major seizures - Epilepsy Message Board

Kokopelli · 10-13-2002, 05:45 AM

Hi All,

I been having some major seizures lately I need some help maybe with advice on other meds .. I cannot take tegretol due to a problem with lukemia I got from it when I was on it before.

hugs
koko

Ksavage · 10-13-2002, 11:25 AM

Hi Koko! I wish I had some advice for for you on you problem you are having with your meds. I just wanted to let you know how sorry I am that you have been having such a rough time with things. I just watched the movie ...First do no harm... on lifetime & it really made me think even worse things about all these meds these Doctors keep cramming down our throats. If you ever get a chance to watch it I highly recomend that you do. It is about the Ketogenic diet & shows the effects of all the meds versus this diet w/out the use of any meds of any kind. I think this diet mainly works in small children (that is all the movie was based on). But hey.....it is worth a few hours of checking into.
I am in my 28th week of pregnancy now & have gone that long almost without a seizure. As soon as I found out I was pregnant I went completely off all my meds for the sake of my baby & I have felt absolutley wonderful. I fear the day that I give birth to my daughter because all I keep hearing is that pregnancy & childbirth is not a cure for Epilepsy & that the seizures will be back. I have a strong feeling that I am going need a lot of support & encourgement from all my great friends hear at the boards. It is going to be a major set-back for me I am affraid. I am not sure if you remember my story or ot but I had only been having seizures for about 6-7 months before I found out I was pregnant. It was almost as if I had just got a little used to the idea (if there is such a thing) of being so dependent on everyone & then BAM! I quite having them. So I have a feeling that it is going to be like starting all over again. Only this time I will also be dealing with a newborn & all the stress that comes with that. This is my first baby & I am clueless as to how to take care of such a little person. I do know that she will be well worth it though.
Sorry my responce turned out to be more about me, but I do want you to know that you are in my thoughts & prayers & I hope things turn around for you real soon.

Kim

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Yesterday is the past, tomorrow is the future, today is a GIFT, that it is why it is called the present.

Ksavage · 10-13-2002, 11:26 AM

Hi Koko! I wish I had some advice for for you on you problem you are having with your meds. I just wanted to let you know how sorry I am that you have been having such a rough time with things. I just watched the movie ...First do no harm... on lifetime & it really made me think even worse things about all these meds these Doctors keep cramming down our throats. If you ever get a chance to watch it I highly recomend that you do. It is about the Ketogenic diet & shows the effects of all the meds versus this diet w/out the use of any meds of any kind. I think this diet mainly works in small children (that is all the movie was based on). But hey.....it is worth a few hours of checking into.
I am in my 28th week of pregnancy now & have gone that long almost without a seizure. As soon as I found out I was pregnant I went completely off all my meds for the sake of my baby & I have felt absolutley wonderful. I fear the day that I give birth to my daughter because all I keep hearing is that pregnancy & childbirth is not a cure for Epilepsy & that the seizures will be back. I have a strong feeling that I am going need a lot of support & encourgement from all my great friends hear at the boards. It is going to be a major set-back for me I am affraid. I am not sure if you remember my story or ot but I had only been having seizures for about 6-7 months before I found out I was pregnant. It was almost as if I had just got a little used to the idea (if there is such a thing) of being so dependent on everyone & then BAM! I quite having them. So I have a feeling that it is going to be like starting all over again. Only this time I will also be dealing with a newborn & all the stress that comes with that. This is my first baby & I am clueless as to how to take care of such a little person. I do know that she will be well worth it though.
Sorry my responce turned out to be more about me, but I do want you to know that you are in my thoughts & prayers & I hope things turn around for you real soon.

Kim

------------------
Yesterday is the past, tomorrow is the future, today is a GIFT, that it is why it is called the present.

Ksavage · 10-13-2002, 11:29 AM

Sorry for the double post everyone!

Krazykcio · 10-13-2002, 08:05 PM

Hi Koko,
I'm sorry , but I don't have any advice either....just wanted to send my best wishes for better days. I'll be praying for you. Good luck, Kathy