| | Epileptologist and an update
Well, I had a 48-hour EEG performed. That was normal. The night after the electrodes came off, I had a partial seizure where I was slapping myself in the forehead. Then I was quite sleepy and went down for some time. I woke up about 1:45 a.m. and realized I hadn't taken my Dilantin. I took it and went back to sleep. I woke up sometime later very sore all over, but for no reason. The nurse and another neurologist were sure I had a major generalized seizure and told me to go to the emergency room to have my blood level checked. It was low (4.5) so they gave me IV fosphenytoin sodium and told me to up my dose. Now, my neurologist signed off on the increase before telling me about the normal EEG. He said that if it's helping, I can stay on it for a while. He wants me to see an epileptologist in the big city near here, and that it's his best guess they are not seizures. However, he said the ER could neither prove nor disprove the generalized seizure since I live alone. What does that entail? Do any of you have any experience in dealing with this type of physician? I can't drive right now, on the advice of my employer's physician. So everything is being affected. I also wake up with unexplained bruising. Any ideas? Thanks. My Dilatin is now at 500 mg per night.
All of us has an angel, if only we know where to look.