| | My beautiful 19 month old with seizures
My husband and I had a beautiful healthy happy baby but when she was 7 months old she suffered a massive grand-mal siezure. I called 9-1-1 because I had no idea what this seizure meant. They gave her valium to stop it and then she went into respiratory arrest. Well several days, tests, tears and panic attacks later she came home. Only to have another one a month later, and so on. She has had 7 in total. MRI's, CT scans, EEG's, lumbar punctures, bone marrow taps, x-rays, blood work, etc all show nothing. They call it idiopathic status epilepticus. Her seizures at first last upwards of 30 minutes. Now we can stop them at home in a minute or so. Several medications later, she is on lamictal. She seems to tolerate it but I, like any other parent, worry about side effects. She was on phenobarbital for a few months, but it was like having another baby. She was so lifeless and without smiles. I couldn't stand it. Since they weened her off of that she is "back to normal". I was just wondering if there is another parent out there with the same or similar situation. I have so many questions and comments and just need someone to talk to. I wish all of you health and happines. Thank you for taking your precious time to read this. I appreciate it greatly.