| | Can Severe Epilepsy Ever Be Controlled?
I am looking for some hope really, as I have pretty much run out!
My husband had encephalitus 3 and a half years ago and after much testing and umming and ahhing, he has been diagnosed with severe epilepsy. MRI scan is normal, but eeg's have shown epileptic activity. He is on a large dose of Epilim (Sodium Valproate) which seems to work to a certain extent, and has also tried dilantin, which didn't do any good, Lamotrigine, which didn't do any good, and he is now trying Keppra. Trying a new drug takes at least 6 months in all, ie. a few months to introduce it, and then a few months to get him off it if it doesn't work, before the next drug can be tried. He is being treated by a specialist epilepsy unit, so I can't push for better treatment, and surgery is not an option as the origination of seizure activity is dispersed across his brain, which is apparently common after an infection in the brain.
He still has between 1 seizure a week and a few a day, depending on when, what and where he is at with drug changes. My question is, will this ever change? Has anybody else ever been in this situation? I know he won't ever stop having them, but will it ever settle down, or is it possible to find a drug that will reduce them significantly? I beginning to think this is what our lives will be like forever, and that feels so unbearable.
Thanks in advance for any positive messages anyone can give.