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Old 07-01-2002, 06:06 PM   #1
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Post RED DYE & SEIZURES

My eight year old son began having seizures last year. After a total of eight seizures (the last resulting in status epilepticus) we started him on an anticonvulsive drug. Each seizure was preceeded by the INGESTION OF RED DYE. I am 95% convinced that red dye is the sole cause of his seizures. Please let me know if you have similar situations/thoughts/feelings.
I plan to thoroughly research this so therefore your feedback will be greatly valued and appreciated. Thank you.

 
Old 07-02-2002, 04:12 AM   #2
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wonder if its the stuff the dye is made out of I would look into this and ask your sons neuro as well, I would also be interested in finding out... please keep me up to date.

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Old 07-03-2002, 04:03 AM   #3
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my grandma always told me that red dye had something to do with seizures,as have a few friends. It was on one of those evening news shows (20/20, Dateline)years ago. It is worth looking into. Good luck!
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Old 07-19-2002, 12:50 PM   #4
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I have seizures that amongst other things can be brought on by artificial colors. I suggest taking him off red dye and see how things go. It's also possible that it might be a certain ingredient in the red dye that's causing the problems, so check them out also. It is also quite possible that he might be alergic to other foods aswell, so if he's still having seizures after you take him off the red dye, you might like to get a book on the ways of finding what foods he's alergic to.

One more thing allergies can have a tendacies to go away at certain stages in a person life and come back later. So keep that in mind for the future.

Good luck

 
Old 07-20-2002, 08:41 PM   #5
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I, too, would like to now what it was that contained the Red dye. Also, please look at the box or container it came in and see how it is listed in the list of ingredients. There sometimes is a number associated with the dye like Red Dye #X, etc. Also, sometimes there my be another substance used to provide the pigment. I do want to know just what chemicals are used. Please keep us posted. Tattoo

 
Old 07-21-2002, 01:54 PM   #6
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Thanks for your reply. My son was diagnosed in May of 2001 with partial focal seizures/roulandic epilepsy. However, his series of seizures in May of 2002 resulted in status epilepticus.
Thanks Heatherbellamy for your reply. I had not thought to explore the archives of prime time news programs - great idea.
Thanks Jupiter for your reply. My son has been allergy-tested with results implicating corn syrup and malvin (milk and naturally red foods).
Thanks Kokopelli and Tattoo for your replies. In May of 2001 my son was simultaneously introduced to Little League Baseball, the fruit punch Powerade liquid hydration enery drink and seizures. Every Saturday he drank Powerade and 2-3 days later he had a primary focal seizure; five Satudays of Little League and Powerade/ five seizures. Little League ended and so did the seizures until nine months later when he had a fruit punch Powerade at a friends house; two more seizures. Obviously, he was then told not to consume Powerade; I had not implicated RED DYE because he had had it in the past with no problem, however, as you stated Jupiter, the body goes through a complete overhaul over a seven year course; he was seven when the seizures began (this has not occurred to me before-thanks!).
It was not until May of this year that my son had his next episode which was far more disconserting. The one-to-three days prior he had consumed a lot of RED DYE. He had Starburst candies which contain RED 40. He had Strawberry Pop Tarts which contain RED 40 and he had several Pillsbury flag cookies which contain RED 40 and RED 40 LAKE (a process involving RED 40 and aluminum). I implicated RED 40 immediately. Due to the sheer fear that he might experience seizures with unconsciousness again, we started our son on Tegretol chewables which ironically contain RED DYE (#30 - I am in the process of communicating with the drug company about this). If after one year of 150 mg. of Tegretol daily, with a blood level of approx. 5.0, our son does not have another seizure we will gradually take him off the anti-convulsant and finally have our answer re: RED DYE 40.
In my recent study in the medical library at Yale University, I uncovered research regarding seizures precipitated by food allergies that began taking off when anti-convulsants were introduced to the marketplace. Consequently, research dollars from drug companies dwindeled. My son is now a patient of the epilepsy expert at Yale University in New Haven, Connecticut. I plan to seriously pursue the possible/probable cause and effect between RED DYE 40 and seizures.
RED DYE 40 contains the following (according to the folks at Pillsbury):
Disodium Salt of 6 Hydroxy
2 Methoxy
5 Methyl
4 Sulfophenyl
2 Naphthalenesulfonic

This experience has changed the way I look at food.
Thanks again everyone for your support. KP2002

[This message has been edited by moderator1 (edited 09-18-2002).]

 
Old 07-21-2002, 07:15 PM   #7
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Google Search for Red Dye and Seizures.
[url="http://www.***********/search?hl=en&lr=&ie=ISO-8859-1&q=seizures&as_q=red+dye&btnG=Search%A0 within%A0results"]http://www.***********/search?hl=en&lr=&ie=ISO-8859-1&q=seizures&as_q=red+dye&btnG=Search%A0 within%A0results[/url]

 
Old 07-23-2002, 05:41 PM   #8
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Last year my son had Electrodermal Screening (EDS) conducted by our naturopath. Results implicated the following foods: watermelon, american cheese, cow's milk, tomato, cottage cheese, red and green grapes, corn, plum, casein-cowmilk, cheddar cheese, strawberry, chocolate and blueberry. His primary allergy is to Malvin; a phenolic compound found in most of the above. The only food I have removed from his diet is anything with red dye. I'm currently researching whether or not there is a component that is found in both naturally occurring red foods as well as red dye. I was also told vitamin E is important as well as magnesium, calcium, maganese and taurine. Prior to going into status epilepticus (I recently read that there is only a 10-25% chance that anyone will experience more than one of these events in their lifetime) his seizure began in the usual way; a jerking in his right cheek which moves down his right side. Over the past year our son has had 3 EEGs, 1 24-hour EEG, 1 CAT Scan, 1 open MRI, 1 closed MRI, an ultra-sound of his heart and an ECG. There were location variances amongst the brain tests although each showed abnormal independant spikes in brain wave activity. Now that red dye #40 has been removed from his diet, hopefully each successive EEG will show improvement. Time will tell. Epilepsy is still in many ways a mystery even amongst the neurologists who most times have no definitive answers. There are so many variables to consider such as why does my son have seizures only during the morning hours. A doctor who is quick to say that food and epilepsy are not connected is not open to his/her unknown. It has become clear to me over the past few years that I must take full responsibility for my and my children's health. Doctors provide the vehicles eg. tests, medications and professional opinions (although guarded), that assist me in making informed healthcare decisions most appropriate for the individual I care so much about. There is an article in the medical journal Clinical Electroencephalogaphy entitled "Epilepsy Precipated by Food Sensitivity" (1981). It begins by stating "Although there are over two-hundred reported cases of epilepsy related to food sensitivity, many physicians discount these reports and consider food sensitivity or "allergy" to be an exceedingly rare factor in epilepsy". The patient in the study was severely allergic to beef. Six months prior to the study she had 31 seizures despite taking tegretol, mysoline and dilantin. For the six months following the study the patient, avoiding all food allergens, had only 1 seizure and without medication. The best information I have received has resulted from paying careful attention to what my son eats and always remembering to trust my intuition. Thank you for the website addresses. I'll check them when I get to my computer again in a few days. Take care. P.S. Two informative books you may already know about: Seizures and Epilepsy in Childhood A Guide for Parents by John M. Freeman, MD, Eileen PG Vining MD, and Diana J. Pillas & Partial Seizure Disorders by Mitzi Waltz.

[This message has been edited by moderator1 (edited 09-18-2002).]

 
Old 07-23-2002, 09:23 PM   #9
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I found a site that had the dye in Children's Tylenol to be Red Dye #33, not 40. There was a blue pigment as well. go to [url="http://www.***********"]www.***********[/url] and type in tylenol. There are many links there. I added the word Ingredients to the Search with results and got more. Below is a page I also found re. a child's behavior after ingesting Red dye as well as bahavior after the dye was removed from the diet. It seems that the dye is not good for Hummingbirds either so you re supposed to use sugar and water only in their feeders. Seems like the Gov (FDA) would ban the use of that dye and all other harmful additives. Seems like it anyway.
[url="http://recipestoday.com/resources/articles/reddye.htm"]http://recipestoday.com/resources/articles/reddye.htm[/url]

[This message has been edited by Tattoo (edited 07-24-2002).]

 
Old 07-24-2002, 06:05 AM   #10
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[url="http://www.spidercreations.com/brian/reddye/"]http://www.spidercreations.com/brian/reddye/[/url]

I just wanted to post this. I will be checking my meds and all other labels from now on. The FDA even knows about this! tattoo

 
Old 07-28-2002, 02:16 PM   #11
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Hi kim trimm, Type "Electrodermal Screening" into the Address section and you will get the ten most popular articles on EDS. I hope this answers your questions. I should mention that it is costly however some insurance companies will pay for it. I hope all is well. KP2002
Tatoo, Thanks so much for the Google link. I found it very informative. KP2002

 
Old 08-08-2002, 06:58 AM   #12
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Hi All, My son had a seizure last week twenty-five minutes after going to sleep. At that point I began to question the reason until I thought about what kimtrimm said about her daughter and beta-carotene. That same day, my son, for the first time, had four juice boxes of Apple & Eve's Tangerine Kiwi which has added BETA-CAROTENE. First neuro said certain foods/chemicals simply lower a person's seizure threshhold vs. an outright allergic reaction as I've been researching. I'll ask second neuro during late August appointment.
Although I often tackle life's issues from an intellectual approach, I once again was reminded of the magnitude of emotion that epilepsy/seizure disorders can bring. My heart goes out to everyone who deals with this form of uncertainty. -KP2002

 
Old 08-18-2002, 05:52 PM   #13
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Hi All,
\my son had a nocturnal seizure that lasted about eight minutes. Since his last seizure developed into status epilepticus, I gave him Diastat at about seven minutes into the seizure since he had vomit coming from his nose and mouth and he began to gurgle; I thought he couldn't breathe. After administering the rectal gel, he slowed to a peaceful sleep. I need to get some advice from other healthboard members regarding Diastat especially since school begins soon and I want to make certain it is given only if absolutely neccesary.
On a brighter note, I hope all is going well with your daughter and that the advice of the wise pediatrician works well for her. I admire your committment to your daughter's health and well being.
These healthboards have provided so much not only in getting information from relevant people but also in knowing the connection is always available during these times of stress and uncertainty. I look forward to using the healthboards more when school starts and vacations end. Sincerely, KP2002

[This message has been edited by moderator1 (edited 09-18-2002).]

 
Old 09-18-2002, 10:29 AM   #14
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Some posts were deleted, as a member asked to have her posts removed, due to the username. Hopefully she will reregister.

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