hear all of this, but I feel the docs playing with me and the meds took a lot of my lifetime away, and I am very angry. age 14 to age 47. That's no different from being their guinea pig or lab rat. PLEASE take her to an Epileptologist. I do recommend Augusta and know of NO other in Georgia that I would trust at all! The right doc is so very important!!!!!!!! They have a Peds Epileptologist and a new Adult Epileptologist They are also getting a second Epileptologist for Adults since the one there, the one I see, has just retired last month to be exact. My doc will remain in the Epilepsy Program, but the Epileptologist who trained under him will take his place and see Adults. I hope I did not give you more info than you can handle at once, but it is so important that your daughter get the correct care for her type of Epilepsy and also the correct diagnosis. Please do this as soon as possible. 1-800-736-2273= MCG Patient Relations. If you decide to go there, get your daughter's Medical doc to do the referral. Do not ask the general neuro! He will not want to refer her on and will do HARM in the long run. Tattoo

[This message has been edited by Tattoo (edited 07-29-2002).]

 
Old 07-30-2002, 02:35 PM   #9
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Hello again. Also again, I apologize for the length. I am happy you made the appt. That tells me that you really care for your daughter. That's such a good thing. I know a month seems like a long time, but I have read of others who had to wait 3 months for an appt with the Epileptologist. Is her appt with the Adult Epileptologist or the Ped? I do not know much abt the Peds end of MCG, but I do not know of another better place in Georgia. Hopefully you can get the correct diagnosis and treatment for her. Remember there are no guarantees and no quick fixes. The typical surgery done for Epilepsy, at least for the type I have, was developed in part by Dr Flanigan at MCG who worked with the docs in Montreal. This was more than 20 years ago! The doc that did my surgery 4 years ago trained at Dr Flanigan's side and took his place when he retired, so I felt very confident that the neurosurgeon, Dr Joseph Smith, was very capable. He's logged a lot of successful cases as well!! I forgot to mention that I also lose bladder control during Complex Partial sz.
sometimes, that was the only way to tell if I had had one since I lived alone. If is sometimes difficult to know for sure if you have one. I though sometimes that maybe I just fell asleep, but I was wet. So, I knew I had had one. This was not just during the night either. I had Simple Partials during the waking hours starting at age 11. Those were the "funny feelings". Age 14 was the first Complex Partial (CP) when I lost consciousness. Someone could see that one when they hadn't been able to see the SP's. Later on, I had the deja vu and then the Jamais vu too. Seizures can be experienced differently for every person. That's one thing that makes this a fascinating field to me. The Complex Partial seizures are basically witnessed/defined as Non-purposeful movement. In my case, I walked around and tried to continue doing what I had been doing before even though unconscious. Do not grab or try to restrain your daughter if she has a seizure unless she is about to injure herself like if she is abut to walk into the street unconscious etc. She may try and struggle in an attempt to get free, totally unconscious! She will not remember much of these events if it is indeed Complex Partial. I will tell you that Complex Partial has the best success rate with surgery. Do you do not want your daughter's quality of life to be ruined by seizures and all it does bring. Look at how her father feels and is acting! Do you think the Public will think any differently? The Public is ignorant abt this and her father's attitude resembles that. Also, as you find in any company out there, what the CEO says and the attitudes he holds true will set the stage for the others to think and act the same way. In your household, your husband (CEO) is setting the stage for things to come. Work has to be done to keep things on the right course that is best for your child! You want a family unit that is completely supportive of all members of the family. Money is no substitute! My father is 81 now and his ideas were formulated in a vastly different time, but he never chose to see any differently. Your daughter's father has a chance to be better. He has a choice to make. Right here and Right Now! He can choose to get involved with his daughter's life with the epilepsy or potentially lose her for all time. She will not forget his actions. If anyone will not accept me with it, they will not be a part of my life now without a very heart-felt apology and without dialogue going over all of it. I do not ever expect to get it. So, he has a choice to make. Also, to me it is very selflish to choose to not be involved, but to ignore it and remain on the outskirts. I also consider it very cruel. My father did the same as I have said, he thought that paying for the meds was sufficient, he was Dead wrong! To your husband, tell him that if he chooses to think of himself rather than become involved with his daughter life with epilepsy, do not go to church on Sunday and make a good showing to the Community that he is a good Christian. To make a good show without the actions behind it is also selfish and hypocritical. The South has a lot of those too. Trust me, but I feel sure you are aware of that as I am. In the long run, it is not only God who will have forgive him. It is his daughter! I spent many an hour in the hayloft crying my heart out because I loved my father so and knew he rejected me. Your husband has to choose what is more important, here and now! I will tell you that families can split up because of epilepsy. It does affect the family unit. Keep that in mind. This is a lot for you to shoulder alone. Your husband is a part of the family. At least he has that choice to make! My family including father talk around me and about me but not to me. Even if I am standing there in front of him, he will look at my sister and ask what I said rather than ask me. I do not trust them today at all. They have proven themselves just as your husband is doing, but he can control the outcome. Also, some meds work for some and do not for others, and vice versa. Please ask the doc when you go to MCG what options are available once he has a good picture of what is going on. Expect some meds. That is the first option to try. Also, it is the least invasive and care starts there. There is the VNS, but if that is the best option for your daughter remains to be seen and depends on her individual case, where it happens to be located, and all other aspects of her case. MCG now does the Gamma Knife surgery. That's the latest thing and the same doc does both. That is almost an outpatient procedure. Surgery was best option for me rather than the VNS, and I do not regret it at all. I just wish I had the years back. Your daughter has a better chance than I did because she is getting better care than I received. Her years may not be wasted, but remember that there is no guarantee with epilepsy. We just all hope for the best care we can find. Remember that you can get second opinions if you ever choose to do that. I apologize for sounding bitter and angry, but that should tell you and your husband just how important the choices made now really and truly are. Your daughter needs both of you as well as she needs her siblings, and you need your husband too to help you through this. You are a family. Again, I have given you a lot of info, but you have made a good step in the right direction by making the appt. I am proud of you. Tattoo

 
Old 07-30-2002, 02:51 PM   #10
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I forgot to mention the illness' efect you asked abt. I found that if I had fever, then I was definitly more vulnerable. Also, if she is is nauseated and does throw up, she could be losing meds as well, so keep this in mind. Some people do experience their seizures as a sensation like the stomach is rising sort of. I never experienced that, but maybe that's why she feels nauseted after a seizure. I read that you plan to home school your daughter this year. Although it is best to let he Socialization take place as it should, until you get a better handle on her seizures and treatment of choice, that sounds like a good idea. Remember to let her spread her wings though too. Buring his head in the sand will not make it go away. That's the easy way out. It may feel safer there, but he will miss so much. Tattoo

 
Old 07-30-2002, 04:01 PM   #11
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Hello again. BCP is Birth Control Pills. I did not know if your daughter takes them yet or not, but it is good to be aware of. Since I was diagnosed at age 14, I never was asked out on a date. No one ever asked me. that's a part of high school years. That aspect of growing up did not happen when it should. The illness/stigma and possibly the Dilantin I was on had an effect. I can't say for sure just what the causative factor was but I feel sure all played a part. It's like I got off the Merry Go Round. That is not just me saying that. Those who have it for a long time do notice a difference. Some may have no problem. but the lack of family support said also play a part in my learning to accept me too. You daughter is in the age of discovering who she is possibly depending on her age so keep that in mind and let her be all she can be as long as she is safe. I know you want the best for her, but don't make those cage doors too tight. Today, I hope teens are more informed and accepting than they were when I was a teen. There is no quick fix unless one med happens to work, but that can change too. Sometimes they work and sometimes they will stop working or need adjusting. There's no cure unless you consider surgery a cure. In some like me, whether or not meds are still needed is individual. My surgery was successful in that I have not had a Complex Partial seizure since and only a small handful of 1 sec auras. That's in 4 years! I was up to 1,600 mg Tegretol plus 400 mg Lamictal a day and still had approx 25 events a month of varying degrees. Now, I only take 150 mg Keppra alone. I call that successful. Some will have to remain to allow dose of meds, but others are seizure free without meds, The time wasted did play a big part. Remember that I had surgery at age 47 but started the seizures as a child. That makes a tremendous difference. I am just glad that she is going to an Epileptologist as young as she is. That is so great. The lady I talked to before having surgery had hers done at MCG 20 years ago and today takes no meds and is seizure free. Many of those at the reunion were also on no meds and seizure free. A percentage may have to continue meds, but of course not nearly as much. I left the hospital on 700 mg Tegretol and 400 Lamictal, but had gone in on 1,600 mg Tegretol. That was decreased further later on. Big difference. I will stop for now. You have enough to absorb. Take it easy and one day at a time. Please keep in touch. Believe me, epilepsy is not a death sentance by any means if you don't let it be. Tattoo

 
Old 07-31-2002, 11:05 AM   #12
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Howdy. I made a call and did some checking. when you called for the information, did you ask for the Epilepsy Center or Pediatric Neurology? That makes a difference as to who you got on the phone. You could have been talking to a different dept. While it is true that the Epilepsy Program is under the department of Neurosciences as all other conditions are, the same docs do not necessarily treat everything. I asked the same questions you did when I went there. I do not know which doc you made the appt with, but according to MCG, Dr Park treats only Pediatric Epilepsy from what MCG told me. I asked specifically. I think his Fellowship was in Neurophysiology from the website that shows his credentials. My first appt was with one doc, but once there, I changed to the one I have now that just retired. The one I was originally to see just happened to be the one scheduled to see Clinic patients that day. He was an Epileptologist though. An Epilepsy program is not like a large group of Medical docs who go to the same place every day and see the same patients. They have Clinic once or twice a week to see the Clinic patients but are involved in Epilepsy projects as well. You do want a facility that is involved in research. That is also part of that criteria set by the Cleveland Clinic. You just want the patient to be priority. Some places will have Research as priority and that's what you do not want. I found that the patient was priority at MCG after a lot of looking. That's what they have there. The docs that do specialize in Epilepsy, even the Adult doc, will be involved in either Clinic, seeing Epilepsy patients in the Monotoring Unit, or involved in Epilepsy Research projects depending on the day of the week. In other words, ALL Epilepsy. I asked that for myself too when I went there. As far as the area they did the Fellowship in, from my reading the Fellowship needs to be in either Epileptology or in Neurophysiology according to the Criteria set by the Cleveland Clinic, another good place. MCG really is a good facility, and I have never received the respect I received there from anywhere else! I am not the only patient to say that either. Call back and ask for the Epilepsy Program. You can always make a change later if you choose, but I could not recommend them if I knew better. Couldn't do it. I have heard of that place in Calif you mentioned, but have never heard of his treatments nor heard any results. I also probably heard of it the same way you did, on the NET, not from patients who have used it. You get your best ideas from other patients and parents. I have included some links for you. By going different routes and searching for a magic bullet which does not exist, you are wasting time too. Please look at the links I have included here and you decide for yourself. I have emailed a parent who I met at the Reunion on Saturday and asked permission for you to contact them. Their child was treated at MCG too. That could be of help to you. I will let you know when I hear back from them. Tattoo
[url="http://www.mcghealthcare.org/epicenter/"]http://www.mcghealthcare.org/epicenter/[/url]
[url="http://www.neuro.mcg.edu/episurg/childep.html"]http://www.neuro.mcg.edu/episurg/childep.html[/url]
[url="http://www.mcghealthcare.org/centers/ped_neuroscience/"]http://www.mcghealthcare.org/centers/ped_neuroscience/[/url]
[url="http://www.mcghealthcare.org/centers/neuroscience/"]http://www.mcghealthcare.org/centers/neuroscience/[/url]



[This message has been edited by Tattoo (edited 07-31-2002).]

 
Old 07-31-2002, 05:33 PM   #13
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Join Date: Dec 2001
Location: USA
Posts: 143
Tattoo HB User
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Re the charges, I have never heard expressed quite like that before. I do know that with all visits, they are usually listed on the bill as being Brief or Extended etc. That will, I feel sure, determine the cost. When an insurance co is billed, it is according to how much the facility or doc charges for a Brief or Extended visit or in the case of an HMO possibly the amt that the ins co will pay for those types of visits. I would expect the initial visit to be Extended. There is a lot of history taking and examining to be done to get a good picture. There also may be an EEG. I really think that it is possible that the person you spoke with may not have fully understood your question about whether or not Dr Park also treats other conditions. Do be sure and ask him the questions you have when you go. I aked them all questions like that and even asked the Manager the same. I was tired of going doc to doc and wanted a good facility. As I said, I am not that familiar with the Peds side, but when I hear from the parents I met at the Reunion, I will let you know. Look on your insurance Plan and see if it lists Medical College of Georgia in there. If it does, then there is a good possibility that the Epilepsy Center is included. That's how it is listed in mine. Good luck. Tattoo

[This message has been edited by Tattoo (edited 08-03-2002).]

 
Old 08-16-2002, 11:44 AM   #14
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Join Date: Aug 2002
Location: india
Posts: 1
Raju0521 HB User
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Four-year son have been diagnosed for complex partial seizer. This is the third time seizer happened for just 10-15 seconds. He is 2 years old & can’t speak much but speaks small sentences.
EEG & MRI are not normal. Neurologist says he has some problem in left temporal. Right now he is on velparin 200mg.2.5 ml three times a day.
We all family members are very much worried about his future. Our main worry is about his future. Can he lead a normal life?? Can he be active in sports? Is there is any side effect of valparin 200mg. pl. suggest----
Can some body share his problem/solutions for the above-mentioned thing?

All support at this website is on-board only. Please do not leave personal contact info. Thanks!


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[This message has been edited by moderator1 (edited 09-18-2002).]

 
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